Covid policies and mitigation are a social justice issue. Low income & marginalized individuals are at much higher risk. Adele is a multi millionaire who recently began wearing a respirator & had plans to improve air quality at her venue. Now she’s cancelling multiple shows. 🧵/1
First off - I sincerely hope Adele makes a full recovery & I applaud her for the steps she’s taken recently to minimize her risk of Covid. I also recognize we can’t know with 100% certainty she’s dealing with Covid. But there are many signs to indicate she is. /2
Generally speaking we know many people don’t take more precautions until faced with a bad covid infection and/or Long Covid. Her statement says she was previously ill and has not fully recovered. /3
We also know most insurance policies for performers prevent the mention of Covid - which is why we see so many cancellations for “mystery virus” or “bad flu”. So it’s entirely possible she’s been dealing with Long Covid from her last infection & that’s why she needs to cancel. /4
Here’s where the social justice comes in. Money can’t make you bulletproof - but the more money & resources you have the better your odds of a good outcome. Adele can easily afford air quality upgrades, respirators and the latest in mouthwashes, nasal sprays & tests. /5
She doesn’t have to worry about the cost of healthcare & can easily provide masks & tests to anyone who’s going to be in close proximity of her. She still got sick. That’s the issue with Covid - all it takes is ONE infection to completely disable you. /6
Not everyone becomes disabled - and some who do end up recovering - but recovery is becoming more & more difficult now that we’ve taken a complete “you do you” approach & removed all mitigations. Reinfections are too common & lead to worsening disability. /7
If someone like Adele - with resources most of us couldn’t dream of - is dealing with Long Covid… imagine how hard it is for people who are homeless, work risky jobs with no paid time off, have young children in school or are immune compromised & can’t access safe healthcare. /8
It would not be this hard if we were taking more precautions at the society level. If governments & public health were being transparent about how serious this virus is and that it’s a risk to EVERYONE… not “only the vulnerable.” /9
Currently people lack the information but they also lack access to the tools to keep themselves safe. Free tests & vaccines have largely been discontinued, respirators aren’t freely available & there’s no push for clean air in public spaces. We are on our own. /10
We need more people speaking out from all walks of life. You don’t have to be vulnerable or disabled to be Covid cautious. Raise your voice. Tell governments that we don’t consent to repeat infections with a deadly & disabling virus. Wear a mask in public & show you care. /11
We understand HOW to reduce risk and we absolutely have the tools. But if everyone waits until they are personally affected we will see countless lives lost and destroyed before we actually DO anything to mitigate Covid. /12
Lastly let’s remember that we all share the air so our success against Covid depends on how well we treat the marginalized & less fortunate. Masks, tests & anti virals should be freely available to all who need them - and hospitals need to be made accessible & safe for all. /end
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Many folks are pushing to go “back to normal” because they’re upset that their lives were upended in early days of Covid pandemic. I get it. My life was upended when I became disabled. But here’s the thing - “normal” isn’t working. It’s a mirage. 🧵 on denial & false ‘normal’ /1
When Covid first hit we saw most governments put measures in place to try & limit spread. Initially there was a feeling of camaraderie and “we’re all in this together”. There was a push to protect HCWs and vulnerable people. The world shifted & adapted to become more inclusive /2
It was actually extraordinarily impressive how fast these changes were implemented. Seemingly overnight we had work from home options, telemedicine, expanded delivery services and community volunteer groups. /3
Friend was traveling & wanted to visit - I declined because they don’t take Covid precautions. They get home & tell me “omg I’m so sick - it’s a good thing we didn’t visit as this would kill you.” I asked if they considered the other people like me they exposed on travels. A 🧵/1
I’m severely immune compromised and high risk - so given we’ve abandoned all mitigations at a societal level I’ve been forced to isolate to protect my health. I’ve lost many friends as a result. When someone offers to come see me - it could provide a much needed boost. /2
Anyone in my life knows exactly WHY I’m so high risk - and thankfully most of the people left in my circles take precautions to protect me. If someone won’t take any then I decline a visit. I’m too exhausted to argue - if you don’t want to mitigate I simply won’t see you. /3
In the early days of AIDS epidemic a grassroots organization called the Gay Men’s Health Crisis (GMHC) was formed. They did incredible work for patient advocacy - including devising a “buddy system”. A 🧵 on how a similar system could assist disabled & Covid conscious patients /1
Early HIV/AIDS patients faced tremendous barriers to care. The disease was poorly understood and originally named GRID (Gay Related Immune Deficiency) and as a result there was rampant discrimination against gay men. /2
In many cases even doctors & hospitals would deny treatment - and men were left to die at home with only their partners to care for them (many of whom were sick themselves). The GMHC was formed and in 1982 instituted a volunteer “Buddy Program”. /3
It’s 2024 - can medical professionals PLEASE stop accusing those of us masking in hospitals of having “anxiety”?There’s an airborne pandemic disabling & killing millions. If I’m sick enough to need the hospital I’m too sick to get Covid. A 🧵 on HCW pushback on masking /1
I had to go to the hospital this past week and specifically chose a facility that has an active mask mandate. I figured with a mandate in place there would be a) more masking and b) less eye rolling at MY mask. I’m very high risk & wanted as much protection as possible. /2
Imagine my shock when I walk in and realize that the “mandate” only applies to clinical areas and waiting rooms. Not the lobby, elevators, stairwells, shopping area or volunteer desk. Covid must be very obliging to just naturally avoid all those areas. /3
This is living with POTS/dysautonomia. 90% of time this is the position I’m in. I live my life horizontal/upside down. When I was well enough to go out I would frequently find myself on the ground. I would lay down in public places to avoid fainting. A 🧵 about POTS challenges /1
POTS isn’t just about tachycardia when standing. Nor is it only about fainting. Dysautonomia can impact nearly every system in your body. It literally means a malfunction of the autonomic nervous system which is the system that controls unconscious processes. /2
That means everything from blood pressure to heart rate, respirations, digestion and temperature regulation stop functioning correctly. /3
On Covid mitigations and everyone’s FOMO. I keep hearing that I need to enjoy life & stop living in fear from people who are unwilling to take even basic mitigations to avoid Covid spread for fear of missing out. I’m living & adapting to my reality. My FOMO? It’s my health. /1 🧵
I miss my health. I miss being able to eat & digest food and sleep through the night and cook my own meals. I miss being able to shower without spending hours in bed afterwards or fainting and needing the hospital. /2
I miss existing in a body that remembers how to regulate its unconscious processes like heart rate, blood pressure and digestion. /3