Dakota Profile picture
Jun 5 7 tweets 2 min read
“Missed risk: Long COVID threat extends far beyond pandemic” missoulian.com/news/local/mis…
“Teasdale’s post-COVID symptoms match a condition called myalgic encephalomyelitis/chronic fatigue syndrome, or ME/CFS.”
"In January, the journal Infection Control Today compiled other research forecasting more than 8 million Americans would develop long COVID. That’s at least three times the number of people currently diagnosed with ME/CFS (pre-COVID). The journal quoted #MEACTION editor...
Adriane Tilman feeling unsurprised.

"Long COVID is not a new phenomenon — there are millions of Americans who got sick with a virus and never recovered before the pandemic, and developed ME/CFS,” Tilman told ICT. “The only difference is that we are seeing this happen now in...
real time on a massive scale.”

"That scale may envelop the ME/CFS community itself. In the same article, National Institute of Neurological Disorders and Stroke Director Walter Koroshetz said that in the past cases of ME/CFS developed out of a post-infectious illness: “(The)
only difference here is that we know what virus is driving it in large numbers of persons.”

"The ME/CFS community started raising alarms about the potential for chronic fatigue after-effects in May 2020 — two months after pandemic lockdowns started in the United States. They..
already had decades of research linking viral infections with the secondary health impacts."

"PEM reactions worry Teasdale most when he hears about others trying to shake off long COVID."

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More from @Dakota_150

Jun 6
“Even the healthy face long-COVID risks” startribune.com/even-the-healt…
“Savannah Brooks has been an athlete her whole life. She enjoys kickboxing and has trained for mixed martial arts competitions.

But in April, the 30-year-old Minneapolis woman tested positive for COVID-19. It didn't make her sick enough to need hospitalization.“
“Still, lingering fatigue and a racing heart rate accompanying even the mildest exertion mean she's now relying on a wheelchair for walks around her neighborhood.”
Read 4 tweets
Jun 5
Dr. Koroshetz is on 'Face the Nation' 9:30A CT - 10:30A CT, CBS this morning, talking long COVID

@NINDSdirector @NINDSnews @FaceTheNation @CBS @CBSNews

cbsnews.com/news/dr-walter…
"DR. WALTER KOROSHETZ: We don't have like a magic bullet or cure for the- for long COVID, because we don't understand what's driving it biologically. And so to get that, you know, holy grail, we need to understand what is wrong in the body that's causing these symptoms, clusters
of symptoms, in people. For the other infections that have occurred in the past, we've never been able to figure that out. Those people with post-infectious mononucleosis, people with post-Lyme, they've been suffering the same things. There's a condition called Myalgic
Read 5 tweets
Jun 4
“The 10-year-old’s symptoms passed — but then worse ones set in. Her case shows how little we know about long COVID in kids” sfchronicle.com/bayarea/articl…
“I don’t want another child to wait decades for proper medical care,” Carmilani said from her home near Pittsburgh.”
“She points to research showing that ongoing illnesses prompted by initial viral infections are not uncommon. They include long COVID, chronic fatigue syndrome (myalgic encephalomyelitis) and Epstein-Barr, which can cause mononucleosis, among others...
Read 5 tweets
May 20
New York Times "The Daily"

'A Better Understanding of Long Covid'

'Guest: Pam Belluck, a health and science reporter for The New York Times.'

@PamBelluck @nytimes

open.spotify.com/episode/6nFePl…
Q: "What do you think are the implications for the medical world"

Pam: At 31-minute mark, "I think it is beginning to transform, hopefully, somewhat in a positive way, the way that the medical world looks at symptoms like this. Before Long COVID, there have been many patients..
...who experienced some of these types of symptoms that are considered a little bit nebulous, hard to treat. I'm thinking about conditions like chronic fatigue syndrome, or myalgic encephalomyelitis, fibromyalgia. All these conditions that had somewhat similar symptoms to Long..
Read 10 tweets
May 19
"‘This isn’t just gonna go away’: Long COVID is crashing the retirement hopes of many Americans"

marketwatch.com/story/this-isn…
"Post-viral syndrome and fatigue is not a new human condition. People sometimes develop it after the flu, pneumonia or the common cold, or more serious infections like HIV. And some develop myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) afterward...
... But long COVID is shining a new spotlight on the long-overlooked and misunderstood malaise, and making it a more common feature of retirement."
Read 4 tweets
May 18
"Long COVID and Cognitive Dysfunction: Searching for Answers"

H/T @WildNycgirl. Wonderful interview with Dr. Serena Spudich. ⬇️

thebodypro.com/article/long-c…
"Wilder: You recently co-authored a piece with Avindra Nath, M.D., from the NIH, who has done work in myalgic encephalomyelitis, often referred to as ME/CFS. Many people with ME/CFS had a viral trigger to the onset of their disease. Are you consulting with ME/CFS clinicians..
and researchers who have seen this type of cognitive dysfunction for decades?

Spudich: [I gained a lot of] insight through working with Avi. We have another collaborator now at Rutgers who has also had some research experience in that area, and we’re putting together...
Read 5 tweets

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