in a continuation of my microbiome research on myself, I am trying a probiotic... for my sinus microbiome
I'll post more details when I have more than a few days of data, but so far? I have been able to stop using my nasal sprays, and my sinuses remain unclogged 🤞
The info I read about this sinus probiotic pointed out that it doesn't treat seasonal allergies
I haven't been able to find info on the sinus microbiome and MCAS, or if this particular probiotic is one that produces histamine (which can sometimes be a problem for MCAS)
I mostly got to a point where I was just really exhausted of all the nasal sprays, which...also potentially contain MCAS triggers
And I was like "welp I guess I'll find out how it goes"
This is definitely a "there's not enough research, guess I'm doing science on myself" thing
Here's a blog post about L. sakei, the probiotic I'm trying for my sinuses
With again, the caveat that this is not medical advice, the research on this is very recent, and we really don't know much about this probiotic + MCAS
Incoming 🧵 about self care I've used for my IIH that seems to help improve my glymphatic system drainage, brain fog, and headaches
Potentially relevant for others with neuroinflammatory conditions such as ME
Background info on new research on the anatomy of the glymphatic system (aka the brain's janitorial service) and potential implications for many chronic illnesses
just thinking about how one of my first experiences with hospital psych workers was being told to pick a word to describe my feelings, taking an (undiagnosed) Autistically long time to do that, and then being told the word I picked wasn't a feeling
[psych survivor feelings]
then they handed me one of those "feeling charts" and made me pick a word from the chart, but also got frustrated I was taking so long trying to process
and we had to repeat this process twice a day
[psych survivor feelings]
that first time, I ended up being so overwhelmed and upset about the whole ordeal that I just kind of randomly picked a "feeling word" that I thought they would believe I was feeling
does anyone have any research papers about what mast cells are *supposed* to do in the digestive tract?
seeing a lot of papers about dysfunction, but honestly I always find it easier to troubleshoot when I understand how something works in like, a Platonic ideal
hey so since we're talking about legalities of medications right now
this is just to say that a lot of jurisdictions in the US have laws that require you to carry prescription meds in their original pill containers from the pharmacy with the label and your name
I know a lot of folks (myself included) use a pill box or organizer, and sometimes those let you remove the little box for the day
This is especially helpful if you have midday meds
Unfortunately in many jurisdictions transporting pills this way is technically not legal
See also: not having space or energy to carry one million pill bottles of rescue meds with you, and decanting a few doses into a cute little container