@kateneuropsych@kawaiilovesarah@viscidula@SaferAcademia@DisabledAcadem@DisInHigherEd The panel is balanced between people of colour and White People. As a Mixed Race woman, I’ve seen mental health devastate my family members and seen the intersectional mix of saneism and racism in diagnosis and treatment. Saneism is a real thing. It needs a name, a word. >
@kateneuropsych@kawaiilovesarah@viscidula@SaferAcademia@DisabledAcadem@DisInHigherEd > The cruelty of saneism is something I’ve experienced first hand, it has devastated my career as a Lived Experience Professional #LXP. For the very few colleagues of colour who experience both saneism and racism, the experience can be even worse. It is so important to the >
@kateneuropsych@kawaiilovesarah@viscidula@SaferAcademia@DisabledAcadem@DisInHigherEd > been sectioned, as many Black men are disproportionately sectioned. We can also face saneism within our own communities. We can be left isolated. That is saneism. It needs a word. Please don’t take our language for this. It is something we are developing and understanding. >
@kateneuropsych@kawaiilovesarah@viscidula@SaferAcademia@DisabledAcadem@DisInHigherEd > Discrimination and civil rights have been championed by the Black Community, people in the LGBTQ community. You are leading lights in the fight for equality and in disability we are far, far behind. In Mental Health, we are even further behind. Our Mad Academic Studies have to>
@kateneuropsych@kawaiilovesarah@viscidula@SaferAcademia@DisabledAcadem@DisInHigherEd > draw on the academic literature and examples available on discrimination and this has been founded & populated by academics in Black & LGBTQ academics. The psychology of discrimination is something that is is universal and the wheel has already been identified and debated >
@kateneuropsych@kawaiilovesarah@viscidula@SaferAcademia@DisabledAcadem@DisInHigherEd > we are still learning, but saneism is a real thing. It needs its own name, because it is specific in its own right, even within disability. This includes and particularly applies to Black & Brown comrades, and it cannot be purely explained by racism. I don’t have enough words >
@kateneuropsych@kawaiilovesarah@viscidula@SaferAcademia@DisabledAcadem@DisInHigherEd > or energy to explain the devastating impact this has had on me and many, many other people I know. People die. It is a serious and heartbreaking issue. This isn’t about appropriating racism, it’s about needing to name a horrific form of discrimination that had no name before.
1) I always say I’ve worked as an LXP since 2010. But I forget the work before, my arts practice, focussing on the extremes of emotional pain, mental distress, the way others treated & viewed it. It was activism & narrative from within, naive in a true isolated, outsider sense. >
2) I connected with others in darker corners in darker places from 2005 when I was labelled and our labels connected us and helped us find each other and find comfort in sharing our dark places. Recovery wasn’t our language. When you are chronically in pain, sometimes you need >
3) other ways of relieving that pain when medication doesn’t work. Sometimes the pain is a purging to clear something terrible that is blocked. We didn’t understand our treatment from services was poor and that there were other ways we could have been helped. >
1. This whole argument sounds like Quantum Physics - one thing can be a wave and a particle. Different ways of looking at stuff is good and bad for different ppl in valid ways. Sounds like SUs need informed choice to co-produce how to approach their care with their clinicians. >
2. Personally, I subscribe to both & neither. There’s so many gaps we don’t understand yet: epilepsy & MH links, the intergenerational trauma of chattel slavery, human trafficking, racism, migration, sexuality & gender, autism. It’s a growing field. We grow with it, surely?
3.I want pills because they will hopefully, one day, stabilise my epilepsy. But then they stabilise my mood too. Which is low. And so I need a psychiatrist working in tandem sorting shit out and having me packing more pills than the local dealers 😹>
1. Shocked to the core today. Duty staff told me that ‘There a loads of inquiries into suicides all the time’ when I mentioned that there had been one where someone had died after not being able to access services and our CEO had promised to change this. judiciary.uk/wp-content/upl… >
2. I was angry because not one phone call to the duty team had been answered since 4 Oct. Today is 14 Nov. I told the person on Duty some v.personal stuff about my MH. I asked them if they heard what I had said and they replied ‘Yeah you said you can’t get out of bed & have PMT’>
3. They said they had lots of other people to call and they were going to put the phone done, and hung up on me. I had given them information where they should have escalated the call and put in place a safety plan. >
1/ I want to say a great big thank you to @chris_kammy for speaking out about #apraxia affecting his speech. I’ve been inconsolable over the last few days since I’ve discovered that a complication of B12 deficiency & pernicious anaemiaI’ve been diagnosed with, is #aphasia >
2/ I thought a few low vitamin levels was no big deal. I was having the munchies after an injection so I Googled to see if that was a side effect & I stumbled on the complications associated with B12. I have every single one. Some, like heart problems and reproductive stuff >
3/ are reversible. But the neurological and nerve damage can be irreversible. I have every single symptom and I’ve had them now for years. B12 & folate deficiency can happen if your diet is a bit shite, or if you are vegan/veggie. The hubby cooks from scratch and I’m not veggie >