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May 19, 2022 20 tweets 6 min read Read on X
🧵Gulf War Syndrome & Simon Wessely

"For 30 years they have been disowned, ignored and lied to by consecutive governments, with no positive answers to their questions about exposure to toxic substances and gases & the affect it had on them"

bbc.com/news/health-61…
"Even when I was still in the military, I was getting illness after illness... when I questioned whether it could be anything to do with my service in the Gulf or what we were exposed to, the military line was 'You're talking nonsense, there's no evidence.'"
But new research links the nerve agent Sarin to Gulf War Syndrome in >1000 veterans.

Sarin was released into the air when caches of Iraqi chemical weapons were bombed, it is usually deadly but soldiers were exposed to low doses which is thought to be the cause of GWS.
In 2011 the Ministry of Defence said:

"The UK and the US have undertaken a substantial amount of research into Gulf veterans' illness. The research has indicated that there is no illness which is specific to Gulf veterans."

bbc.co.uk/news/uk-121958…
"Professor Simon Wessely is director of the King's Centre for Military Health Research in London and an adviser to the Ministry of Defence.

He does not believe Gulf War Syndrome exists as a distinct illness."
Wessely said "Is there a problem? Yes there is. Is it Gulf War Syndrome or isn't it? I think that's a statistical and technical question that's of minor interest...

I don't think we're ever going to be able to take it any further now"
Wessely said "Even if you gave me £10m [for research], I wouldn't know what to do with it...

I think the only thing worth spending money on is trying to help those who are ill."
Wessely favours psychological explanations

"The only thing that could have affected so many different people was stress, especially anxiety about chemical weapons, misinformation about Gulf war syndrome & the many vaccinations Gulf troops received."

web.archive.org/web/2016012916…
Wessely argued that the symptoms and concerns were taken up by the media which played a big role:

“the transmission of rumour was a significant part of the very construction of the condition itself.”

me-pedia.org/wiki/Simon_Wes…
In 2006 Wessely gave a talk about Gulf War Illness and started with the familiar line that he was "nervous" about the talk and had received "some intimidatory threats".

vimeo.com/52995882#t=60m…
At 1:00:05 Wessely was asked about research in the US showing higher rates of illness in troops closer to the front & how very low doses of nerve agents with no acute symptoms give rise to prolonged chronic illness many years afterwards.
The audience member that asked the question sounds like Professor Malcolm Hooper a passionate critic of the psychological approach to ME/CFS that was devised by Wessely & has dominated care for the last 30 years but has recently been abandoned.

me-pedia.org/wiki/Malcolm_H…
Wessely responded - I don't think the evidence is compelling, if chemical weapons were used there would have been casualties. I've never seen any convincing evidence they were used. I don't think thats credible. I think there are many other pointers that are much more compelling.
Wessely was awarded a Knighthood for services to military healthcare and psychological medicine in 2013.

"His academic work has led to a better understanding of Gulf War Illness and to more effective psychological support for the Armed Services."

gov.uk/government/new…
Wessely's work on ME/CFS has also been discredited. Research supporting his treatments was all graded as 'low' or 'very low' quality by NICE in 2021. The treatments were withdrawn because are ineffective and potentially harmful.

More info:
Wessely also suggested psychological factors were responsible for ill health reported after contamination of the water supply in Camelford in 1988.

He was wrong and the UK government formally apologized 25 years later. Image
Wessely also argued that ill health reported following the collapse of the Twin Towers on 9/11, was a “consequence of an ideology that tells us that our physical environment is responsible for most of our bodily discomforts and ills.”

spiked-online.com/2002/05/23/wor…
"Tens of thousands of people got sick, and many have died since then from their illnesses contracted at Ground Zero... Researchers have identified more than 60 types of cancer and about two dozen other conditions that are linked to Ground Zero exposures."

