@annenbcnews
Hi Anne, my husband was dx w/ a #GBM in May 2022. I'm confused by how you did a GBM story w/o discussing the most significant development ever for brain tumors.
Please follow up with #UCLA & #NWBO#DCVAX. Completed P3 last May, approved for UK Specials already &
1/
is a personalized, nontoxic vaccine. It has given patients w/ a 10-18 month prognosis 9, 12, 16, 20+ years & counting with no addtl treatment.
My husband is a 52 yo firefighter and we are counting on #DCVAX to save his life. He doesn't have time for the treatment you covered
2/
This vaccine was created in the US and UK will have full approval before the US, forcing US patients like @Clairotonin, a 36 yo ICU nurse who desperately needs it, to try to get to the UK at a cost of $300k
We need #DCVAX approved by @US_FDA for compassionate use ASAP and
3/
You can help. Follow up your story with the treatment that successfully completed P3, positive article in JAMA, 60 top docs signed on, and patients have beaten the odds.
My FIL, also a firefighter, died from a #GBM 22 years ago when science had nothing to offer.
Now the science has proven to be incredible. My husband is young, has 3 kids, 1 still in HS & we're counting on #DCVAX.
US #GBM patients like Claire need access now.
Please follow up
• • •
Missing some Tweet in this thread? You can try to
force a refresh
@BerkeleyJr
While I'm glad you covered #GBM tumors, you missed the headline. Instead of sharing the incredible successes of #NWBO#DCVAX and how many patients have gone 9, 12, 16, 21 years and counting w/ no addtl treatment, you focused on a Phase 2.
1/
Phase 3 was presented last May. JAMA included in their journal and 60 top docs signed on. Plus the combo trial with Keytruda and Poly-ICLC is incredible.
#DCVAX is helping people NOW. It was created at UCLA and trials were conducted in the UK, CANADA, and GERMANY too.
2/
The UK has already approved for Private Pay/ Compassionate Use and full approval should be soon.
As the wife of a #GBM patient who lost her father-in-law to this horrid disease 22 years ago, I wish you would've included the most hopeful and current option, #DCVAX.
3/