Friend was traveling & wanted to visit - I declined because they don’t take Covid precautions. They get home & tell me “omg I’m so sick - it’s a good thing we didn’t visit as this would kill you.” I asked if they considered the other people like me they exposed on travels. A 🧵/1
I’m severely immune compromised and high risk - so given we’ve abandoned all mitigations at a societal level I’ve been forced to isolate to protect my health. I’ve lost many friends as a result. When someone offers to come see me - it could provide a much needed boost. /2
Anyone in my life knows exactly WHY I’m so high risk - and thankfully most of the people left in my circles take precautions to protect me. If someone won’t take any then I decline a visit. I’m too exhausted to argue - if you don’t want to mitigate I simply won’t see you. /3
Often this decision ends or severely impacts the friendship. People don’t like it when you set boundaries or question their behaviour. This situation was unique because the friend who was traveling ended up getting sick halfway through their trip. /4
As a result they had to face the reality that a) their lack of mitigations caused them to become severely ill and b) had they come to visit me there’s a very good chance they would have given that illness to me. /5
After they began showing symptoms - including fever and a “wicked cough” … they had 4 more days of travel. That’s 4 days checking into hotels, eating in restaurants and using public service stations. 4 days of exposing other people. /6
I pointed out that there are many people working in these places who are vulnerable like me - and that they had put them at risk. Their response? “We had no choice we had to get home.” So I asked if they masked. They said no. /7
We discussed how they were relieved they didn’t see me because they recognize the severity of their illness would be catastrophic for me - but they can’t extend that same courtesy to strangers. They can recognize the risk - but it’s not a concern if they don’t know the person. /8
This is why vulnerable & disabled people are so unsafe. I often hear “just stay home when sick” in response to asking people to mask - but the vast majority of people don’t stay home. MANY workers are unable to stay home because they don’t have adequate sick leave. /9
Even people who know a severely vulnerable person & express relief at having not exposed them to illness - still can’t apply that compassion at a societal level. Which is why we’ve got so much Covid spread. People don’t care to protect others anymore. /10
As a result anyone who is vulnerable is basically excluded from society. This could be fixed with common sense measures like clean air & masking - but instead of doing that we’ve adopted a “you do you” approach that is completely and utterly failing. /11
Now the CDC are looking to shorten the Covid isolation period to 1 day - which will increase spread and tells disabled people that our lives are not worth protecting. People won’t do the right thing unless there are rules demanding they do. It’s sad but true. /12
The reason so many of us are advocating for masks and clean air is because most people are like my friend (or worse). Only capable of thinking of themselves or people in their immediate sphere - and don’t care at all if they infect others. /13
We are in an airborne pandemic. Everyone needs to breathe the air. In public spaces that air is shared. So we must acknowledge there’s a risk and work COLLECTIVELY to lower it. It’s been 4 years of forcing disabled people to stay home. It’s time for something to change. /14
The good news is change is possible. We know filtering & ventilation can massively reduce transmission and respirators are very effective for high risk situations like hospitals. We can lobby for the 5 day isolation period to remain unchanged & free tests to be available. /15
We don’t have to continue to accept constant sickness, death & disability as our “new normal”. Nothing about this is normal. Humans have tremendous capacity to change & adapt in the face of threats and we are only failing to do it because the loudest voices lack the will. /16
If you’re disabled, vulnerable or high risk - or if you’re someone who knows people who are - it’s time to get loud & make our voices heard. Politicians & governments need to know that people WANT more protections. /17
If you’re sick with something that you KNOW would harm the disabled person in your life - you need to stay home. You can’t just avoid the one high risk person you care about & risk all the other similar people in the world. If you absolutely can’t stay home - wear a mask. /18
We absolutely can do better - but it starts with acknowledging there’s a threat and pushing back on people who don’t care just because they believe it doesn’t impact them. I see people advocating & pushing back every day - and I believe together we will turn the tide. /end
Addendum: Let this story serve as a reminder that it’s ok to set & stick to your boundaries. It’s ok to not see people who won’t keep you safe. Had I caved to the pressure my friend put on me I would more than likely be very sick right now.
