louis appleby Profile picture
Jul 27 14 tweets 3 min read Read on X
It’s a week since the Govt published my report on suicide in young people with gender dysphoria.

What did the reaction tell us about the necessary dialogue with the public on issues of evidence? 🧵
First, a reminder of the wider #suicideprevention task, beyond the focus of my report & the specific suicide claim it addressed.

Young people distressed over gender may be at risk.

And we are likely to see a rise in their number, reflecting a broader social trend.
The “evidence base” is a key tenet of modern health care.

But what happens when evidence & opinion clash?

Especially on social media, increasingly designed, it seems, to thrive on discord.
Here, I can tell you, is how it goes:

• I disagree with your conclusions

➡️Your review of evidence was rigged

➡️You have an agenda

➡️You’re part of a cover-up.
How do we go from this to a productive discussion of data?

Some researchers give up, it’s not worth it, the ad hominem attacks scattered along the laughable-sinister spectrum.

Understandable perhaps - but it leaves the stage clear for charlatans & misinformation.
Instead, we need to be able to talk honestly about evidence.

Every dataset has flaws. Which is why every academic paper has a section on its limitations. There are uncertainties that statistical tests are designed to address.

We - researchers - are purveyors of uncertainty.
The problem with public discussion of evidence is not uncertainty but certainty - because it is a sign of bias.

We - all of us - need to understand our own bias.

Beware certainty.
And in an age where information comes at us from every angle, we need to spot dubious data.

Online surveys, self-selected samples, small numbers, unreliable sources.

Even - especially - when the findings tell us what we want to hear.
We have to be particularly careful when discussing evidence on suicide.

There are risks in making alarming claims, risks of identification & imitation, to which young people appear most susceptible.

My report quoted below.
Image
Image
Suicide was once too stigmatised to mention but no longer, thanks to the bereaved families who have told their stories.

No-one would want to go back to when the subject was surrounded by secrecy & shame.
But there is now a mirror-image risk, that unsubstantiated suicide claims are too easy to make & essential to any story about mental health. An apparent validation no claim is complete without.

There were, for example, countless bogus suicide claims in the pandemic (below). Image
I examined the Tavistock’s own figures (yes, including some who died on the waiting list). There was no suicide “explosion” as claimed.

And no single cause to these tragic young deaths. Suicide is complex.
I also called for better evidence in future. Young people & their worried families deserve it.

And a positive public dialogue depends on it.
The report is here. Posted for the last time.

gov.uk/government/pub…

• • •

Missing some Tweet in this thread? You can try to force a refresh
 

Keep Current with louis appleby

louis appleby Profile picture

Stay in touch and get notified when new unrolls are available from this author!

Read all threads

This Thread may be Removed Anytime!

PDF

Twitter may remove this content at anytime! Save it as PDF for later use!

Try unrolling a thread yourself!

how to unroll video
  1. Follow @ThreadReaderApp to mention us!

  2. From a Twitter thread mention us with a keyword "unroll"
@threadreaderapp unroll

Practice here first or read more on our help page!

More from @ProfLAppleby

Jul 23
People have raised clarifying q’s about my review of suicides in young gender dysphoria patients.

And there have been a number of - let’s call them misunderstandings.

A short summary then, tracking from aim to data source to conclusions.🧵
First though, a reminder that in my research unit we always start with.

The numbers we are examining are real lives lost.

No suicide figure, high or low, rising or falling, is acceptable.
The aim.

For this we have to refer to campaigners’ claims of a large rise in suicide in GIDS patients at the Tavistock - repeatedly called an “explosion.”

Imprecise maybe but implying something huge & unmistakable.

The cause was said to be denial of puberty-blocking drugs.
Read 9 tweets
Jul 21
My conclusions so far? Start with the fundamental issue.

Young people with gender dysphoria face bullying, family conflict, isolation - risk factors for suicide. The risk is real.

It is also complex. Single causes are unusual.

