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Feb 13 20 tweets 4 min read Read on X
I’m seeing more people with Long Covid who got sick after dropping mitigations because the government told them Covid was “only” a risk to the vulnerable. I want to thank them for sharing their stories. This narrative that only certain people are at risk is dangerous. A 🧵 /1
There’s been a lot of failures throughout the pandemic. Failure to acknowledge Covid is airborne, failure to address the reasons masks work, failure to adopt clean air strategies & failure to admit long term risks. /2
But the biggest failure in my mind is the never ending false narrative that “only the vulnerable & elderly” are at risk. If you’re young & healthy you don’t have to worry about Covid. You can go right back to your life (ie get back to work & grow the economy). /3
It’s this “othering” of people that has bothered me throughout the pandemic. The powers that be have created an “us versus them” mentality whereby people who view themselves as healthy & not at risk can get on with their lives while the rest of us are deemed expendable /4
Those of us who were disabled before Covid always knew that many people SAW us as expendable - but it was never so blatantly rubbed in our faces as it’s been since the rush back to normal. It hurts. We are told to shut up, stay home, let the “strong” get on with life. /5
It’s an unacceptable narrative because EVERYONE has a right to life & safety in public spaces. But it’s also false. Covid is NOT just a threat to the vulnerable & elderly. This has been proven time & time again. Do you breathe the air? Do you have a pulse? You’re vulnerable /6
In fact many Long Covid patients were young and incredibly fit when they became sick. Sometimes the healthier you are - the harder certain viruses will hit you. No one is guaranteed a good outcome & especially not with rampant reinfections. /7
People who were disabled before Covid have been screaming this since the beginning - desperately trying to warn ppl that their health is not something to gamble with. We know how little help is available once you’re chronically ill & we saw potential for large scale disability /8
The problem is that the government and media have done such a good job convincing the general public that disabled and vulnerable people no longer matter - that no one will listen to us. We are outcasts who’ve already been branded as “acceptable losses.” /9
It hasn’t stopped us from trying - but many disabled activists have burned out after being told for years that they don’t matter, aren’t important and should just accept their fate for the good of the rest of society. /10
This is where the newly disabled Long Covid patients come in. Those of you who are speaking out about how you were young & healthy and believed that Covid posed no risk to you. So you rushed back to normal … and it ended up disabling you. /11
It takes a lot of courage and honesty to speak up and tell your story… especially when people are chomping at the bit to lay blame that you either must have “had an underlying condition” or “didn’t try hard enough to avoid it.” /12
It’s terrible that you have to contend with such hateful messages but here’s the thing … people NEED to try and blame you because your stories scare them. They see themselves in you far more than they can ever see themselves in someone like me. It shakes their denial bubble /13
I firmly believe that the more people share these stories the better chance we have of convincing the general public that they should be taking Covid seriously and trying to mitigate their personal risk. /14
They need to see and hear from people who they can relate to - who are willing to admit that their desire to rush back to normal left them with a severe chronic illness. /15
So thank you for standing up, speaking out and being willing to admit that you wished you had taken more precautions. I think those of you speaking out are incredibly brave. /16
I also want to say I’m sorry society failed you. I’m sorry that the messaging was so effective that you genuinely believed you weren’t at risk. I’m sorry that the “othering” convinced people that they should risk their lives to prop up a facade of “normal”. It’s devastating. /17
All our voices matter and the more of us sharing stories the stronger we become. We need to stop “othering” each other and admit once and for all that Covid poses a serious threat to everyone. Young & old, healthy & not. No one is immune. /18
Every step you take to mitigate your personal risk is an important step towards breaking chains of transmission. But if we were to approach it collectively as a society - looking out for EVERYONE- we could break it much faster. /end
Epilogue: we are stronger together. Whether already disabled or newly disabled - I hope we can all find & foster community. Once we become a unified voice I think we will be impossible to silence. We can fight for Covid precautions & disability rights & show we AREN’T expendable

