Tim Reierson Profile picture
May 16, 2022 21 tweets 9 min read Read on X
1/12 I’m calling on #CrisisTextLine to stop allowing anonymous donations. It was shared with me that 2020 financials were recently posted. In 2020, there were massive donations—securities donations totaling $30.4M plus several cash at $1M. All appear anonymous.
2/12 Due to the orgs ethical failures related to data, the public needs to know who is behind the money, especially if the $ has data affiliations. It’s time to end the anonymous donor policy.
crisistextline.org/donor-confiden…
3/12 RE: @ultush thread on Loris. ai, Inc. Keep in mind,Crisis Text Line hasn't divested from Loris .ai. Only stopped sending new data after being exposed. CTL already gave Lorisai 100s millions of sensitive msgs, unethically sourced w/o informed consent.
4/12 Millions of sensitive conversations that Loris. ai, Inc. can keep and use as long as it wants, subject to undisclosed contractual arrangements with Crisis Text Line, Inc. Supposed control over that use, I remain skeptical as the lack of transparency continues.
5/12 The last time donations approached such a figure was 2016, and they were announced publicly. It was $23.8M from “tech A-listers” including Omidyar network (whose affiliate Dena Trujillo is current Crisis Text Line CEO). vox.com/2016/6/15/1195…
6/12 Omidyar also invested in Loris .ai (2018 article). Only two dots to connect here, and they are still very much connected with $$$, data. And CTL still entertains the idea of research and AI w/o consent on conversations. This is wrong & needs to stop. techcrunch.com/2018/02/06/lor…
7/12 2020 financials here (link to form 990). At pdf p2 line 8 Contributions & Grants went from $17.1M in 2019 to $49.1M in 2020, the highest single year ever. p23 lists 2020 contributions of $1M+, all anonymous. p15 has yr 2016-2020 total contributions. crisistextline.org/wp-content/upl…
8/12 2020 Legal fees $745k wmhlaw.com/practice-areas/, software development contractors $292k (Andela.com). $265k to GrayScalable.com for tech & software engineer recruiting. $234k lobbying Glover Park Group fgh.com
9/12 According to 2020 financials, liabilities of settlement agree w/ Nancy Lublin will be in 2021 financials. Separation agreement was made 2/20/2021 but Lublin was fired 6/12/2021. “Today the Board voted to terminate Nancy Lublin effective immediately.” web.archive.org/web/2020061808…
10/12 “On February 20, 2021, the Organization entered into a formal separation agreement with its former Chief Executive Officer.Any financial liabilities resulting from that agreement will be recognized in the Organization’s 2021 financial statements.”p18 crisistextline.org/wp-content/upl…
11/12 Crisis Text Line wired $302k to another country w/in North America region (p33) Canada? For “technology and data innovations”. Presume Kids Helpline. If Crisis Text Line is only vendor (per thread), why send $302k? Lack of trust raises questions.
12/12 In sum, transparency is needed and owed to the public. Please start by stopping anonymous donations. #CrisisTextLine
References to Omidyar as investor in Loris .ai: This press release from Loris .ai directly mentions Omidyar's investment in Loris. The above article was linked from Omidyar's website ( omidyar.com/news/loris-ai-… ). prnewswire.com/news-releases/…
PS 1/6 #CrisisTextLine won't change on its own, please share. CEO Dena Trujillo was (is?) with Omidyar network, philanthropy? INVESTORS in Loris. ai, Inc. This PS thread shows Crisis Text Line now trying to hide. 1st, note Omidyar investment in CTL, 2016 medium.com/omidyar-networ…
PS 2/6 January 28, 2022. Dena Trujillo became interim CEO June 2020 with firing of Nancy Lublin, Trujillo is now CEO. It was this linked January 28, 2022 POLITICO article that fully exposed the Crisis Text Line – Loris. ai, Inc. data enterprise.
politico.com/news/2022/01/2…
PS 3/6 January 31, 2022 @politico reports Crisis Text Line has ended its data sharing relationship with Loris. But CTL still retained shares and profit-sharing, & Loris .ai retained the data, tell me if I'm wrong. Eyes of public move on (understandable).
politico.com/news/2022/01/3…
PS 4/6 February 1, 2022. Crisis Text Line website still prominently displays all Board of Director members & their affiliations, and all Advisory Board members & their affiliations. web.archive.org/web/2022020102…
PS 5/6 February 4, 2022. Board of Director members & affiliations remain, but all Advisory Board member names & affiliations are removed. web.archive.org/web/2022020421…
PS 6/6 February 24, 2022. Now website is down to just the Board of Director names only. Their affiliations have all been removed. That, my friends, is the opposite of accountability. Please donate if able to the @internetarchive . web.archive.org/web/2022022416…
Fact-checking self - Correction to tweet 9/12:
Nancy Lublin was fired on 6/12/2020. Her separation agreement with CTL came LATER, on 2/20/2021, according to 2020 financials, pdf page 18.
crisistextline.org/wp-content/upl…
So far, silence from #CrisisTextLine about their advisory boards following my followup email. I don't think they will admit (to me) what they've done with the advisory boards. Be open, be honest, you're a public service provider.

