@kateneuropsych @threadreaderapp @kawaiilovesarah @viscidula @SaferAcademia @DisabledAcadem @DisInHigherEd @APApsychiatric @APA 1) Thanks, I understand and agree with most of what you have said, in particular about WS & love the idea of it being diagnosed as a psychopathy in itself. The lens I work from within the LXP discipline is as an end user of services and using the insight of this, alongside the >
@kateneuropsych @threadreaderapp @kawaiilovesarah @viscidula @SaferAcademia @DisabledAcadem @DisInHigherEd @APApsychiatric @APA 2) range of community stances, academic knowledge, grey and published literature that exists. I run a #MadStudies group & Dr Colin King, @BacaBaca2012. He is a ‘Mad Academic and partnered with the Mad Studies group to write this article in the Lancet: pubmed.ncbi.nlm.nih.gov/33894174/ >
@kateneuropsych @threadreaderapp @kawaiilovesarah @viscidula @SaferAcademia @DisabledAcadem @DisInHigherEd @APApsychiatric @APA @BacaBaca2012 3) Colin also talks about Whiteness and we learnt a lot during his visits to the group. We also have @MadBlackPixie, an E&D consultant who is a Co-facilitator, and David Gibbs, not on Twitter, who does the same work. I think where we differ is on the need to name the >
@kateneuropsych @threadreaderapp @kawaiilovesarah @viscidula @SaferAcademia @DisabledAcadem @DisInHigherEd @APApsychiatric @APA @BacaBaca2012 @MadBlackPixie 4) specific discrimination that exists around Madness. This discrimination pre-dates WS, it is as old as some humans have been… different? Some cultures have embraced this difference, even revered it. Others have been cruel and thought we were possessed by demons or evil >
@kateneuropsych @threadreaderapp @kawaiilovesarah @viscidula @SaferAcademia @DisabledAcadem @DisInHigherEd @APApsychiatric @APA @BacaBaca2012 @MadBlackPixie 5) spirits and treated us very badly. You are right that WS made this much worse and more brutal. If you have Afro American or Caribbean heritage we likely share the intergenerational trauma of chattel slavery and it’s impacts. However, even in mental health institutions, as LXP>
@kateneuropsych @threadreaderapp @kawaiilovesarah @viscidula @SaferAcademia @DisabledAcadem @DisInHigherEd @APApsychiatric @APA @BacaBaca2012 @MadBlackPixie 7) we are discriminated against. It is well dobcumented in the NHS that Black staff face a block in career progression beyond a Band 6. Locally, LXP staff who were required to train with a BSc level module were employed at a Band 2. That is the same rate as a cleaner. There was >
@kateneuropsych @threadreaderapp @kawaiilovesarah @viscidula @SaferAcademia @DisabledAcadem @DisInHigherEd @APApsychiatric @APA @BacaBaca2012 @MadBlackPixie 8) career progression. I was an anomaly employed elsewhere, at a Band 4 - support worker level. I have an MSc in my discipline. I would be at table with Band 8-9 member of staff, mainly White but some Black. I would advise at the same level. Decisions and poor systems were >
@kateneuropsych @threadreaderapp @kawaiilovesarah @viscidula @SaferAcademia @DisabledAcadem @DisInHigherEd @APApsychiatric @APA @BacaBaca2012 @MadBlackPixie 9) developed by others, because an untrained inexperienced ‘sane’ member of staff can do a better job at a highly trained and experienced #LXP member of staff can. Equality is always about concentrating on the most discriminated and vulnerable person in the room. In this case, >
@kateneuropsych @threadreaderapp @kawaiilovesarah @viscidula @SaferAcademia @DisabledAcadem @DisInHigherEd @APApsychiatric @APA @BacaBaca2012 @MadBlackPixie 10) that person was me. It wasn’t because they knew I was mixed race despite my white passing face, it was because they saw me as med and couldn’t see past that. Intersectionally, dark skinned #LXPs are a rare staffing group nationally - the weight of the discrimination they >
@kateneuropsych @threadreaderapp @kawaiilovesarah @viscidula @SaferAcademia @DisabledAcadem @DisInHigherEd @APApsychiatric @APA @BacaBaca2012 @MadBlackPixie 11) face is too much, as Premila Trivedi wrote about: onlinelibrary.wiley.com/doi/10.1002/97…. she was a respected published scientist yet her work as an #LXP was not. Locally, even a white man who used to be a social worker, highly qualified, is a Band 2 LXP. No room for career progression. >
@kateneuropsych @threadreaderapp @kawaiilovesarah @viscidula @SaferAcademia @DisabledAcadem @DisInHigherEd @APApsychiatric @APA @BacaBaca2012 @MadBlackPixie 12) This is why we so desperately need a name for the unique discrimination we experience. We are not even counted when they survey staff for protected characteristics, yet our madness is our Genuine Occupational Requirement and we are not listed as to where we fit within pay >
@kateneuropsych @threadreaderapp @kawaiilovesarah @viscidula @SaferAcademia @DisabledAcadem @DisInHigherEd @APApsychiatric @APA @BacaBaca2012 @MadBlackPixie 14) structures. LX labour is my thing, but sanism is everywhere and affects everyone differently. Some people are still brutalised in locked wards. We need a name for this, a spoken word to call it out. Maybe sanism isn’t the best but it is what people from our community have >
@kateneuropsych @threadreaderapp @kawaiilovesarah @viscidula @SaferAcademia @DisabledAcadem @DisInHigherEd @APApsychiatric @APA @BacaBaca2012 @MadBlackPixie 15) started to use and are starting to identify and understand it’s existence because there is a word for it. It has certainly helped me reframe my thinking, and I’ve experienced my mental health condition from early development -40s and studied/been an activist in the area. >
@kateneuropsych @threadreaderapp @kawaiilovesarah @viscidula @SaferAcademia @DisabledAcadem @DisInHigherEd @APApsychiatric @APA @BacaBaca2012 @MadBlackPixie 16) This is a conversation where people are going to have to be quiet and listen to the voices of the Mad Community, in all its intersections. We need funding and decision making power. Sanism and loss of power is what stops this happening. But we need our word, our language.

