NEW: NHS England has announced that new youth gender services will provide masculinising and feminising hormones to children from ‘around their 16th birthday.’ This goes further than GIDS ever did: YPs cld only access hormones at 16 if they’d been on puberty blockers for 1 year🧵
Just last week, it seemed that the new services would have no medical pathway, with NHSE ending the routine prescription of puberty blockers. Today’s announcement, which was not put out to consultation, appears to signal a move in the opposite direction.
NHSE says it’s considered whether ‘scientific research has shown the treatment to be of benefit to patients’ & if it represents best use of NHS resources. Three documents have informed the policy, dating from 2013, 2016 & 2018 – two apply to adults only. england.nhs.uk/wp-content/upl…
But there’s no mention at all of NICE’s 2020 systematic evidence review which concluded that for use in '18 years or under' hormones were not cost effective and there was uncertainty over their safety... cass.independent-review.uk/wp-content/upl…
“Any potential benefits of gender-affirming hormones must be weighed against the largely unknown long-term safety profile of these treatments in children and adolescents with gender dysphoria." Seven studies informing the review appear not to have been taken into account by NHSE
Children who are experiencing ‘psychotic episode[s], drug addiction or self-harming’ will be eligible for hormones, as long as the ‘associated difficulties… are not escalating’...
‘Ideally there will be support … from one or both parents (the family)/carers, or social support if the individual is a ‘Looked After Child’, and the Local Authority has been consulted.’ Non-binary individuals will be deemed eligible for hormones.
The decision over when hormones can be given will be up to different clinicians in a multi-disciplinary team – just as at GIDS - over an undefined "period of time". The duration of assessment is ‘determined by the clinical team as relative to the needs of the individual.’
While the policy does not appear to have taken into account the NICE evidence review, NHSE says it will ‘consider the recommendations of the independent Cass Review in so far as those recommendations relate to this policy document.’
One safeguarding measure does appear to be in place: "The CYP Gender Service National MDT, that includes clinicians not directly involved in the formation of the individual’s care plan" has to agree that the child is suitable for treatment.
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NEW: Today's announcement from NHS England on ending the prescription of puberty blockers for children with gender-related distress goes further than before (we've known of their intention to end their use in routine clinical practice for a while) 🧵 news.sky.com/story/children…
NSHE consulted on plans to only allow the prescribing of puberty blockers as part of clinicals research or in 'exceptional cases' last summer. Today they've said there will no exceptional cases, as it wouldn't be workable in practice...
Instead, a child's clinician will have to apply under NHSE's 'Individual Funding Request' process. They would have to demonstrate why they believed the case was exceptional and 'why a treatment that is not routinely commissioned by the NHS is an appropriate treatment option.'
As more information comes to light on WPATH, English health authorities have sought to distance themselves from the organisation. The Dept of Health told the Mail NHS England ‘moved away from WPATH guidelines more than five years ago’.... Some context 🧵
It's true NHSE has said WPATH was irrelevant to its recommendation that puberty blockers no longer be part of routine clinical practice: 'NHS[E] does not commission based upon guidelines or treatment protocols eg WPATH 8.0 or practices in other countries' tinyurl.com/26afb54h
It's also true that the Tavistock's GIDS always took a more cautious approach than WPATH.
But, the 2016 service spec (still underpinning GIDS despite expiring in 2020) says explicitly: 'The service will be delivered in line with' WPATH 7 and other sources tinyurl.com/4kwa68nw
NEW: NHS England yesterday published more details on plans to only allow young people with ‘early onset’ gender dysphoria to be prescribed Puberty Suppressing Hormones (PSH)/ blockers as part of a clinical trial. It’s opened a consultation on the plans to run until 1st Nov.(🧵)
We do learn a few new things from the various documents published as part of the consultation (all found here: )...shorturl.at/CFZ02
1.NHSE has considered further studies published since NICE’s evidence review concluded quality of evidence for use of puberty blockers was of ‘very low’ certainty. The analysis of these additional studies does not alter that conclusion, NHSE says.
NEW: NHS England has confirmed puberty blockers for young people with gender incongruence will only be administered as part of clinical research. It comes as NHSE publishes the service specification that will guide the new gender services that will replace the Tavistock’s GIDS
NHSE says it will propose: “outside of a research setting, puberty suppressing hormones should not be routinely commissioned for children and adolescents who have gender incongruence/dysphoria.” tinyurl.com/35zc29zs
The interim service spec is v similar to the draft published in Oct 2022, with primary intervention for YPs being psychosocial & psychological support. The main objective is 'to alleviate distress associated with gender incongruence and promote the individual’s... wellbeing.’
(🧵As Mermaids is trending, perhaps worth pointing out: It has never been secret that they were allowed to directly refer to Gids. So cld other third sector groups. But Tavistock emails suggest this first seems to have happened in 2014, not 2016 with new service specification.
We’ve known since 2019 of direct emails between Susie Green and gids director Polly Carmichael and other board level members of Tavistock Trust: these were part of Mermaids’ data breach in 2019. Made it surprising when Tavistock said they didn’t have anything. From my book:
Those emails also showed that Mermaids wanted changes to clinical practice at gids. It’s less clear what the result was:
Hi @Waterstones, just wondered if you knew when Time to Think will start arriving in your stores? It’s just you’ve had hundreds & hundreds of copies in your warehouse for weeks, but people can’t currently buy one in Wales, all of Surrey, or most of the UK’s major cities🧵
None showing in your Manchester, Birmingham, Edinburgh, Glasgow, Leeds, Bristol or Oxford stores. In London, unlike all other Sunday Times bestsellers of the past fortnight (+plenty of others), which are in majority of your 30+ London stores, Time to Think is in less than 20%.
It's baffling because having ordered many, many more than your initial order (which is great, thank you), people haven't been able to buy the books in your stores, which is a bit frustrating for an author. And other titles don't seem affected