SARS-CoV-2 is a monster. Not everyone has my vantage point so let me share a bit. It is destroying people's health. Vision loss, hearing loss, strokes, heart failure, cognitive impairments that, when you hear patients tell their stories, would stand your hair on end. /1
Blood clots. Nails & skin absolutely destroyed. Physical aging that is shocking. Needing to learn to walk again. Heart rates & BP rates through the roof. I could go on. But there is more this monster is doing. It is destroying relationships, separating parents from children, /2
isolating one family member from the entire rest of the family, turning friends against friends. It is also costing people their livelihoods, causing a flood of go-fund-me requests that overwhelm my feed every day. And is growing. There are layers upon layers of misery. /3
And abject fear. And debilitating stress. And crippling grief. If you are someone who is gaslighting, bullying or lying about anyone who is SARS2 conscious or has Long Covid, you are a bottom feeder, disgusting scum, and history is coming for you. /fin
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I have never been as ill, as absolutely exhausted, as frightened than I am now. So many friends in the Long Covid community in dire situations. So many tears shed. What is about to come into public view, so starkly it can't be ignored, is going to shock others. /1
It has started. We told you people would die from this disease. It has been happening. It is happening. It is going to keep happening. Shut your eyes & ears all you want & party on, but what happened to us is coming for you & those you love if something doesn't change now. / 2
I am literally begging you, not for me because it is too late for me, to finally accept that you are never going back to 2019 & that this disease has no meaningful treatment & no cure. Think about that. Really think about it & please do something. Organize, fight back. /3
Got a message today from someone who has a loved one completely shattered by Long Covid. This is becoming personal for more & more people daily as so many of us told you it would nearly four years ago. This good person vowed to continue the fight to stop forward transmission /1
(clean the air, respirators, etc.) The army of those of us who are Long Covid patients or people who love us/care about us is, sadly, growing. If you left one of us behind, well, you'll have to deal with that, it is not our fault that you chose to ignore us. Deal with your /2
conscience. That said, it is not too late, even now, to admit you were wrong, change course, & fight with us to save the children. Demand clean air in schools, healthcare settings, everywhere, & organize like the lives of the children depend on it. /2
If you heard the stories from Long Covid patients that I listen to every day, stories of careers destroyed in the prime of life, dreams dashed, educational paths abandoned, crushing debt, relationships destroyed, abandonment by family & friends, it might give you pause. /1
So, since I listen & sometimes share my story & you maybe do not, let me tell you that the pain, suffering, fear, despair, & loss are overwhelming. The worst part? The impact on Long Covid patients who are being re-infected by family, healthcare workers, colleagues, whoever. /2
I keep telling you that you don't want this for yourself or your kids. But I can't believe that I have to tell you that if you re-infect a Long Covid patient by your negligence or simple lack of caring you are despicable. /3
Free advice. You don't want #LongCovid & you don't want it for your family, friends, community. Literally begging you now. Stop forward transmission. Stop infecting each other. Stop re-infecting each other. The horrors I have heard about & read about in just the past few days /1
(bearing in mind some of us have been warning going on FOUR years) would stop any thinking, caring person in their tracks & make them change course, if needed. I know everyone doesn't have time to read/see all of the carnage. I get that. But there is literally no believable /2
excuse for anyone not taking mitigations to protect themselves and others now. Not after all this time. You know what to do, I know you do. So, if you aren't doing it then the consequences are on you. Can you deal with that? 😥/fin
So, you're secure in your choice to "get back to normal." You are OK with rolling the dice so you can go on vacation & go out to eat. You are fine with attending massive concerts & conferences unmasked. I think you are wildly wrong but that's not the point I want to make. If /1
you are making decisions that result in children being sacrificed to a virus that can maim them for life or kill them, then you are a monster. If you aren't doing everything possible, & I mean EVERYTHING, to protect them then their fate is on you. Children don't have agency. /2
It is the job of adults to protect them. To organize to fight the governments, school boards & healthcare making decisions that are harming kids. To demand protections. To put their future health above your notion that kids need to be kids. Sure they do. /3
When I see people post things like "I won't live my life in fear" I wonder why they say it, what prompts them to make such a declaration during a pandemic. My first instinct is consciousness of guilt, knowing they are doing the wrong thing so cover it up/explain it away by 1/4
trumpeting a framing they hope will be perceived as a measured, reasonable response. Being charitable, I can imagine they take some measures & tell themselves that it is enough while knowing all the while that they aren't enough. However, I can't help but ask three questions: 2/4
1. If they feel compelled to do this, is there an element of minimizing risk to others/mocking those who are more cautious & if so who does that? 2. Why don't they think they should fear a novel virus that could damage or kill themselves, their parents, their kids/grandkids? 3/4