I really rec folks who are not chronically ill read through the #MEAwarenessDay and #MillionsMissing hashtag to read the stories of those w/ ME/CFS, LC & other postviral illnesses.
So much of chronic illness is invisibilized & it's crucial we help make the "invisible" visible.
Especially in the midst of an ongoing mass disabling event, so many nondisabled people either don't know about ME/CFS & Long COVID or don't believe it can happen to them.
The truth is, postviral illness can happen to anyone.
Folks with ME/CFS & other postviral illnesses desperately need treatment. The more of us who care & advocate, the quicker and better chances they have of getting treatment that could drastically change their lives for the better.
Many have been suffering for yrs, if not decades.
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One of my favorite essays from last year, written by my brilliant friend, @raiawrites. Feels especially important to re-up as the public health emergency is declared over, but the pandemic rages on, & we desperately need a robust Left resistance/response: midnightsunmag.ca/why-has-the-le…
"The left’s job is not to accept the narrative of events that corporate media and government officials give us – “the pandemic’s over” – but to craft our own...
...showing each other how many more people could be kept alive w/ policies such as universal free healthcare and housing; abolition of prisons, borders & nursing homes; and broad mask requirements, ventilation upgrades, and widespread, accessible testing." midnightsunmag.ca/why-has-the-le…
Went to pick up coffee this morning, saw that all the workers were wearing masks (mostly surgical). Went back home, came back with a handful of individually wrapped KN95s, and gave them to one of the workers.
There are small but significant ways we can show up for each other.
Relatedly, I would love tips on how y'all approach people about whether they want some high-quality masks. I'm very new to passing them out myself (cont in next tweet)
I know for ex it's prob best to approach people who are already wearing masks, but any advice on how to do it in the most intentional & respectful slash non-presumptuous ways is much appreciated!
(To be clear I of course asked the worker if she wanted some b4 handing it out)
I remember reading this essay a long long time ago (wish I remembered the title and author) who talked about how most people's minds do not change overnight.
It's something I think about a lot.
The best you can do is plant seeds. Let that be enough.
I certainly don't practice this perfectly, but I try to remember this - that changing our minds about something often takes time.
Share your point of view in a generous & thoughtful way, and divest from a particular outcome.
I'm pretty sure the author of that essay also talked about how asking questions could be particularly powerful to get someone to think through things in a different way, instead of say just shoving your point of view down someone's throat.