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More from @holdspacefree

Feb 16
1/ First #EricTopol @scrippsresearch #ScrippsInstitute blocks me for questioning research he shared - what I'd call an "AI"-hype commentary by Kaiser Permanente docs. Then my post gets "liked" by SynthMind AI, an "AI"-hype account that claims to be able to find clients for me.
Books displayed vertically with a circular photo portrait in front.  Below are words: Eric Topol @EricTopol You're blocked You can't follow or see @EricTopol's posts. Learn more
2/ Here's the paper () and image of the post I was commenting on. Feel free to make your own conclusions about ambient "AI"-assist medical note scribes. catalyst.nejm.org/doi/full/10.10…
A screen shot of some twitter posts that said:  Eric Topol @EricTopol Feb 6 post: Use of #AI synthetic notes >300,000 clinic conversations, >3,400 @PermanenteDocs [link to paper omitted] -- 81% Physicians-less screen time during visits and less "pajama time" work on EHR -- 71% Patients-more time spent speaking w/ physicians -- Audit of random 35 notes-high quality  abbyv @aanvigneron Feb 6 post: Can patients decline?  Laurent Landowski @lololando Feb 6 post: Of course  Tim Reierson @holdspacefree Feb 6 post: Is Nabla Copilot the AI scribe technology used in the study? Would you or...
3/ Here's a 2023 article abt the partnership of Kaiser P doctors w/ Nabla .ai, tech vendor (the vendor that was not mentioned in the KP Doctors' Commentary). fiercehealthcare.com/health-tech/me…
Read 6 tweets
Dec 12, 2023
1/ If anything here is wrong, please correct me.
Not ideal to weigh in during the linked call for research, but this is a pattern of concern to me. With my limited reach, I'm appealing to those closest, please reconsider these partnership approaches.
2/ In 5 min I traced out the industry connections to this eating disorder/wellness study, most people would never see them or understand that de-identified information is shared, with little, or at the very least unclear limits, in the use of the children’s words/actions as data.
3/ Unless host research institn requires destruction of models&data by tech partners; & keeps tool under institutnal control in fire-walled environment,&deletes the de-identified data provided by children-you really haven’t honored Belmont Principles of consent for vulnerable.imo
Read 23 tweets
Sep 11, 2023
1/ Let’s talk about @988Lifeline's new Videophone service for callers who are Deaf or with Hearing Loss.
We can CELEBRATE this inclusion,
AND we can demand better from #988Lifeline.
@DeafLEAD @NAD1880 @SAMHSAgov @VibrantForAll
2/ Please offer corrections with receipts if any of my facts are incorrect.
#VibrantEmotionalHealth, a private corporation, is #SAMHSA’s 988 Lifeline contracted administrator “grantee”. The 988 Videophone service apparently belongs to them.*
988lifeline.org/help-yourself/…
3/ *(My FOIA to SAMHSA from Aug 2022 (updated Dec 2022) requested the contracts between Vibrant and SAMHSA, but it's still pending, no responsive documents to date. SAMHSA initially sent me to Vibrant, who referred me to their website. Vibrant isn't subject to FOIA) aka runaround
Read 15 tweets
Jul 11, 2023
1/ If you're a researcher in the field of mental health, & you note an abysmal lack of resources for care, in particular for children & young people(CYP), wouldn't you want to direct your research towards securing funding & support?(stay tuned for ans) 1st, the lack of resources:
"In England, mental health services for CYP are historically underfunded, seeing service cuts of up to 75% even as demand increases at a rate of approximately 11% per annum [12]. One core issue of access, which inhibits the expansion of service provision, is the scarcity of.."
"...highly trained therapists & supporters to deliver therapeutic content [13], especially in relation to CYP [14]. In a 2017 review of mental health services for CYP in the UK, CYP reported concerns that the staff members were not adequately trained to meet their needs [15]..."
Read 19 tweets
Jun 9, 2023
Data Harvest-also see @schock's quote tweets:
☹️Kantar...Use Any Rx Treatment for Depression
☹️Skydeo ... Caregivers by Disease Propensity Type > Depression Propensity Caregivers
😧Health & Fitness::Panic/Anxiety Disorders - comScore (audience interest)
🫤mi9_gs_mental_illness (Grapeshot)
🫤b2bnet_latuda_mentalhealth (Grapeshot)
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🫤xaxisus_headspace_mentalhealth (Grapeshot)
🫤sublimeskinzltd_pr_singtel_mentalhealth (Grapeshot)
🫤Peer39: Custom Category>TheDawn-MentalHealth1
🫤adready_codeyfund_mentalhealth_2021 (Grapeshot)
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😭Peer39: Custom Category>JRF KWBL -CMI plus Suicide
Read 5 tweets
May 4, 2023
@samhsagov and @vibrantforall are you aware that your top-recommended online therapy resource @betterhelp was just fined $7.8M by the @FTC? @BrendanCarrFCC Here's #988Lifeline's resources page linking to top 10 online services, page earns commissions (!) 988lifeline.org/help-yourself/
2/ Click on Online Therapy gets to this link: onlinetherapy.com/best-online-th…
"We may receive commission if you decide to use counseling services through BetterHelp or other resources on our website." Persons needing help deserve an unbiased un-capitalized source for vetted resources.
3/ FTC's release on Betterhelp.
ftc.gov/news-events/ne… So maybe Betterhelp made a correction I don't know, but I guarantee at least some on the rest of that list have serious data concerns. Who actually cares about this at SAMHSA?
Read 8 tweets

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