Thread by @loscharlos

“Without more public or private investment, it’s unclear how research can proceed. The small corner of the private sector that has endeavored to take on #LongCovid is slowly becoming a graveyard.”

“At least 4 companies that were developing LC treatments have shut down because of.. lack of finances. Others are evaluating a shift away from #LongCovid.”

“Levy says the company tried to communicate with NIH RECOVER multiple times but never heard back” cen.acs.org/pharmaceutical…

“What I know is that nobody wants to hear about COVID. When you say the name COVID, it’s bad . . ., but #LongCovid is not going anywhere, because COVID-19 is endemic. It will stay. At some point, everyone will realize that we have to do more for it.”

“There is that narrative that #LongCovid is over,” says @ahandvanish, cofounder of l @patientled and a coauthor of the review, who has had long COVID since 2020. “I think that’s fairly obviously not true.”

@ahandvanish @patientled “The few biotech companies that have taken matters into their own hands, like Aim, are often reduced to small study sizes with limited time frames because they can’t get outside funding.” #LongCovid

@ahandvanish @patientled “Now what we’ve got is a bunch of half bridges with nowhere to fund the continuation of that work,” says Nathaniel Moorman, cofounder and scientific adviser of the Rapidly Emerging Antiviral Drug Development Initiative #LongCovid

@ahandvanish @patientled “This was a squandered opportunity, not just for pandemic preparedness but to tackle these unmet needs that are being neglected by biotech and pharma,” Chanda says. #LongCovid

@ahandvanish @patientled “This reminds me of HIV days and HCV days,” Kwong says. “This idea that pharma doesn’t want to work on this because we don’t know things about SARS-CoV-2 and #LongCovid is bullshit.”

@ahandvanish @patientled “#LongCovid is really interesting because there’s so many different symptoms…All the autopsy studies show it’s in your brain.. gut… lungs. It’s in your heart. To me, all the different symptoms are indicative of where the virus has gone when it infected you.”