Really delighted to get to introduce Liz Jackson @elizejackson as the Opening Keynote Speaker of the Including Disability Global Summit #IDGS#HopePunk.
@elizejackson is a disabled and queer expert in the analysis and critique of design practice. Often considered a pundit of industry-declared technological innovation, Jackson has produced essential commentary and reflection on industry norms and industry conceits --
particularly when marketing strategies target the disabled body as a site for technobenevolence, charity, and objectification. Today, Liz will describe how her experiences with pushback, resentment, and rejection inform her sense that her critiques are in fact right on target.
In her talk, Liz will show us that professional failure may actually mark "succeeding downwards" -- in that the trajectory of your career may be inversely correlated with your integrity and commitment to justice.
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Has anybody written about how when you come out as non binary and or bi one of the things people who are supposed to love you do to hurt you most is say they're afraid that it's just the "beginning" and that next you'll "hurt" them by "going further". ...
On a similar note i know trans people who are afraid to come out as non binary after making a binary transition because they're afraid people will claim they are detransitioning.
Meanwhile non binary people are tolerated most when everyone around them can keep pretending nothing has changed. (But this tolerance is violent)
This will be both a plain language summary and a plain language story about why I wrote this paper, and how I wrote it.
This essay was very hard to write. Many people read it before it was finally published. Reviewers, people who read work before it is published and suggest changes, did not like my first draft. I wrote and rewrote this paper many times.
I like it, in the end. But I am sorry that it is just as difficult to understand as it was to finish. I am going to try to summarize this one in plain language. I will probably have to try again when I am better at plain language writing.
I am writing a plain language summary of my paper, “I, Misfit: Empty Fortresses, Social Robots, and Peculiar Relations in Autism Research.”
In this paper, I think about autistic people and robots. Ideas about autism as robotic have made researchers do very strange things. 🧵
Many autism researchers write about how autistic people are like robots, and many robotics researchers write about how robots are like autistic people! There are even studies about how to use robots to help autistic people be more “human”. I think this is very silly.
The paper that I wrote is very serious. But the truth is that I laughed a lot while writing it. I also cried a little. Sometimes things that are silly are also deeply sad.
There are many studies about how to use robots to take care of other people.
A flow diagram for a model of disability labor. Relayed here as more of a narrative to support sense making for Blind folks and people who don't parse diagrams.
Congratulations! You have disability labor and you're the disabled person! What to do now?
If it's not yours, do others agree it's not yours? If others agree, are they actually going to do it? Yes? Dependency Alert! You are now a financial burden!!! Thanks hostage infrastructure!
Oh, they're not gonna do it? Well it's your job now LMAO. 2/5
So It's your job. Are you going to show others that you do this labor?
"Heck no!" you say? "no one can ever find out!" you say? That's invisible labor, buddy.
Oh, you're gonna be "loud and proud!" about your disability labor? Is this like... "real" labor? Does it "count"? 3/5
This is why I get so upset with people who work within systems and feel confident that they work well. You have to know that there's so many people you never even see because the system itself keeps them out. When I first moved to Indiana... 🧵
I recently gave a talk with @svyantek for @AccessCompUW, and the topic of what "advice" I had for disabled people navigating accommodations in #HigherEd came up again and again over the following weeks as I attended other talks and workshops in our conference high season. 🧵
I found the transcript and I'm going to share what I said to the audience with you all: "I'm really tired of being put in the position of giving advice to the people who are being harmed. ...
... I'm really frustrated with the lack of participation and interest from people who are making the choices that harm. At this point, the only advice I have is not for you (disabled people). You do you, and you survive however you need to. ...