Tamar Tired Profile picture
May 9 8 tweets 4 min read
1/ Oh dear @laurevans311. Methinks u have missed the point entirely of what staff working in the Lived Experience Professions do & range within the discipline. We actually use the insight from lived experience and work from an experiential lens. Did you know we have Professors >
2/ Lived Experience Researchers, Academics, Lecturers, Organisational Change Agents, Service Design Consultants, Trainers, Facilitators, Service Leads, Peer Workers? @ImROC_comms train their Peer Workers with a BSc Module. I have an MSc in ‘Personality Disorder’ I use to work >
3/ with ppl who have complex MH/trauma/distress, to design services, undertake research, challenge discrimination & stigmatising attitudes amongst staff towards them. A bit like the bigotry displayed in your post and by the 124 uneducated ppl who liked it. Have you ANY idea of >
4/ the impact of shitty attitudes, discrimination, being pathologised and treated differently has on #LXP staff? Most have working histories beyond their current posts and can see the disdain, envy & ignorance of their colleagues in comparison to other workplace environments. >
5/ Go and educate yourself on LXPRevolution.co.uk or NSUN.org.uk or shapingourlives.co.uk or imroc.org or
6. You can even do a MSc in Mad Studies. If you don’t know what that is, go check Google. There is a whole field of activism, theory, understanding & skill to this work. Go check the work at @CNWLNHS - 80 LXP staff from bands 4-8 and counting. > qmu.ac.uk/study-here/pos…
7/ Finally, let me come back to the impact of bigotry & #saneism #LXP staff face. It takes its toll. It hurts. Especially when a Peer Worker is isolated in a team where they have no LXP colleagues to talk to about the gaslighting they are experiencing from ppl like you, >
8/ questioning their skills (they are often dual qualified in term of working from an experiential lens AND other education/quals/training) & pathologising their responses when they complain about the discrimination they are experiencing. Please do better.

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More from @tamar_whyte

May 9
1. I’ve been reflecting on the nature of working relationships #LXP staff have with other team members. The nature of open diagnosis for the role means that most see SU first & colleague second, if at all. It makes it impossible to develop the same level of working friendships >
2. which most ppl have a chance to develop. The relationship is based on placating rather than equality. The #LXP experiences smiles, nods or silence when challenging poor practice. No challenge back, because they have no power and are not worthy of the effort of challenging. >
3. The placating and false smiles can have a much darker impact on #LXP staff. A belief that they have developed real working relationships & friendships with staff, that they are respected and cared for, can develop. This is NOT because they have attachment issues, are needy >
Read 11 tweets
Apr 11
So, #CatTwitter - #Cannabidiol for cats? Daisy has started p***ing (not spraying) on the bed again & we have a feeling she’s not happy vs. ill because she’s had antibiotics from the vet already which stopped it for a few weeks and now it’s happening again. Since #CBDoil is >
> supposed to be good for unrinary tract infections, anxiety/depression, pain, anti-inflammatory etc, it seems like it could help with lots of potential causes of the p***ing the bed. It was just the bed, but when we shut her away from the bedroom she p* on the sofa. We have no >
> idea if it’s physical or psychological. She’s 16, never done this before, we got her tested and there was a slight indication she may have had a UTI, this seemed to get better with a course of pill antibiotics (just after a course of liquid antibiotics because of a chest >
Read 11 tweets
Mar 30
@zile_amy @_LisaCherry @CarolineJBald @LxpRevolution @NSUNnews 1) I’ll try to do a thread: Check out all of the previous #MadStudies papers at pinkskythinking.com >
@zile_amy @_LisaCherry @CarolineJBald @LxpRevolution @NSUNnews 2) Check out lxprevolution.co.uk @LxpRevolution which is set up to discuss this, it has had a bit of a hiatus in the last few months but is still very relevant >
Read 28 tweets
Mar 29
TULIKAAAAAA!!!!!!! Aside from being excited at seeing a fellow Twitterati on a Podcast - the content - addressing structural racism through activism whilst working inside the NHS is inspiring. I’m considering leaving #LXP activism behind as it’s left me so harmed. Will listen🙏🏽❤️
I just listened to @TChiarletti1 podcast on Emotional Labour, Race & the NHS - it was excellent. It was also hard to listen to. I drifted off and wept, realised I’d scratched my skin so hard I’d drawn blood. Very close to home and particularly pertinent on taking care of >
> yourself because otherwise the system will destroy you. Seeking out support and understanding your place within it, what you can do. The consequences of raising issues - being positioned as a troublemaker. Tulika positioned herself by taking into account her background, her >
Read 5 tweets
Feb 17
1. Check out this great thread. Here is my own experience in this area. I have an MSc in working effectively with people diagnosed with ‘personality disorder’. This includes service design & critically using various models to inform this, ie. all systems analysis, org change >
2. group theory etc AS WELL AS ensuring needs of SUs met first. Studying as an LXP was f* hard because there was the need to constantly critique this through an experiential lens rather than the tried & tested other disciplines who have loads of academic resources to rely on. >
3. We also had to factor in issues such as the contested and western lens diagnosis designed by people from a certain demographic, how it impacted on people on end users from another demographic and intersectionality. We had to justify our positions academically and demonstrate >
Read 15 tweets
Feb 15
1/Surely this indicates an overt example of discrimination - in this instance, saneism- against #LXP Peer Support Work roles? Is this discrimination on the part of #AgendaForChange #A4C or is it unscrupulous managers writing job descriptions that use keywords to dumb down roles?>
2/This is why we need #LXP senior roles so that we have recruiting managers who work within our discipline who understand the different levels of skillsets required for each type of job & ensure that these aren’t belittled by conflicting internal agendas. Presently no structures>
3/are in place in most organisations to prevent this and #LXP staff are at the mercy of benevolent individuals rather than a robust system to protect them from discrimination in the workplace structures & working environments. That just isn’t good enough. The other issue is that>
Read 13 tweets

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