Ok, those who know me know I'm not a massive doomer with #LongCovid. Ive used denial to manage the stress for a long time, and tried to be positive. 'Cause I've indeed witnessed many "recovery" stories.
But...
I have to be brutally honest here, and this may trigger some. In recent weeks I have been getting more and more alarming signals form 1st wavers in the form of private messages with pics, stories and fears.
It's not good friends. Lots of declines with scary symptoms.
I'm hearing stories of people's friends, thought to have recovered that are declining. Today I heard of a country singer who had victoriously returned to the studio and stage after regaining health. A recent extreme decline came on so fast - they are now in hospice care.
I'm hearing of people developing new onset dementia after years of cognitive progress. I'm hearing of bones becoming brittle and breaking, wounds that don't heal, and now friends with perfect hygiene spontaneously acquiring mouth infections, gum issues, and losing many teeth.
I've spent 4 years with this disease - since the first wave. I also am experiencing unexplainable decline after what was thought to be slow and incomplete recovery.
So as you can imagine, these unnearving stories hit me like a freight train.
Now, I've always been irked by social media exaggeration. A lot gets lost in the "telephone game" of filters, biases and competing interests.
But folks, something BAD is happening to some people with #LongCovid who've had it the longest. I don't know what it is. Nobody does!
This isnt meant to imply that "EVERYONE" is heading down the same path. I know many who recovered years ago and are doing fine! But for the first time, I am scared and I don't scare easily.
Please consider those who are suffering, and most of all the urgency of the matter.
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