Ok #NEISvoid friends I think I need accessible “relaxation” techniques that aren’t any form of meditation/mindfulness. I keep getting stressed by various crap going on & holding it in my muscles & wrecking my posture & causing more pain in my hyper mobile joints.
Other things that don’t work for me: breathing exercises, many sensory things: no smells/food oriented stuff due to allergies. No audio stuff involving words bc HoH.
& def no form of CBT oriented things trying to convince me things aren’t that bad. Things are unfortunately frequently that bad rn. I just need to not have my joints wrecked trying to emotionally cope w them is the issue.
I’ve always liked the “activate mammalian dive reflex” thing w ice pack on face but I’ll need to check w my cardiologist if that’s actually safe to do these days w other stuff going on. But that flavour of thing works well for me.

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More from @zeikonline

Jun 8
I don’t hold anything against disabled ppl using services from nonprofits that explicitly exclude ppl w mental illnesses from their programs but I do bear v strong ill will towards ppl who lead these orgs. Some of these orgs even discriminate against mentally ill children.
I’ve seen this shameful stance from orgs doing vastly diff types of work:
- case mgmt & patient advocacy orgs esp when executive fnc is impacted by so many mental illnesses & case mgmt would be so helpful
- free arts/sports classes for disabled children
- health crowdfunding
The org for children had deliberately euphemistic language abt this ok website not in their social media targeted ads I got. When I explicitly asked them to clarify w FB comment they PM’d me & deleted my comment. Their excuse: rules & liability for working w mentally I’ll kids.
Read 4 tweets
Jun 8
This past week, I voted in my first primary election in California as a new citizen & I have some thoughts. Short 🧵
Some FYIs: I get v excited abt the right to vote bc I’ve spent most of my life living in countries I wasn’t a citizen of at the time & couldn’t vote. + originally being from a country where election rigging is more blatant than here.
Ppl died for my right to vote here & I’m gonna use it to honour them regardless of how shitty the candidates available to vote for are.
Read 14 tweets
May 29
I’ve talked before abt how an accommodations based approach to accessibility is ableist. & I realized that may be confusing esp to allies since “universal” design doesn’t exist. So wanted to elaborate a bit. Tentative name but I would support more of an options based approach…
By that I mean something like choosing from a menu of options rather than having to ask for things that are “means tested” in some way. This may not always work re niche accommodations. But I think the same ethos can be applied to those…
For ex, many STEM jobs let you choose b/w having a Mac or PC for your work. They’re both available options in default flow. Accommodations should be similar IMO…
Read 6 tweets
May 29
So um my PT recommended a new muscle anatomy & trigger points app which has referred pain illustrations & I’ve been playing around w it & basically a pain I’ve had for several years is mostly gone in a minute’s worth of self massage & basically trigger points are complete magic
Like I don’t even know what to do w myself rn.

It was a band of tightness around my ribcage & suddenly I can breathe like I haven’t breathed in years & it feels like a head rush & like how?!
For folks asking, the app is just called TriggerPoints $2.99 on iOS App Store
Read 5 tweets
May 28
@fattyMPH @alexhaagaard Oof i spent 2020 trying to find a non awful cardiologist to diagnose/treat POTS. One of them was like I don’t treat POTS but while you’re here we need to get you to exercise bc wt & I was like didn’t I just say I’m having trouble sitting up more than 30 min w/o being lightheaded.
@fattyMPH @alexhaagaard & he kept suggesting stuff I def couldn’t do even behind that bc hyper mobility & had been banned by physical therapy due to previous injuries. I eventually just had to be like let it go. He still wrote down wt issues from eating too much in my list of problems. 🙄
@fattyMPH @alexhaagaard That was after I’d told him I’d gained all that wt on certain meds I was given. Like it was none of his business or anything to do w my actual health issues. But at least don’t blatantly lie on my chart.
Read 4 tweets
May 28
I love liberals responding to this w “you had training” & not “perhaps 18 yos shouldn’t be in military either or sent off to murder ppl in other countries before they’re mature enough to question why our govt wants those ppl dead”

[ID] b/w pic of OP in combat gear w rifle
I’ve thought the enlistment age should be raised for a while. I was def swayed by military propaganda as a teenager & wanted to join up for the cool planes. Thank God/dess for steering me away.
B/w military propaganda in school, movies, video games, recruitment in marginalized communities, & being raised in insular, racist & xenophobic communities, & gen cultural glorification of military it’s a lot to ask teenagers to be aware enough to see military critically.
Read 4 tweets

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