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sarah swastrosarah.bsky.social Profile picture
@swastrosarah
Jun 2, 2024 • 2 tweets • 1 min read • Read on X
#InquestUpdate my daughter died from medical and local authority neglect of #VerySevereME Oct 2021. 2 weeks full hearings begin 10am Mon 22 July 2024.
2-3 witnesses each day.
She was 27 and wanted to live.
Please contact HM Coroners for details of how to attend remotely.
Note *change of email address* for attending remotely via live link: coroner@devon.gov.uk case ref 8057264

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More from @swastrosarah

sarah swastrosarah.bsky.social Profile picture
Feb 1, 2024
Long 🧵My daughter's voice, 4 Jan 2021 (NICE had published revised draft guidance for ME/CFS Nov 2020) 'I have been tired since I was 13. When I was 18 I was diagnosed with CFS/ME. I hoped diagnosis would help, that I would finally get treatment and recover my health. 1/
'I had every potential to be an asset to humanity, and hoped and intended to advance the cause of human flourishing - I achieved A* and A grade A levels, and had offers from Russell Group universities. I had to reject them all. After finishing school in 2012 I quickly became 2/
'housebound and was unable to access the in-person clinics offered by my local NHS CFS/ME Service, but I had been a good scholar and was determined to be a good patient. I attempted to follow the workbook they gave me, find my high-energy activity baseline and increase it by
3/
Read 13 tweets
sarah swastrosarah.bsky.social Profile picture
Dec 29, 2023
🧵#Inquest update - I've reviewed the disclosures from the Local Authority and written to the Coroner to ask for the following, missing
contemporaneous records;
Safeguarding records from Jan, Feb, Mar and Sep 2021;
witness statements from:
assessing Social Worker (who never
1/4
completed any assessments)
Approved Mental Health Practitioner (AMHP) - whose interventions began in Mar and actively prevented Palliative Care in Sep even though my daugher was never referred to Mental Health Services before his involvement. A psychiatrist assessed her in
2/4
hospital and found no psychiatric treatment available to her, but in Risk Management meetings he describes having seen 23 people with CFS, more unwell than my daughter had been, who made a full recovery. When he saw her she was paralysed in every limb and digit, barely able
3/4
Read 4 tweets
sarah swastrosarah.bsky.social Profile picture
Nov 28, 2023
There will be no justice at Exeter and Devon Coroners Court under Ms Deborah Archer. She is not interested in the facts. She is interested in a fight and the publicity on offer by a Times writer being directly involved in the case.
1/7
Between the Coroner, the barristers and the media, the inquest has been turned into a game. It is no longer about a young woman denied medical treatment because of NHS policy for her diagnosis. It is about who humiliates whom most effectively. There is no need for this.
2/7
I have no interest in their game. There is no good in it. I am interested in preventing the tens of thousands of people at risk now from dying by the same methods; in ending medical ignorance; and in finding hope for all of us that the NHS is worth keeping.
3/7
Read 7 tweets
sarah swastrosarah.bsky.social Profile picture
Aug 12, 2022
Long 🧵Daughter's diary entry, age 12
'The writing beyond this page is strictly private and is only to be viewed with the express permission of Maeve' Of course I never asked or viewed. She died 2021 from #ME aged 27. We never identified a viral trigger. Lo & behold,
1/13
Tue 7 Aug 2007 (Three weeks after a peculiar viral infection that lasted exactly 29 days, and recovering well enough to have orthodontic brace fitted; audition for school show; pack & move house; go to best babysitter's wedding with no complaints) 'God I am TIRED!'
2/13
Sat 11 Aug, Oooohh . . . tired . . . hav a dolls house YAY! Almost completely unpacked
Sun 12, I am still vair tired! Why?! Mum has said she wants me to stay in bed all day and rest :¿ (got a tiredness headache too. Ow ow ow ow)
Fri 17, in bed - still tired :(
And so it
3/13
Read 14 tweets

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