Lisa🇺🇸🇺🇦 Profile picture
Jun 13 5 tweets 4 min read Twitter logo Read on Twitter
@BerkeleyJr
While I'm glad you covered #GBM tumors, you missed the headline. Instead of sharing the incredible successes of #NWBO #DCVAX and how many patients have gone 9, 12, 16, 21 years and counting w/ no addtl treatment, you focused on a Phase 2.

1/
Phase 3 was presented last May. JAMA included in their journal and 60 top docs signed on. Plus the combo trial with Keytruda and Poly-ICLC is incredible.

#DCVAX is helping people NOW. It was created at UCLA and trials were conducted in the UK, CANADA, and GERMANY too.

2/
The UK has already approved for Private Pay/ Compassionate Use and full approval should be soon.

As the wife of a #GBM patient who lost her father-in-law to this horrid disease 22 years ago, I wish you would've included the most hopeful and current option, #DCVAX.

3/
This diagnosis sucks the air out of the room and when people Google #GBM, the info they find is awful. The prognosis generally is 10-18 months. Several factors impact that including if it's operable, methylation, IDH factor. But there has always been no hope.

4/
We found out about #NWBO #DCVAX 2 days after my husband's diagnosis. We are urging the @US_FDA to approve this nontoxic personalized cancer vaccine.

If you're serious about sharing the best info, reach out to @ThomasOwenMcCa1 who rec'd it 9 years ago.

This is real hope now.

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More from @LisainNJUSA

Jun 15
@annenbcnews
Hi Anne, my husband was dx w/ a #GBM in May 2022. I'm confused by how you did a GBM story w/o discussing the most significant development ever for brain tumors.

Please follow up with #UCLA & #NWBO #DCVAX. Completed P3 last May, approved for UK Specials already &
1/
is a personalized, nontoxic vaccine. It has given patients w/ a 10-18 month prognosis 9, 12, 16, 20+ years & counting with no addtl treatment.

My husband is a 52 yo firefighter and we are counting on #DCVAX to save his life. He doesn't have time for the treatment you covered
2/
This vaccine was created in the US and UK will have full approval before the US, forcing US patients like @Clairotonin, a 36 yo ICU nurse who desperately needs it, to try to get to the UK at a cost of $300k

We need #DCVAX approved by @US_FDA for compassionate use ASAP and
3/
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