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More from @broadwaybabyto

Feb 14
Make no mistake - the CDC decision to change Covid isolation from 5 days to 1 day is an economic & political one. It’s NOT about health and it will kill & disable people. It’s to push people back to work & drive the narrative that Covid is only a risk to the “vulnerable” /1 🧵
Think about what this messaging tells people. If you’re not keeping up with the science you could easily think “well if it was really THAT bad they would be having us isolate.” The problem is - it IS that bad. But governments have given up. They want people back to “normal.” /2
They don’t want to have to provide paid sick days or have people staying home (and not spending money) for extended periods of time. They KNOW herd immunity isn’t happening & they KNOW reinfections are rampant. Sick is our “new normal.” /3
Read 12 tweets
Feb 10
HIV was a novel virus that changed people’s perception of sexual risk. Public health campaigns revolutionized the role of condoms in sexual health. Covid is ALSO a novel virus - why are there no public health campaigns helping people assess risk? A 🧵 on novel viruses & risk /1
First - I understand that people get upset with comparisons between HIV and Covid. The point of this thread is to compare public health & government responses of novel viruses as well as the role of condoms & masks. /2
Before HIV condoms were not the norm - especially within the gay community. STIs had existed for decades but were almost all treatable & non lethal so people accepted the risk and had unprotected sex. Condoms were generally only used for pregnancy prevention. /3
Read 24 tweets
Feb 5
As we emerge from another Covid wave I find myself lamenting the dashed hopes I had at the beginning of the pandemic. I feel defeated, sad & frustrated by the squandered opportunities to create a safer & more inclusive society that cared for the vulnerable and disabled. 🧵/1
Those of us who were disabled before Covid were used to being excluded from society. Inaccessible spaces & work options were the norm. Many of us were also used to having conditions that were chronic & poorly understood. We knew how hard it was to get medical care /2
As soon as the first cases of Long Covid were made public - most of us saw the huge risk to society this virus represented. We knew that our systems couldn’t handle the influx of disabled & chronically ill patients that Covid would cause /3
Read 21 tweets
Feb 2
Another day - another person telling me I need to “try harder” to find a care home where I will have ‘round the clock care’ & not be a burden to friends & families. People refuse to accept that for MANY chronically ill & disabled people there are no suitable options. A 🧵 /1
When my condition first deteriorated I tried to find a safe place I could go for respite care. First of all - we are in an airborne pandemic so congregate care settings are a HUGE risk to immune compromised & chronically ill people. They aren’t protected. /2
Even if Covid wasn’t an issue - I still found myself hitting nothing but roadblocks. Rehab centres denied me because there was no expectation I would ever improve. Hospice denied me as I wasn’t dying fast enough. Long term care not an option as too acutely unstable /3
Read 15 tweets
Jan 25
To all the parents working hard to protect their children from Covid in schools - I see you & thank you. As a childless disabled woman I worry about the children who aren’t being protected. 🧵 on my experience being sick in school & how my parents fought to protect me /1
When I was 16 I had a horrible case of mono/EBV - likely caught at school. I was incredibly sick & recovery was painfully slow. A few weeks into my illness my school contacted my parents & threatened to expel me if I didn’t get back to school. /2
Apparently they had an absentee policy and I had exceeded the acceptable number of days. My mom was a teacher and had been ensuring I kept my grades up by doing all assignments from home. I was in fact maintaining an A average. /3
Read 16 tweets
Jan 23
I’m deeply sad seeing many posts from people needing emergency care in hospitals where they’ve dropped masking. This is a safety issue and an accessibility & privilege issue that needs to be addressed. A 🧵 on why we need free N95s for all and masks in healthcare /1
I was disabled before Covid and am high risk & vulnerable. I need a lot of hospital care and am fortunate my local hospitals have kept mask mandates throughout the pandemic. Despite my access - I worry that we’ve got significant accessibility issues where masking is concerned. /2
I consider it a privilege to be able to afford high quality respirators - and if I’m honest I would not be able to afford them if I had to be out of my house 5 days a week. I’m housebound and only need masks for trips to the hospital. /3
Read 15 tweets

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