Jenn Profile picture
May 12 3 tweets 2 min read Twitter logo Read on Twitter
I really rec folks who are not chronically ill read through the #MEAwarenessDay and #MillionsMissing hashtag to read the stories of those w/ ME/CFS, LC & other postviral illnesses.

So much of chronic illness is invisibilized & it's crucial we help make the "invisible" visible.
Especially in the midst of an ongoing mass disabling event, so many nondisabled people either don't know about ME/CFS & Long COVID or don't believe it can happen to them.

The truth is, postviral illness can happen to anyone.
Folks with ME/CFS & other postviral illnesses desperately need treatment. The more of us who care & advocate, the quicker and better chances they have of getting treatment that could drastically change their lives for the better.

Many have been suffering for yrs, if not decades.

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More from @JenniferLerner1

May 11
One of my favorite essays from last year, written by my brilliant friend, @raiawrites. Feels especially important to re-up as the public health emergency is declared over, but the pandemic rages on, & we desperately need a robust Left resistance/response: midnightsunmag.ca/why-has-the-le…
"The left’s job is not to accept the narrative of events that corporate media and government officials give us – “the pandemic’s over” – but to craft our own...
...showing each other how many more people could be kept alive w/ policies such as universal free healthcare and housing; abolition of prisons, borders & nursing homes; and broad mask requirements, ventilation upgrades, and widespread, accessible testing." midnightsunmag.ca/why-has-the-le…
Read 4 tweets
May 11
Went to pick up coffee this morning, saw that all the workers were wearing masks (mostly surgical). Went back home, came back with a handful of individually wrapped KN95s, and gave them to one of the workers.

There are small but significant ways we can show up for each other.
Relatedly, I would love tips on how y'all approach people about whether they want some high-quality masks. I'm very new to passing them out myself (cont in next tweet)
I know for ex it's prob best to approach people who are already wearing masks, but any advice on how to do it in the most intentional & respectful slash non-presumptuous ways is much appreciated!

(To be clear I of course asked the worker if she wanted some b4 handing it out)
Read 4 tweets
Jan 2
I remember reading this essay a long long time ago (wish I remembered the title and author) who talked about how most people's minds do not change overnight.

It's something I think about a lot.

The best you can do is plant seeds. Let that be enough.
I certainly don't practice this perfectly, but I try to remember this - that changing our minds about something often takes time.

Share your point of view in a generous & thoughtful way, and divest from a particular outcome.
I'm pretty sure the author of that essay also talked about how asking questions could be particularly powerful to get someone to think through things in a different way, instead of say just shoving your point of view down someone's throat.
Read 4 tweets
Jan 2
I get why people feel cynical bc the govt response to COVID has been so awful and we are for sure in an uphill battle.

But there are many groups & orgs working to resist mass infection.

I encourage folks to amplify those groups. And get involved if you’re able.
.@mandatemasksus has an incredible growing list of groups in the US & Canada working on COVID safety & Long COVID advocacy.

Look through the list and see if there’s one in your region/state:
We need more people in this fight. We need more people making it harder for the govt to abandon us and get away with it.

The more people in this fight, the harder it becomes to ignore our demands.

Fighting govt normalization of mass infection would be a great 2023 intention!
Read 4 tweets
Jan 1
Things I’m Proud Of, 2022 Edition:
I’m proud of myself for standing in my truth & honoring my needs, however imperfectly, even when it’s cost me relationships.
I’m proud of myself for not conforming to the normalization of mass infection, suffering, death & disability
Read 12 tweets

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