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Covid policies and mitigation are a social justice issue. Low income & marginalized individuals are at much higher risk. Adele is a multi millionaire who recently began wearing a respirator & had plans to improve air quality at her venue. Now she’s cancelling multiple shows. 🧵/1
First off - I sincerely hope Adele makes a full recovery & I applaud her for the steps she’s taken recently to minimize her risk of Covid. I also recognize we can’t know with 100% certainty she’s dealing with Covid. But there are many signs to indicate she is. /2
Generally speaking we know many people don’t take more precautions until faced with a bad covid infection and/or Long Covid. Her statement says she was previously ill and has not fully recovered. /3
In the early days of AIDS epidemic a grassroots organization called the Gay Men’s Health Crisis (GMHC) was formed. They did incredible work for patient advocacy - including devising a “buddy system”. A 🧵 on how a similar system could assist disabled & Covid conscious patients /1
Early HIV/AIDS patients faced tremendous barriers to care. The disease was poorly understood and originally named GRID (Gay Related Immune Deficiency) and as a result there was rampant discrimination against gay men. /2
In many cases even doctors & hospitals would deny treatment - and men were left to die at home with only their partners to care for them (many of whom were sick themselves). The GMHC was formed and in 1982 instituted a volunteer “Buddy Program”. /3
It’s 2024 - can medical professionals PLEASE stop accusing those of us masking in hospitals of having “anxiety”?There’s an airborne pandemic disabling & killing millions. If I’m sick enough to need the hospital I’m too sick to get Covid. A 🧵 on HCW pushback on masking /1
I had to go to the hospital this past week and specifically chose a facility that has an active mask mandate. I figured with a mandate in place there would be a) more masking and b) less eye rolling at MY mask. I’m very high risk & wanted as much protection as possible. /2
Imagine my shock when I walk in and realize that the “mandate” only applies to clinical areas and waiting rooms. Not the lobby, elevators, stairwells, shopping area or volunteer desk. Covid must be very obliging to just naturally avoid all those areas. /3
This is living with POTS/dysautonomia. 90% of time this is the position I’m in. I live my life horizontal/upside down. When I was well enough to go out I would frequently find myself on the ground. I would lay down in public places to avoid fainting. A 🧵 about POTS challenges /1
POTS isn’t just about tachycardia when standing. Nor is it only about fainting. Dysautonomia can impact nearly every system in your body. It literally means a malfunction of the autonomic nervous system which is the system that controls unconscious processes. /2
That means everything from blood pressure to heart rate, respirations, digestion and temperature regulation stop functioning correctly. /3
On Covid mitigations and everyone’s FOMO. I keep hearing that I need to enjoy life & stop living in fear from people who are unwilling to take even basic mitigations to avoid Covid spread for fear of missing out. I’m living & adapting to my reality. My FOMO? It’s my health. /1 🧵
I miss my health. I miss being able to eat & digest food and sleep through the night and cook my own meals. I miss being able to shower without spending hours in bed afterwards or fainting and needing the hospital. /2
I miss existing in a body that remembers how to regulate its unconscious processes like heart rate, blood pressure and digestion. /3
Make no mistake - the CDC decision to change Covid isolation from 5 days to 1 day is an economic & political one. It’s NOT about health and it will kill & disable people. It’s to push people back to work & drive the narrative that Covid is only a risk to the “vulnerable” /1 🧵
Think about what this messaging tells people. If you’re not keeping up with the science you could easily think “well if it was really THAT bad they would be having us isolate.” The problem is - it IS that bad. But governments have given up. They want people back to “normal.” /2
They don’t want to have to provide paid sick days or have people staying home (and not spending money) for extended periods of time. They KNOW herd immunity isn’t happening & they KNOW reinfections are rampant. Sick is our “new normal.” /3