Aimee Profile picture
Mar 13 16 tweets 9 min read
Now attending the "Introduction to Neurodiversity" talk.

@DrAmyPearson has introduced the session as chair, and @SueReviews
Is now discussing the fundamentals of neurodiversity (as she understands it).

#ITAKOM
.@SueReviews will discuss what neurodiversity is & the neurodiversity paradigm.

"Neurodiversity is the fact that all human brings vary in the way our brains work".

Every single brain functions differently & uniquely.

#ITAKOM
The neurodiversity paradigm (@WalkerSensei):
1. Neurodiversity is naturally occurring
2. No one is better than another
3. Neurodiversity operates like other equality and diversity dimensions.

@SueReviews adds:
4. strength in diversity itself - collective not individual value.
.@SueReviews uses a visual example of trees and nature to understand neurodiversity.

There are 6 different trees on the slide. All of them have different needs, are unique & are of equal value. Whether they thrive is dictated by the environment they are in.

#ITAKOM
.@SueReviews considers myths (& uses fab memes to illustrate these by her daughter).

Myth 1: neurodiversity is not just additional support needs.

"We need to change actions, not just language."

#ITAKOM
Myth 2: strengths are collective

"The way that we view strengths tend to be with a capitalist model, however we all have equal value."

We can put pressure on ND people to excel to prove worth & measuring them by "worth" to society.

We need to teach everyone has value.

#ITAKOM
Whoops, missed number 3! Myth addressed number 4: neurotypical "exists"

Neurotypical is a useful category for describing those people who have less daily challenges. We need the language for describing inequality.

#ITAKOM
Why do we need neurodiversity & a new way of doing things?
- a lot of neurodiversity understanding has come from "core deficit theories".
- deficit based system often focuses on targeting "deficit" to change behaviours to fit societal norm.

We should not do this.

#ITAKOM
"The way that we have classified autism as a social and communication deficit is deeply flawed."

@SueReviews highlights that pinning all "challenges in social and communication" challenges on ND people is unfair, when data shows it is two-sided (see double empathy)

#ITAKOM
"Neurodiversity affirmative settings offer a better alternative." This type of setting should:
- respect & use lived experience
- fight stigma
- reject normalisation

These are some ways of making society more ND affirmative.

#ITAKOM
Really great start by @SueReviews.

Now hearing from @DrRJChapman on Neurodiversity and the concept of pathology.

"Within the movement there is still some element of pathology, and discuss how we can address this."

#ITAKOM
.@DrRJChapman discusses the challenges we face with harmful pathologisation, as well as the harmful depathologisation of some labels/conditions.

For example, people taking the term "OCD" and co-opts it to describe behaviours in a way that undermines experiences of OCD.

#ITAKOM
.@DrRJChapman introduces 3 stages of "health through history".
1. health as Harmony - health as harmony or imbalance to be healed.
2. (current stage) health as Normality - aiming for "normal" functioning
3. (hopeful next stage for neurodiversity) health as Democracy -

#ITAKOM
Normalisation can be harmful for "atypical" minds. Neurodiversity is a challenge to "Health as Normality".

Stage 3, Health as Democracy, as suggested by @DrRJChapman, could mean:
- rejecting idea of "normal" & marginalisation
- space for neurominorities to self-represent
#ITAKOM
Fantastic first panel with @SueReviews and @DrRJChapman. It doesn't matter how much I read (listen to, live & breathe) neurodiversity, there are so many new ways of understanding neurodiversity (and what it should be).

Now time for questions, and soaking everything up.

#ITAKOM
"Don't worry about the label that comes with an individual, focus on the needs of the individual and making sure that these are met." - @SueReviews

Great response to a question. Diagnosis & labels can be a huge barrier to support, we need to focus on individual needs.

#ITAKOM

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More from @aimee_speaks

Mar 13
Got in a little late to the Diversity in Neurodiversity session (definitely day one first afternoon session!).

Excited to listen to @WalkerSensei speak about how everyone benefits from "cultural hybridity" & having an open-minded approach to understanding different minds
#ITAKOM
"There is no such thing as a normal brain. What I mean when I say neurotypical is that a person behaves in compliance with social norms based on the cultural expectations instilled in us. Some people are just not capable of passing with these norms."

@WalkerSensei

#ITAKOM
"The potentials really are infinite, and what I want to see in neurodiversity research is a movement away from putting people into boxes and labeling neurotypes to be more about customising and personally explore the weird potentials of your mind." - @WalkerSensei

#ITAKOM
Read 4 tweets
Mar 13
Excited for @HolSmale's keynote on masking.

"Everybody masks, but when you are neurodivergent, masking is on a different level. The mask can be incredibly heavy.. I have to change the very basis of who I am & this is exhausting. I felt like I was broken."

Powerful start #ITAKOM
Now @HolSmale shares about her memories of childhood and how it was the "last time I felt authentically happy."

She remembers the moment this began to change when noticing differences between her and her peers. Masking became apparent from high school to "fit in".

#ITAKOM
"I'm not sure a lot of neurotypical people can truly understand what it is like to be constantly critiqued, judged & disliked for who I am."

@HolSmale shares about the exhausting experiences of surviving social communication from a young age, and still does to this day.

#ITAKOM
Read 7 tweets
Mar 13
Now attending the "Attitudes and Priorities for neurodiversity research" session.

It is standing room only (positive to see the interest!), as I am stood up it is trickier to live tweet, but I will try summarise after the session where I can.

#ITAKOM
The planning around evaluation questions to refine & reshape questions when capturing and better understanding attitudes towards ND people sounds v interesting.

I'm a big believer in involving ND people in research design to be able to make it as accessible as possible

#ITAKOM
They were statistically assessing the responses to the survey, reviewing the way the questions worked in relation to responses & collecting feedback on the experience of taking part to improve research practices.

Again, reflective & adaptive practices are positive to see #ITAKOM
Read 13 tweets
Mar 11
As well as sharing my poster at @ITAKOM_CONF, I contributed a video to the Stories from the Spectrum call.

During the 'Neurodivergent Stories from Real Life', I share a very important personal experience that helped to shape my journey as an autistic so far & all the work I do.
The video is a one-take address to the camera. I do not have a script, I spoke from my heart in order to capture the most authentic version of my story.

My video is about the importance of neurodivergent role models, of listening to ND voices and supporting us to be ourselves.
I hope that any #ITAKOM delegates who see it can resonate with the message, & that it might be useful to fellow ND people on the journey of self-discovery, self-love & self-belief.

I'm not sure I'll make the sessions due to conflict with others, but I am happy to chat about it.
Read 11 tweets

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