In some ways why I followed her is a bit boring, why I really, really wanted her to follow me is perhaps more interesting. Never the less...
I started this twitter account at the BIGSPD conference on the Isle of Man 6 (?) years ago. Wanting it to be for work I followed anyone tweeting about the conference and at one point I'd have searched 'BPD' and followed a few of the people who came up.
I'd see Sue posting about issues that effected me and the people I worked with. While she could be vitriolic about issues, she was always very gentle and respectful to those she interacted with. I'd see Sue doing #BPDchat and be amazed at what a compassionate, helpful space...
...she and Carl had created online. While I was feeling somewhat inadequate with 3 colleagues and my mum following me, I remember admiring Sue's output and hoping in some way she'd appreciate the things I was doing in the same area.
I met Sue at a BIGSPD community of practice event in Leeds where she spoke very eloquently and passionately about the personality disorder consensus statement she was coauthor of.
Me and @HoppyPelican spent the lunchbreak with her walking around the medical museum looking at some of the most sadistic looking implements ever created which were I flicted on people many years ago.
I was in a hotel just preparing for my first ever commissioned piece of private training when I saw Sue on the BBC with the Consensus statement being releases. Many people with lived experience, Royal College of Nursing, BPS, Royal collage of GPs (not my Prof body) calling for..
...the term "personality disorder' to be abandoned.
Can't remember ever seeing "BPD" on the BBC before that.
I met Sue again at the BIGSPD conference in Cardiff in 2018. We sat together and watched some talks (possibly one of the more infamous ones). We increased our connection around a shared distance for places that falsely call themselves specialist and who detain people for years.
I was really glad when me and Hollie got to talk to Sue in more depth on our podcast
So...I followed Sue because she talked about issues I was I terested in. I wanted her to follow me because she was front and centre of efforts to bring services and lived experience together. Someone who modelled passion, drive and effectiveness.
There's a few people that I've been really pleased when they followed me, and seeing "Sue sibbald followed you" was definitely someone I'd been hoping for for ages.
So that's why. If you have a task for me I will do most things for £22
In a country where "Thousands of people were interrogated, unfairly prosecuted and/or arbitrarily detained solely for peacefully exercising their human rights, and hundreds remained unjustly imprisoned" this happened. 👇 The consequences were worth it.
The Iranian football team refused to sing the national anthem of a place where "Torture and other ill-treatment, including denying prisoners adequate medical care, remained widespread and systematic" The consequences were deemed worth it.
Everyone I work with has experienced some form of childhood adversity and this is a charity that is very close to my heart.
If you could give anything that would be amazing. If you could join the 1% club and donate 1% of my target (£22) that would be fantastic and you can tell me to do something for you. Videos, songs, embarrassing things... your choice, all for £22.
At the @BIG_SPD conference in June I was live tweeting the session on Funded & Forgotten looking at OOA placements. As I couldn't live tweet the bit me & @HoppyPelican did, this is it in it's glory 🧵👇
The abridged version is "people deemed as NEEDING a specialist placement can be supported in the community"
There were 2 other presentations
We cannot emphasise enough the efforts we went to to ensure we had consent to share this narrative, but they wanted this experience shared and it was their idea to share it.