Depression/anxiety are common. Also treatable.
2/It’s right to point out that young people’s experience of health care may reduce risk. Applies not to one treatment but a whole system.

Non-judgemental attitudes, skilled staff in primary care & CAMHS.

Support while waiting or in a crisis.
3/Suicide prevention takes in the wider context beyond gender services.

It’s about understanding young people’s distress & how the NHS & society as a whole should respond.

About the national rise in suicide in young people over the last 15yrs - now 200 deaths/yr in <20s.
Read 7 tweets
May 19
Guidance to schools on suicide prevention in the RSHE curriculum was published this week.

It’s an illustration of how we go from a campaign by bereaved parents to Govt policy.

But what does suicide prevention in the curriculum mean? Which children? Are there risks?

🧵 & TW
There is no more distressing subject in suicide prevention than the deaths of young people.

It challenges who we are as a society that such tragedies occur.

@ONS records around 100 suicides/year in under 18s. Rates have risen in the last 15 years, though not since 2018. Image
Some of the most impressive #suicideprevention campaigners are bereaved parents.

These include @3dadswalking - whose message has focused on the place of suicide in RSHE.

Their commitment to saving young lives has been incredible.
Read 21 tweets
Apr 7
I’ve been looking in more detail at the 2023 suicide figures from ONS, published this week.

They showed a 6% rise, giving us the highest national rate since 1999.

In fact, the detailed picture - by age, sex & where people live - is not simple.

Short 🧵 & TW
First, an essential reminder that no suicide rate is acceptable. Whether figures are rising or falling, they are too high.

These are preventable deaths not prevented.
And a point about data.

When you break down figs in this way, the smaller numbers are likely to fluctuate naturally. Especially if you are looking at only one year.

But it’s the rise in 2023 alone that has caused concern, so it’s reasonable to ask which groups have contributed.
Read 15 tweets
Dec 19, 2023
Key stat in today’s suicide update from @ONS is about young people.

Suicide rates in young age groups rose steadily from c.2010. They have been a top prevention priority.

New figs confirm a different trend. Rates since 2018 are stable - not falling but the rise has stopped.
Why did suicide rise in young people? Some point to ⬆️ depression, income inequality, social media.

Our study of <20s highlighted cumulative risks (graph shows escalating rates in late teens): abuse, bereavement, bullying, self-harm.

Did these factors explain an increase? Image
The cause remains uncertain but a single explanation is unlikely.

Were coroners becoming more prepared to reach a suicide conclusion, to accept the tragedy of young suicide, especially after the required standard of proof was lowered?

bmj.com/content/366/bm…
Read 7 tweets
Apr 12, 2023
New @ONS data give us, for first time, national suicide rates month by month for Covid years 2020 & 2021, compared to earlier years.

Graph shows no rise in these years overall, or any month, or any period of pandemic, including lockdown.

What can we learn from this? Image
It may tell us something about the protective power of social cohesion, of looking out for each other, of community, with its message of acceptance & concern.

If so, we need to hang on to it. It hasn’t looked in strong supply lately.
It may confirm something we saw after the 2008 recession, the life-saving impact of economic support - for people on benefits or in debt or fearing for their jobs & homes.

Particularly important as we head further into the cost of living crisis.
Read 6 tweets

Did Thread Reader help you today?

Support us! We are indie developers!


This site is made by just two indie developers on a laptop doing marketing, support and development! Read more about the story.

Become a Premium Member ($3/month or $30/year) and get exclusive features!

Become Premium

Don't want to be a Premium member but still want to support us?

Make a small donation by buying us coffee ($5) or help with server cost ($10)

Donate via Paypal

Or Donate anonymously using crypto!

Ethereum

0xfe58350B80634f60Fa6Dc149a72b4DFbc17D341E copy

Bitcoin

3ATGMxNzCUFzxpMCHL5sWSt4DVtS8UqXpi copy

Thank you for your support!

Follow Us!

:(