Brianne Benness Profile picture
Apr 23 5 tweets 2 min read
if you can comfortably spare some cash today, can you support sick folks directly by helping someone(s) in today’s #VoidGives thread get closer to their goal?

fundraising can be essential for survival & also exhausting, but we can help.

p.s. let us know you helped in the poll!
if you have any non-financial support requests/offerings for other sick folk, please reply to *this* tweet with details.

are you looking for someone to chat with while you fold laundry/watch a movie? do you need help doing online research? are you easily able to help with tasks?
if you’re sick & fundraising for yourself/someone you care about, reply to my first tweet (not this tweet) w maybe a quick snapshot of your fundraising progress & goals this week (like “raised $5 of $500 so far this week!”) followed by your link(s) or a quoted tweet w your links.
I really encourage everyone to give directly to folks in replies, but if that’s inaccessible to you for any reason, you can also send a few $ to my personal P*yPal (not NEIS account) & I will redistribute it all slowly in daily threads as energy allows: paypal.me/bennessb
if you’re not able to vote in polls for any reason, please reply here to let us know you helped & to be counted!

and finally! if you want to learn more about this iteration of Void Gives, here’s a thread with more info:

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More from @bennessb

Apr 24
the primary reason our medical system isn’t ready for long covid is that everyone working in our medical system has been trained to dismiss signs of complex chronic illness as entirely caused by stress or malingering.

addressing staffing & cost problems won’t fix this.
I get so sad when I read newly sick people talking about how systemic access issues prevent them seeing a doctor because

1. we need to fix those systemic access issues

2. fixing those operational issues won’t fix the culture of ableist dismissal across systems
like… the waits for long covid clinics are a problem.

but if you’re waiting to access a clinic that only offers GET & CBT to people with long covid, you’re probably better off without any medical care.

that’s how serious the risks of iatrogenic harm are right now (& always).
Read 11 tweets
Apr 24
if you can comfortably spare some cash today, can you support sick folks directly by helping someone(s) in today’s #VoidGives thread get closer to their goal?

fundraising can be essential for survival & also exhausting, but we can help.

p.s. let us know you helped in the poll!
if you have any non-financial support requests/offerings for other sick folk, please reply to *this* tweet with details.

are you looking for someone to chat with while you fold laundry/watch a movie? do you need help doing online research? are you easily able to help with tasks?
if you’re sick & fundraising for yourself/someone you care about, reply to my first tweet (not this tweet) w maybe a quick snapshot of your fundraising progress & goals this week (like “raised $5 of $500 so far this week!”) followed by your link(s) or a quoted tweet w your links.
Read 6 tweets
Apr 22
if you can comfortably spare some cash today, can you support sick folks directly by helping someone(s) in today’s #VoidGives thread get closer to their goal?

fundraising can be essential for survival & also exhausting, but we can help.

p.s. let us know you helped in the poll!
if you have any non-financial support requests/offerings for other sick folk, please reply to *this* tweet with details.

are you looking for someone to chat with while you fold laundry/watch a movie? do you need help doing online research? are you easily able to help with tasks?
if you’re sick & fundraising for yourself/someone you care about, reply to my first tweet (not this tweet) w maybe a quick snapshot of your fundraising progress & goals this week (like “raised $5 of $500 so far this week!”) followed by your link(s) or a quoted tweet w your links.
Read 5 tweets
Apr 21
if you’re high-risk for covid complications, how do you think about wearing/not wearing a mask around other people?

what resources and data are informing your decisions?

(plz don’t tell people to just ask their doctor, we’re not in a timeline where that’s universally helpful.)
I don’t just mean like, generally in public, I also mean in private spaces, with individuals or small groups of people you know.
[sex]

I’m definitely not the first person to talk about this, but it’s certainly noteworthy how just creating the conditions for informed consent around shared air feel a lot like creating the conditions for informed consent around fluid bonding. transferable life skill.
Read 9 tweets
Apr 10
ok but do we have a specific word for the strain of ableism that is levied against people who live with fluctuating, complex & contested illness?

because it’s a distinct bias & I don’t think “healthism” fully covers it.
oooh, I see stablism gaining traction.
Read 6 tweets
Apr 10
“computer, what is lateral ableism?” 1/3: screenshot from r/wheelchairs  Title: I'm sick of this 2/3  It just seems weird to me when people post "how do3/3  I just don't want it to not be known how huge of a deal
(source: this post in r/disability, which now says the original r/wheelchairs post was deleted during the time I was adding alt text to my tweet)

reddit.com/r/disability/c…
if you think a sick/disabled person is “fishing” for something in a support community, I would invite you to consider that… yes, they are fishing for support? same as you?
Read 21 tweets

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