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charlos Profile picture
@loscharlos
Jul 9 • 2 tweets • 1 min read • Read on X
Great #LongCovid PSA on @UCLA campus a friend just sent me:

“Anyone can develop Long COVID after having COVID-19.”

@CDCgov — see, it’s really not that hard. We need this throughout the entire country. This is invaluable public health information that you have abandoned. Long Covid signage at the UCLA student center with bold letters reading “Still feeling unwell after having COVID-19? You may be experiencing Long COVID.” Picture with an illustrated design of a person with their head in their knees. Text at the bottom reads “Anyone can develop Long COVID after having COVID-19. The best way to avoid Long COVID is to avoid contracting COVID-19.”
Huge shout out to @gwendystar_ for making this happen 👇

I’ve seen some of the most effective advocacy happen in this space from just 1-2 people working alone on a specific goal.

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More from @loscharlos

charlos Profile picture
Jun 24
“I have spent my career studying infectious diseases that fall under the heading of neglected tropical diseases. Now I have a neglected disease — #LongCovid — an incurable (for now and for me) disease.” statnews.com/2024/06/18/lon…
“I was infected during Omicron wave.. It crashed through my kid’s kindergarten class and swept our household along with it. My acute infection wasn’t scary.. nothing in comparison to when I had dengue fever.. And then I just never got better.” #LongCovid
“We had none of the ‘underlying conditions’ that may indicate increased risks of poor outcomes from Covid (and which have been used throughout the pandemic to allay fears that dangerous outcomes would only happen to “others”)
Read 9 tweets
charlos Profile picture
Jun 22
"I think that there's an enormous amount of education that needs to happen to inform parents that yes, your kid can get #LongCovid. Yes, it could be the reason why they're struggling in school right now” — @PutrinoLab Screenshot of the article headline from ABC Australia: “Too many children with long Covid are suffering in silence. Their greatest challenge? The myth that the virus is ‘harmless’ for kids”
“I'm grieving for the life he's lost & should be living.. he's missing his teenage years. I try to be positive.. But there are so many unknowns &.. battles — I'm constantly in battles with the school, to get medical letters, & having to advocate for him." abc.net.au/news/2024-06-1…
"I just worry we're going to have a generation of kids who have a post-acute infection syndrome because we failed to protect them," @PutrinoLab says, "because we told this lie over and over again that kids have nothing to worry about with COVID." #LongCovid
Read 19 tweets
charlos Profile picture
Jun 15
“Dr. Phillip Alvelda, a former program manager in @DARPA... believes that if things continue as they are, with new COVID variants emerging and reinfections happening rapidly, the majority of Americans may eventually grapple with some form of #LongCovid.” — @INETeconomics Screenshot of the headline from Institute for New Economic Thinking reading “Debilitating a Generation: Experts warn that long Covid may eventually affect most Americans”
LP: “I suspect that most of the time, people don’t realize that.. #LongCovid is an underlying factor in things like accidents”

PA: “Correct. The surges in these incidents are exactly correlated with each wave of the pandemic”
ineteconomics.org/perspectives/b…
“There are all kinds of weird things going on that could be related to COVID’s cognitive effects. I’ll give you an example. We’ve noticed since the start of the pandemic that accidents are increasing… traffic fatalities in California increased by 22% from 2019–2022.” #LongCovid
Read 34 tweets
charlos Profile picture
Jun 9
“I’ve been in practice 23 years and have never seen anything like this”

“We are completely under-investigating this virus — The effects of repeatedly getting this throughout our lives is going to be much more significant than people are thinking.” — @washingtonpost #LongCovid Screenshot of the Washington Post headline “Unusual cancers emerged after the pandemic. Doctors ask if Covid is to blame.” sub headline “it’s not a new idea that viruses can cause or accelerate cancer. But it will probably be years before answers emerge about Covid and cancer.”
“The uptick in aggressive, late-stage cancers since the dawn of the pandemic is confirmed by some early national data and a number of large cancer institutions.”

The idea that some viruses can cause or accelerate cancer is hardly new.” #LongCovid
washingtonpost.com/health/2024/06…
“Scientists have recognized this possibility since the 1960s, and today, researchers estimate 15-20% of all cancers worldwide originate from infectious agents such as HPV, Epstein-Barr and hepatitis B.” #LongCovid
Read 21 tweets
charlos Profile picture
May 19
“The @CDCgov estimates treatment fails for up to 10% of patients, who develop what is officially known as post-treatment #Lyme disease syndrome (PTLDS), a lingering condition that comes with symptoms like profound fatigue, body aches & cognitive impairment”time.com/6974403/chroni…
“Over the last few years.. there’s been a renaissance in #Lyme research. Buoyed by widespread acceptance of #LongCovid —which similarly results in chronic symptoms after what ‘should’ be a short-lived illness—the medical establishment is looking anew at post-Lyme complications.”
“Thousands, if not millions, of people in the U.S. have lived through versions of that hell. Nearly half a million people in the U.S. are diagnosed with #Lyme disease every year after being bitten by ticks typically carrying the bacteria Borrelia burgdorferi.”
Read 20 tweets
charlos Profile picture
May 15
“I had my fifth positive test for COVID on Jan. 1, and while I wasn’t extremely sick, my recovery felt slow. In the first week of March, there was no more denying the condition I previously doubted was real.” #LongCovid aspendailynews.com/opinion/marolt…
“There also are studies suggesting that more of us, maybe many more, are going to eventually get #LongCovid… about 15% of people with one infection had LC symptoms. The number increased to 25% for those with 2 infections & jumped to 40% for people with 3 or more infections.”
Such evidence “dispels the myth that repeated brushes with the virus are mild and you don’t have to worry about it,” he added, noting that “it is akin to playing Russian roulette.” #LongCovid
Read 12 tweets

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