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It’s #WorldMEDay! Myalgic Encephalopathy was defined as a prolonged illness after an infection. It’s defining feature is an inability to exercise or otherwise do a lot w/o major crashes lasting days or weeks. It’s also known as “chronic fatigue syndrome” but that name sucks! 1/
“Fatigue” is something we all suffer but “fatigue” from ME is different: it involves lack of blood flow to the brain- what happens to dying people. It isn’t relieved by sleep.
The illness is finally getting attention with hundreds of millions newly suffering post-Covid. 2/
The illness is finally getting attention with hundreds of millions newly suffering post-Covid. 2/
There are different theories for what causes it, from persistent infection to reactivated Epstein Barr to a new autoimmune illness. Or all three! 3/
I’ve been chronically ill forever but never dealt with any ME before Covid. It’s brutal and annoying but it’s taught me a lot. It’s forced me to undo my exercise and accomplishment focused mentality. I’ve learned about rest as productive. Ok happy #WorldMEAwarenessDay2023. 4/
Show love to people in your life that tell you they suffer after doing too much! Let go of your “lazy” worldview. They’re probably dying. 5/
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