scientificamerican.com/article/health…
Thanks to @maxwhd for highlighting the Gulfwar Video.
The Gulf War Illness Breakthrough and why it Matters to ME/CFS/FM and long COVID
by Cort Johnson

healthrising.org/blog/2022/05/2…

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More from @ABrokenBattery

Apr 18
🧵of clips @GeorgeMonbiot talking to @davidtuller1 about his recent article where he describes the psychologisation and treatment of #MECFS as "the greatest medical scandal of the 21st century."
@GeorgeMonbiot talks about the poor quality of life people with #MECFS experience and how the psychological approach led to attitudes such as a nurse in one medical paper saying ‘the bastards just don't want to get better’
@GeorgeMonbiot talks about Professor Simon Wessely being a founding member of the Science Media Centre, and how journalists parrot the biopsychosocial model of #MECFS and how the story became about harrasament of researchers instead of patients being badly served
Read 5 tweets
Feb 20
Thank you @krishgm @JaneDodgeC4

Doctors have been taught to gaslight patients with #ME for decades. This video from the 90s teaches GPs that patients are frustrating to work with because they are mistaken about the cause of the illness and can often engage in arguments.
It downplays the severity, dismisses the possibility of it being caused by a virus, and essentially describes it as psychological. Patients may have had a virus but it's gone, cleared the body, and the illness is basically perpetuated by a fear of activity and resting too much.
This approach to ME, Graded Exercise and CBT, was withdrawn by NICE in 2021 because the research was flawed and patients reported it was harmful. All of the research was graded 'low' or mostly 'very low' quality.
Read 5 tweets
Jan 10
New: Jon Ronson Things fell apart episode on Judy Mikovits, her paper on XMRV and #MECFS that was retracted and how she became involved in the conspiracy theory film Plandemic.

bbc.co.uk/sounds/play/m0…
Hopefully @JonRonson will take an interest in #MECFS and what George Monbiot and Carol Monaghan MP described as one of the biggest medical scandals.

George Monbiots article


Georges accompanying thread with more info
theguardian.com/commentisfree/…

Image
I know @JonRonson is interested in ripple effects.

Simon Wessely pioneered the approach to #MECFS in 1988. His paper rejected the conventional view that patients have an ongoing disease, and argued that they are simply unfit due to being inactive.

me-pedia.org/wiki/Simon_Wes…
Image
Read 13 tweets
Sep 29, 2023
QT -The Guardian calling out The Science Media Centre

🧵The SMC also has a long record of promoting & defending Graded Exercise & CBT for #MECFS. These treatments were withdrawn by NICE in 2021 because they are ineffective & harmful. All the evidence was low or very low quality.
George Monbiot has written about #MECFS & how the "establishment closed ranks around bad science, defending it from legitimate questioning and criticism."

He mentions the involvement of the SMC in this clip.

And more in his thread


The treatments and approach were pioneered by Simon Wessely who was also a founding member of the SMC, sat on the board and has been their scientific advisor.



me-pedia.org/wiki/Wessely_s…
simonwessely.com/Downloads/Othe…
Image
Read 8 tweets
Sep 26, 2023
Hi @ellapickover, @eblackburne, I have put together a quick thread in response to your recent article 'New hope for 'incurable' disease that leaves sufferers shattered'. There may be some things you are not aware of.

walesonline.co.uk/news/uk-news/d…
Its not new it was proposed for ME in 1989 (Chalder from the recent paper was an author) It has been the dominant approach for the last few decades, until Graded Exercise and CBT were withdrawn by NICE in 2021 because they are not effective and harmful.

researchgate.net/publication/20…

Image
Image
The 3 year comprehensive review by NICE found all the evidence for Graded Exercise Therapy (GET) and CBT was of "Low" and mostly "Very Low" quality. This blog by Prof Brian Hughes provides more detail.

thesciencebit.net/2021/08/15/the…
Read 11 tweets
Aug 14, 2023
Thankyou @OllyMann, @holdenfrith, @leafarbuthnot and @harriet1marsden for covering #MECFS and the new Government Plan. I just want to highlight a few things you may not be aware of.
Post Exertional Malaise (PEM), is the hallmark symptom of ME which means patients deteriorate following even minor activity. Exercise makes patients worse by definition. Pulitzer prize winner Ed Yong gives a good description of PEM.

archive.li/2023.07.27-111…
Image
The article opposing NICE was largely written by Peter White lead author of the PACE trial. NICE graded all research (inc PACE) as low or very low quality. Opposition is from a minority with close links to the research or researchers. All charities support the guideline.
Read 11 tweets

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