Lucibee 🌻 Profile picture
Nov 1 17 tweets 3 min read Twitter logo Read on Twitter
Many folks are retweeting this - but have you actually read as far as the section on "Psychological disorders and long COVID" which seems to be completely at odds with the rest of the review. 🤔
"...psychological and psychosomatic factors exert an indispensable role in the progression of long COVID..."
🤔
It also seems to (somewhat?) misquote current NICE guidance on ME/CFS, as recommending:
"energy management, personalized exercise or physical activity, personalized sleep management, and dietary management"
Or is this OK? 🤷‍♀️
This on treatments for #LongCovid:
"For musculoskeletal pain, regular exercise was suggested to reduce pain and improve physical function."
No mention of PEM or the need to be cautious. 🤔
Then this stunning gem:
"It is remarkable that these physical manifestations are perhaps aggravated by psychological symptoms;
thus, psychotherapy interwoven with therapy of somatic consequences is of utmost importance to long COVID treatment." 🤔
Was this review perhaps written by ChatGPT?
It seems more like a memory dump of all of PubMed!
Also.... why is this published in the journal Signal Transduction and Targeted Therapy?
Is it because, as an open access journal in the Nature stable, folks will see and not question further?
Sorry - I'm in a bit of a skeptical mood at the mo!Nature.com
@TraceyABurgess ^^^
@TraceyABurgess Tracey, is this thread being hidden?
OMG - I'm shaking.
Just clicked on the orchid id of one of the authors... orcid.org/0000-0002-0470…
Paging @MicrobiomDigest 😬
Oh it isn't even hidden - Check out the affiliations: nature.com/articles/s4139…
Image
OK. Now there is a discussion to be had about whether AI/LLMs should/can be used to write papers.
But surely it should be *clearly* declared if they are?
@Nature
@Nature Yes. It certainly isn't clear that this paper uses LLMs in its construction.

@nature | Tools such as ChatGPT threaten transparent science; here are our ground rules for their use

nature.com/articles/d4158…
@Nature I meant - it isn't *made* clear that this paper uses LLMs.
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More from @_Lucibee

Aug 7
I tried to put stuff together over the past few days to write about this episode - but keep getting bogged down.
It's one hell of a boggy marshy rabbit hole.
Everytime I look, I find something else that's wrong, that simply stinks, about the whole thing 😩
This was the issue I was exploring today, and it looks very fishy indeed.
Ooookey dokey.
Get your chops round this one.
lucibee.wordpress.com/2023/08/08/is-…
Read 22 tweets
May 30
A summary to the @actionforme report into the implementation of NICE guidance on ME/CFS (NG206) is here: actionforme.org.uk/news/foi-repor…

I have thoughts... 🧵
My first thought is that asking an NHS trust whether they have implemented NICE guidance on a particular topic doesn't tell you very much.
It doesn't tell you *how* they might have implemented it, or that an affirmative answer means total compliance.
#ImplementNICEmecfs
There also seem to be assumptions made about what implementation means on both the part of the trusts and @actionforme
Let's take a look at question 1:
Has [NHS trust] implemented NG206? Image
Read 18 tweets
May 29
Link to the Times Radio programme is here: thetimes.co.uk/radio/show/202…
Interview is at 02:15:20
I'll be interested to read this report to see whether it tallies with what @WAMESMECFS discovered last year: wames.org.uk/cms-english/ni…
Read 8 tweets
May 28
Yesterday, whilst out while the sun was high, I noticed this phenomenon - of millions of bugs and seeds spiraling round the sun.
I could only see it because the sun was obscured, so I tried to capture it (somewhat unsuccessfully) in this video... instagram.com/p/CswF5-JuTF3/
This photo does a slightly better job, but it's hard to get the focus point right.
As your eyes keep refocusing, it's just bugs all the way up! Image
I found this article on this phenomenon (ft @j_chapman2), but I'm trying to find a better video of the effect.
But maybe it's just best witnessed IRL.
(with appropriate precautions 😎)

npr.org/sections/krulw…
Read 4 tweets
May 19
Saw this meme quote (ht @TomKindlon) and it's got me thinking again about how we measure subjective outcomes, particularly wrt how trials and stats work (or don't, in this case). Text reads:  This is a quot...
First of all though - I don't know whether haematologists are any better placed to understand this or not - I can't find the origin of the quote (the earliest I can find is here (tagged as 26 Sept 2016): facebook.com/ADayintheLifeo…) - but the substance is broadly true.
The reason these measures are inappropriate in trials is because everyone's experience of pain (and fatigue) is different.
Yet a trial will seek to average a score across a cohort to produce a group baseline or outcome for comparison.
Read 9 tweets
May 17
I've been wondering why, over the past few days, I've been feeling really upset by all the talk about this Panorama ADHD documentary.
Then I realised.
That you have know what's wrong with you to get any help.
But what if you don't. What if life has become impossible, but you have no idea why?
You reach out, and eventually get put on a waiting list for what you hope will be a proper assessment of what might be wrong, and possible help at the end.
You wait 3 and a half years.
Finally, the appointment comes, and to your disappointment, you are not given any kind of assessment, but put on a generic 12-week course of one-size-fits-all talking therapy.
Read 8 tweets

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