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More from @tamar_whyte

Mar 2
@kateneuropsych @kawaiilovesarah @viscidula @SaferAcademia @DisabledAcadem @DisInHigherEd The panel is balanced between people of colour and White People. As a Mixed Race woman, I’ve seen mental health devastate my family members and seen the intersectional mix of saneism and racism in diagnosis and treatment. Saneism is a real thing. It needs a name, a word. >
@kateneuropsych @kawaiilovesarah @viscidula @SaferAcademia @DisabledAcadem @DisInHigherEd > The cruelty of saneism is something I’ve experienced first hand, it has devastated my career as a Lived Experience Professional #LXP. For the very few colleagues of colour who experience both saneism and racism, the experience can be even worse. It is so important to the >
@kateneuropsych @kawaiilovesarah @viscidula @SaferAcademia @DisabledAcadem @DisInHigherEd > #MadCommunity including end ESPECIALLY our more vulnerable Black & Brown comrades that saneism is recognised. I pass as White and got a typical White girl diagnosis in my 20s. My brown brother has had police called and handcuff him when he has been in distress. My Uncle has >
Read 9 tweets
Mar 2
1) I always say I’ve worked as an LXP since 2010. But I forget the work before, my arts practice, focussing on the extremes of emotional pain, mental distress, the way others treated & viewed it. It was activism & narrative from within, naive in a true isolated, outsider sense. >
2) I connected with others in darker corners in darker places from 2005 when I was labelled and our labels connected us and helped us find each other and find comfort in sharing our dark places. Recovery wasn’t our language. When you are chronically in pain, sometimes you need >
3) other ways of relieving that pain when medication doesn’t work. Sometimes the pain is a purging to clear something terrible that is blocked. We didn’t understand our treatment from services was poor and that there were other ways we could have been helped. >
Read 14 tweets
Nov 18, 2022
1. This whole argument sounds like Quantum Physics - one thing can be a wave and a particle. Different ways of looking at stuff is good and bad for different ppl in valid ways. Sounds like SUs need informed choice to co-produce how to approach their care with their clinicians. >
2. Personally, I subscribe to both & neither. There’s so many gaps we don’t understand yet: epilepsy & MH links, the intergenerational trauma of chattel slavery, human trafficking, racism, migration, sexuality & gender, autism. It’s a growing field. We grow with it, surely?
3.I want pills because they will hopefully, one day, stabilise my epilepsy. But then they stabilise my mood too. Which is low. And so I need a psychiatrist working in tandem sorting shit out and having me packing more pills than the local dealers 😹>
Read 7 tweets
Nov 14, 2022
1. Shocked to the core today. Duty staff told me that ‘There a loads of inquiries into suicides all the time’ when I mentioned that there had been one where someone had died after not being able to access services and our CEO had promised to change this. judiciary.uk/wp-content/upl… >
2. I was angry because not one phone call to the duty team had been answered since 4 Oct. Today is 14 Nov. I told the person on Duty some v.personal stuff about my MH. I asked them if they heard what I had said and they replied ‘Yeah you said you can’t get out of bed & have PMT’>
3. They said they had lots of other people to call and they were going to put the phone done, and hung up on me. I had given them information where they should have escalated the call and put in place a safety plan. >
Read 11 tweets
Sep 19, 2022
1/ I want to say a great big thank you to @chris_kammy for speaking out about #apraxia affecting his speech. I’ve been inconsolable over the last few days since I’ve discovered that a complication of B12 deficiency & pernicious anaemiaI’ve been diagnosed with, is #aphasia >
2/ I thought a few low vitamin levels was no big deal. I was having the munchies after an injection so I Googled to see if that was a side effect & I stumbled on the complications associated with B12. I have every single one. Some, like heart problems and reproductive stuff >
3/ are reversible. But the neurological and nerve damage can be irreversible. I have every single symptom and I’ve had them now for years. B12 & folate deficiency can happen if your diet is a bit shite, or if you are vegan/veggie. The hubby cooks from scratch and I’m not veggie >
Read 23 tweets

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