Dr. Lyne Filiatrault Profile picture
Sep 10 8 tweets 3 min read Read on X
Today I listened to the presentation of this RECOVER Study published in JAMA:
Recording will be available in ~2 weeks:

A few slides stood out for me. jamanetwork.com/journals/jama/…
recovercovid.org/r3-seminar-ser…
Slide from recoverCOVID.org Characterizing Long COVID in Children and Adolescents: First Main Analysis of the RECOVER-Pediatrics Observational Cohort Study.
First off, we can debate the prevalence but one thing is clear even at the lower end, LC in children & adolescents is not a rare disease. Prevalence of Long COVID in children • Early reports suggest that 4 to 58% of infected children have persistent symptoms • More recent meta-analyses • High variability in terms of prevalence (2 to 70%) Pellegrino R. Eur J Pediatr. 2022 • Prevalence of Long COVID was 25.2% Lopez-Leon S et al. Sci Rep. 2022 • Prevalence of pediatric Long COVID at 90 days post infection to be 2% to 5%. Funk et al, JAMA Open Network, 2022 Even at the low end 2 to 10%: 1.4 million children in the United States • If 10% of 65 million with positive antibodies: >6 million A disease considered rare when it affects <...
As usual in medicine, kids are not small adults. Slide from recoverCOVID.org  Most of what we know about Long COVID is from adults When it comes to Long COVID in children, there are more questions than answers. • Early misconception: children and adolescents don't get COVID-19 Current misconception: children and adolescents don't get Long COVID - or if they do, their symptoms are the same as adults >>>Under-recognition Image is that of a baby followed by a child, a young adolescent with a backpack to an adult women.
Note the brain is affected. And no, it's not from the "lockdowns" or the stress of the pandemic. They had a control group for both the School-Age Children and the Adolescents. Slide from recoverCOVID.org Image shows the  most common symptoms of LC in children (6-11) vs  adolescents (12 to 17).  The image shows a child and an adolescents with in the middle the common symptoms to both. More common in children were symptoms of LC affecting feelings and behaviour, heart and lung and the skin, hair and nails. While for adolescents, more common symptoms were different feelings and behaviour and symptoms affecting ears, eyes, nose and throat.
Behind every number is a story of a child or adolescent and their family. Slide from recoverCOVID.org The Impact of Long COVID on Families "My daughter had COVID in December 2022, and months later she is really struggling. She has been out of school for 6 weeks with debilitating fatigue, pain, and brain fog, none of which show any sign of letting up... All in all, COVID has been a devastatingly difficult journey for my family, and it's not one I wish on anyone."
The patient and family advocate and RECOVER Representative, Megan Carmilani, Founder and President of @LongCovidFam was fabulous.
She clearly made the case for accommodations in schools and greater flexibility for teaching children with Long COVID, and other disabilities.
I always struggle with research that uncovers harms and yet, the next step is not taken.
A bit like logic: "If this then what?"
"This" is already looking bad, should we not take the next step beyond "Raising Awareness". recoverCOVID.org Next Steps in understanding Long COVID in children • Characterize Long COVID in young children (birth to 5 years) •Determine the underlying mechanism and pathophysiology behind symptoms and across ages • Identify targets for therapeutics/clinical trials in children Raise awareness that Long COVID in children is a public health crisis • Long COVID in children will have substantial impacts for decades to come

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More from @DrFiliatrault

Mar 7
By refusing to accept that SARS-CoV-2 spreads through aerosols, all 🇨🇦public health officials put children & educators [and their families & communities] at risk of repeated COVID infections, and now measles in schools.
What's next, TB?
By doubling down on droplet spread of SARS2, 🇨🇦public health officials have prevented improvements to schools' indoor air quality, that would have also helped against measles.
Instead in 2024, in 🇨🇦, the public is told by public health to wash their hands. It's a disgrace! BC CDC poster on Hand Hygiene to protect against Coronavirus COVID-19. Photographed recently in washroom at dental office in BC.
People need to listen to the "real experts", people like Prof. Linsey Marr, an environmental engineer examining indoor & outdoor air quality & airborne pathogens that affect human health. Working at the intersection of atmospheric science, public health, & infectious disease. IBEC presentation slide: New Recommendations for Ventilation in Buildings Image of Linsey C. Marr University Distinguished Professor  Charles P. Lunsford Professor Civil and Environmental Engineering Virginia Tech February 2024
Read 13 tweets
Dec 12, 2023
Alerte: Mésinformation!
@LP_LaPresseici.radio-canada.ca/info/videos/1-…
Dr. KW : « la pandémie est définitivement finie »
Vrai ou Faux?
Faux! Voir le graphique ci-dessous.
Source: inspq.qc.ca/covid-19/donne…
Image
Dr. KW : « Covid, c’est devenu un virus respiratoire comme les autres »
Vrai ou Faux?
Faux: Ce n’est pas un virus respiratoire, c’est un virus vasculaire.
Source: heartandstroke.ca/articles/a-qui…
Image
Read 13 tweets
Jul 6, 2023
Attended this talk yesterday.
@BlairWilliams26 presentation particularly resonated
with me. From 19:15 to 28:56
It offers a path to possibly get out of this unsustainable pandemic situation.
Source @BlairWilliams26
Shows the disconnect of what acceptable number of Covid-deaths were for Australian & what played out.
Reminded me of last fall's survey stating British Columbians most willing in Canada to return to masking, and yet BC PHO & #bcpoli let tripledemic rip.
Source: @BlairWilliams26
For Australia, and yet fits for BC and many other countries.
Read 10 tweets
May 26, 2023
First off thank you to @MoriartyLab who is the only person providing early indicators for people in Canada to be able assess their risk of Covid infection in their province/territory. Canadian Covid-19 Forecast:...
“PHO Bonnie Henry said in statement that her team continues to closely monitor # of lab-confirmed COVID-19 cases, severe illness & hospitalizations bcse of COVID-19 outbreaks, as well as complete whole genome sequencing on all + COVID-19 PCR tests & viruses [in] wastewater”
Read 29 tweets
May 25, 2023
There is no doubt that physicians who sign an open letter or speak out can face retaliation. Retaliation takes many forms: your OR time gets cut, you're called into dept head's office, hospital privileges are threatened... | Globalnews.ca globalnews.ca/news/9720440/s…
What normally happens is a courageous senior physician will step up and be the face for the group, as they are at the end of their career and can walk away. Like happened here. Thank you Dr. Urbain Ip.
Lived through something like this years ago. Very stressful. Found out after the fact, the other tool leadership uses, is tarnish physicians' reputation. First page of an article fr...
Read 4 tweets
Jan 29, 2023
"Every Canadian needs access to a family doctor. Governments need to step up and commit to doing what’s right for the system, instead of focusing on Band-Aid solutions."
"We need a true understanding that the best patient care is care in the community, and that in part, hospitalization for preventable illness is a failure."
I'd had we need a culture change from within and from outside healthcare.
Read 8 tweets

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