Aimee Profile picture
Mar 11 11 tweets 3 min read
As well as sharing my poster at @ITAKOM_CONF, I contributed a video to the Stories from the Spectrum call.

During the 'Neurodivergent Stories from Real Life', I share a very important personal experience that helped to shape my journey as an autistic so far & all the work I do.
The video is a one-take address to the camera. I do not have a script, I spoke from my heart in order to capture the most authentic version of my story.

My video is about the importance of neurodivergent role models, of listening to ND voices and supporting us to be ourselves.
I hope that any #ITAKOM delegates who see it can resonate with the message, & that it might be useful to fellow ND people on the journey of self-discovery, self-love & self-belief.

I'm not sure I'll make the sessions due to conflict with others, but I am happy to chat about it.
One last tweet(s) on this topic. I only began tweeting about being autistic in 2019, & only "came out" publicly as ND to people I have known since childhood on personal social media in 2020 after attending the NAS Prof Conf in 2020.

This wasn't because I wasn't proud of who I am
It was because I was diagnosed as a child, during a time where there was a lack of awareness (nevermind understanding). My first exposure to my diagnosis in the media was usually negative: stereotyped male characters & as a diagnosis sought during public crime trials.
The lack of public awareness, the ridicule that you would face in schools (seeing a friend bullied out of the school for being autistic) made it scary to tell people, because society at that time did not understand nor seem interested in learning more.

I would educate quietly.
I would take any opportunity I could as a teenage girl to talk about Autism. I presented about my diagnosis for an assessed talk (I got marked down for eye contact...). I organised my school's 1st assembly led by autistic students in my final year & spoke to teachers about it.
Teachers seemed willing to learn, some very clearly wanted to understand more how to support their students, but they didn't have access to the resources/training they would need. I volunteered in classes and supported ND students, I wanted to become a teacher to help others.
I did all of this without being "out". As soon as I finished school, I started volunteering in a club with young people, then got a job there and worked in various roles for 6 years supporting ND young people. I spoke openly to them before being open publicly because I knew the..
Importance of having an adult role model to speak to about being ND, because I didn't have it and craved having someone who understood my experiences from their own experiences to talk to.

"I haven't ever met an autistic adult" - the openness once we had that convo was crucial.
I didn't meet another openly autistic woman in person until 2016. I was diagnosed in 2003 & told my diagnosis in 2006.

I went 10yrs not knowing another autistic woman/girl. I don't want ND young people (& adults) experiencing this. It is why the community is so important to me.

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More from @aimee_speaks

Mar 13
Got in a little late to the Diversity in Neurodiversity session (definitely day one first afternoon session!).

Excited to listen to @WalkerSensei speak about how everyone benefits from "cultural hybridity" & having an open-minded approach to understanding different minds
#ITAKOM
"There is no such thing as a normal brain. What I mean when I say neurotypical is that a person behaves in compliance with social norms based on the cultural expectations instilled in us. Some people are just not capable of passing with these norms."

@WalkerSensei

#ITAKOM
"The potentials really are infinite, and what I want to see in neurodiversity research is a movement away from putting people into boxes and labeling neurotypes to be more about customising and personally explore the weird potentials of your mind." - @WalkerSensei

#ITAKOM
Read 4 tweets
Mar 13
Excited for @HolSmale's keynote on masking.

"Everybody masks, but when you are neurodivergent, masking is on a different level. The mask can be incredibly heavy.. I have to change the very basis of who I am & this is exhausting. I felt like I was broken."

Powerful start #ITAKOM
Now @HolSmale shares about her memories of childhood and how it was the "last time I felt authentically happy."

She remembers the moment this began to change when noticing differences between her and her peers. Masking became apparent from high school to "fit in".

#ITAKOM
"I'm not sure a lot of neurotypical people can truly understand what it is like to be constantly critiqued, judged & disliked for who I am."

@HolSmale shares about the exhausting experiences of surviving social communication from a young age, and still does to this day.

#ITAKOM
Read 7 tweets
Mar 13
Now attending the "Attitudes and Priorities for neurodiversity research" session.

It is standing room only (positive to see the interest!), as I am stood up it is trickier to live tweet, but I will try summarise after the session where I can.

#ITAKOM
The planning around evaluation questions to refine & reshape questions when capturing and better understanding attitudes towards ND people sounds v interesting.

I'm a big believer in involving ND people in research design to be able to make it as accessible as possible

#ITAKOM
They were statistically assessing the responses to the survey, reviewing the way the questions worked in relation to responses & collecting feedback on the experience of taking part to improve research practices.

Again, reflective & adaptive practices are positive to see #ITAKOM
Read 13 tweets
Mar 13
Now attending the "Introduction to Neurodiversity" talk.

@DrAmyPearson has introduced the session as chair, and @SueReviews
Is now discussing the fundamentals of neurodiversity (as she understands it).

#ITAKOM
.@SueReviews will discuss what neurodiversity is & the neurodiversity paradigm.

"Neurodiversity is the fact that all human brings vary in the way our brains work".

Every single brain functions differently & uniquely.

#ITAKOM
The neurodiversity paradigm (@WalkerSensei):
1. Neurodiversity is naturally occurring
2. No one is better than another
3. Neurodiversity operates like other equality and diversity dimensions.

@SueReviews adds:
4. strength in diversity itself - collective not individual value.
Read 16 tweets

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