Thread by @BeLikeLight

The privacy holes were never really plugged. A thread. #BeLikeLight

https://twitter.com/janoldenburg/status/1588189922955067394

In 2018, we filed an @FTC complaint regarding privacy of groups.

We reported back then the $5 Billion Settlement had NO remedies / protections for health information. #BeLikeLight

statnews.com/2019/07/31/fac…

Then a pandemic happened. The "privacy holes" got exploited by targeting vulnerable communities with disinformation.

Even FDA Commissioner Rob Califf has called out medical misinformation as a leading cause of death in the US. #BeLikeLight

healthjournalism.org/blog/2022/04/f…

The holes got bigger from there.

Brokers use those algorithms to target you without your knowledge or consent to build predictive profiles and target you.

@BraveBosom shared more in this @DC_BHV talk:

Health data on Facebook was taken by exploiting NEW privacy holes.

...Not just from social media, but from your own medical records records. We published this study in August covered by Forbes. #BeLikeLight

forbes.com/sites/alexandr…

That was just the tip of the iceberg.

After taking this study to @themarkup their investigation found 30 of the top 100 hospitals were ILLEGALLY sharing data back with Facebook. #BeLikeLight

themarkup.org/pixel-hunt/202…

So...What do we do?

As a community, we need to stop thinking about plugging the next hole in a sinking ship.

Our growing coalition at @BeLikeLight talks about that here:

vimeo.com/762977689