When “experts” called #LongCovid a “syndrome” or “syndromic” two years ago, I knew patients were in trouble. We already knew it was persistent SARS-CoV-2 causing organ damage.
Since when are chronic infectious diseases referred to as a syndromes- and not the name of the cause?
Since when are chronic infectious diseases referred to as a syndromes- and not the name of the cause?
With zero data or biomarkers to subtype or make separations, PowerPoint slides were presented at conferences separating the “organ damage during acute infection” crowd with the “syndromic long COVID”with a grab bag of symptoms.
It’s a continuum of disease & it always has been.
It’s a continuum of disease & it always has been.
This apparent confusion has had real consequences. I shouldn’t have to meet w/professional orgs in 2024 convincing them “long COVID is real” because look-even “one of us” nearly died from it!
Patients shouldn’t still be gaslit about this “mysterious” condition. But here we are.
Patients shouldn’t still be gaslit about this “mysterious” condition. But here we are.
The tide won’t be turned on this crisis until we discuss what this disease actually is.
A condition likely mediated by persistent virus leading to immune damage & dysregulation, vascular disease, hypercoagability, & brain & organ damage.
This is based on thousands of papers.
A condition likely mediated by persistent virus leading to immune damage & dysregulation, vascular disease, hypercoagability, & brain & organ damage.
This is based on thousands of papers.
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