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Tim Reierson Profile picture
@holdspacefree
Jan 10, 2023 • 3 tweets • 2 min read • Read on X
What's often left out of the conversation about #CrisisLines and #DataEthics, is the #volunteers. The focus is naturally on persons experiencing crisis. Rightly so, but volunteers make the conversations happen & can be exploited also.I asked #CrisisTextLine whether they took..
..the position that volunteers have provided consent for research on the conversations. They wouldn't answer the question or even confirm receiving it. They know what they're doing and do it anyway. #BusinessModel
reformcrisistextline.com/wp-content/upl…
Update April 2023:

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More from @holdspacefree

Tim Reierson Profile picture
Feb 18
#BetterHelp-Intro by saying, this is nothing to joke about, while ack it's hard to go in-depth in this format.
Begin Thread.
1/ Please understand BH is owned by #Teladoc, a multi-billion$$ publicly traded corp with global influence.
BH was their 2015 entry to mental health “care”
2/ In US they have influence with #SAMHSA, #988Lifeline, #Vibrant Emotional Health, your health care provider, your insurance company. In UK influence with #NHS, worldwide, more.

Know what you're up against.
3/ It will take organization to protect human care. We need you professionals #Therapy to publicly differentiate helpful telehealth use cases, from the exploitative. As you know, mental health has most vulnerability & most need for trust, human connection, authenticity in care.
Read 18 tweets
Tim Reierson Profile picture
Feb 16
1/ First #EricTopol @scrippsresearch #ScrippsInstitute blocks me for questioning research he shared - what I'd call an "AI"-hype commentary by Kaiser Permanente docs. Then my post gets "liked" by SynthMind AI, an "AI"-hype account that claims to be able to find clients for me.
Books displayed vertically with a circular photo portrait in front. Below are words: Eric Topol @EricTopol You're blocked You can't follow or see @EricTopol's posts. Learn more
2/ Here's the paper () and image of the post I was commenting on. Feel free to make your own conclusions about ambient "AI"-assist medical note scribes. catalyst.nejm.org/doi/full/10.10…
A screen shot of some twitter posts that said: Eric Topol @EricTopol Feb 6 post: Use of #AI synthetic notes >300,000 clinic conversations, >3,400 @PermanenteDocs [link to paper omitted] -- 81% Physicians-less screen time during visits and less "pajama time" work on EHR -- 71% Patients-more time spent speaking w/ physicians -- Audit of random 35 notes-high quality abbyv @aanvigneron Feb 6 post: Can patients decline? Laurent Landowski @lololando Feb 6 post: Of course Tim Reierson @holdspacefree Feb 6 post: Is Nabla Copilot the AI scribe technology used in the study? Would you or...
3/ Here's a 2023 article abt the partnership of Kaiser P doctors w/ Nabla .ai, tech vendor (the vendor that was not mentioned in the KP Doctors' Commentary). fiercehealthcare.com/health-tech/me…
Read 6 tweets
Tim Reierson Profile picture
Dec 12, 2023
1/ If anything here is wrong, please correct me.
Not ideal to weigh in during the linked call for research, but this is a pattern of concern to me. With my limited reach, I'm appealing to those closest, please reconsider these partnership approaches.
2/ In 5 min I traced out the industry connections to this eating disorder/wellness study, most people would never see them or understand that de-identified information is shared, with little, or at the very least unclear limits, in the use of the children’s words/actions as data.
3/ Unless host research institn requires destruction of models&data by tech partners; & keeps tool under institutnal control in fire-walled environment,&deletes the de-identified data provided by children-you really haven’t honored Belmont Principles of consent for vulnerable.imo
Read 23 tweets
Tim Reierson Profile picture
Sep 11, 2023
1/ Let’s talk about @988Lifeline's new Videophone service for callers who are Deaf or with Hearing Loss.
We can CELEBRATE this inclusion,
AND we can demand better from #988Lifeline.
@DeafLEAD @NAD1880 @SAMHSAgov @VibrantForAll
2/ Please offer corrections with receipts if any of my facts are incorrect.
#VibrantEmotionalHealth, a private corporation, is #SAMHSA’s 988 Lifeline contracted administrator “grantee”. The 988 Videophone service apparently belongs to them.*
988lifeline.org/help-yourself/…
3/ *(My FOIA to SAMHSA from Aug 2022 (updated Dec 2022) requested the contracts between Vibrant and SAMHSA, but it's still pending, no responsive documents to date. SAMHSA initially sent me to Vibrant, who referred me to their website. Vibrant isn't subject to FOIA) aka runaround
Read 15 tweets
Tim Reierson Profile picture
Jul 11, 2023
1/ If you're a researcher in the field of mental health, & you note an abysmal lack of resources for care, in particular for children & young people(CYP), wouldn't you want to direct your research towards securing funding & support?(stay tuned for ans) 1st, the lack of resources:
"In England, mental health services for CYP are historically underfunded, seeing service cuts of up to 75% even as demand increases at a rate of approximately 11% per annum [12]. One core issue of access, which inhibits the expansion of service provision, is the scarcity of.."
"...highly trained therapists & supporters to deliver therapeutic content [13], especially in relation to CYP [14]. In a 2017 review of mental health services for CYP in the UK, CYP reported concerns that the staff members were not adequately trained to meet their needs [15]..."
Read 19 tweets
Tim Reierson Profile picture
Jun 9, 2023
Data Harvest-also see @schock's quote tweets:
☹️Kantar...Use Any Rx Treatment for Depression
☹️Skydeo ... Caregivers by Disease Propensity Type > Depression Propensity Caregivers
😧Health & Fitness::Panic/Anxiety Disorders - comScore (audience interest)
🫤mi9_gs_mental_illness (Grapeshot)
🫤b2bnet_latuda_mentalhealth (Grapeshot)
🫤adready_cenikor_mentalhealth (Grapeshot)
🫤xaxisus_headspace_mentalhealth (Grapeshot)
🫤sublimeskinzltd_pr_singtel_mentalhealth (Grapeshot)
🫤Peer39: Custom Category>TheDawn-MentalHealth1
🫤adready_codeyfund_mentalhealth_2021 (Grapeshot)
🫤vicimedia_pr_ emoryandhenrymentalhealthspec_41921 (Grapeshot)
😭Peer39: Custom Category>JRF KWBL -CMI plus Suicide
Read 5 tweets

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