One thing I’ve had the opportunity to do while sitting in this room for the past 2 months is reflect on my past advocacy efforts and refocus on the direction we are going in the future based on my neck injury and hospitalization.
One thing I miss is working in the field as a harm reductionist. Spending time in the encampments, providing #naloxone, sterile syringes, basic wound care etc. was a highlight of my life.
Testing drugs for my friends…(fake pressed Xanax bars in photo).
Making balloon animals to bring out a smile with my friends experiencing homelessness…
Bringing buprenorphine to where folks were via telemed in the field.
This is Kensington, Philadelphia. I took a bunch of photos of the community to highlight its beauty amid so much negative press and hung these photos in my office to remind my friends that there is hope in the darkness.
I’m fairly certain our focus is going to be more focused on destroying stigma now that I’ve experienced its effects first hand. I think this will allow me to speak from experience and give me credibility.
I’ve tried to raise awareness in real time throughout the past 2 months and I will continue to do so. This work is important and I’m saddened at how deep stigma is embedded in American healthcare. My life is dedicated to changing this.
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This is an outstanding talk by @dorazepam on Xylazine.
I’ve had the privilege of working with Dr. D’Orazio as a guest speaker and also as a patient after my relapse in 2020. After my wife he was the first person I called for help after relapse.
After listening to his talk I have several thoughts running through my brain. First has to do with my reporting of bradycardia.
I need to dig deeper, but thinking about his piece on imidazoline receptors and how infrequent bradycardia was I’m curious if the bags were cut with another a2 agonist. Bradycardia was specific to a particular “stamp” which I then avoided.
FAIRLY COMPREHENSIVE XYLAZINE THREAD (including personal experience)
Where there’s fentanyl, there’s xylazine.” ~@dorazepam
Xylazine caused so much destruction in my life:
-Terrible, difficult to treat wounds.
-Serious cardiovascular effects.
-Intense withdrawal syndrome.
Xylazine has been used as a “cutting agent” for years, but over the past 3 years we’ve seen a dramatic uptick in its presence in street sample crescendoing to a staggering presence in almost every street sample collected.
The nurse caring for me said the overnight medicine physician finally called back and said she doesn’t feel comfortable making any changes to my care so I’ll need to wait till the AM to speak with the other medicine doc. She’s only here for emergencies the nsg supervisor said.
So, a man in moderate iatrogenic withdrawal for >24 hours, threatening to leave which statistically increases my likelihood of fatal overdose significantly isn’t considered emergent.
Moreover, I’m not even worth coming to speak with, think about that. My nurse messaged her and the nsg supervisor contacted her to tell her I want to speak with her, and she responded with a text. When did physicians become such cowards who hide behind text messages?
The answer I get when it’s after 5pm and I ask for help because I’m suffering in pain and withdrawal because unqualified clinicians who don’t understand the intricacies and pharmacokinetics of buprenorphine
or the subtleties of opioid withdrawal make unilateral decisions with little regard for the consequences is, “sorry, they left for the day so it’ll have to wait till tomorrow.” What they are really saying is this:
Everyone who is important gets to go home to have dinner with their families, hug their children, kiss their spouses (or significant partner), tuck their kids in bed while reading them bedtime stories, rest quietly in their favorite chair while reflecting on the day,
1. Unfortunately, even though so many aspects of my care have been excellent at @JeffHealthAb what I’m going through right now is unbearable and completely opposite of what has been discussed when planning my care. Pain mgmt (not the usual NP) just saw me.
2. I explained I am in 9/10 pain and active withdrawal (COWS 20). I proposed 2 ideas to get me through the next 2 days. 1mg of dilaudid q6 in addition to the PCA which is 0.4mg with a 6 minute lockout. To this she said, “absolutely not!”
3. My 2nd thought was 4mg PO dilaudid q4 or 6 depending how it lasts and discontinue the PCA since PO is the goal anyway. She said she would speak with “the powers that be” but kept focusing on taking bupe when my wife brings the Rx because they don’t carry it on their formulary.
1/5 I know I talk about a lot of negative issues and I’m very critical of the care I’ve received. I also want to talk about the positives as well. The nurses on 3 Widener East (neuro step down) at @JeffHealthAb are stellar.
2/5 They are by the book on point and take note of minute changes. They can easily hang with the best nurses I worked with on the Rhoads 5 SICU at the University of Pennsylvania.
3/5 Several nurses have told me they’re often dismissed because they are not ICU nurses. I’ve worked with some of the best in the country, and this team is top notch. Not only are they clinically sharp, but they understand the human element.