“Without more public or private investment, it’s unclear how research can proceed. The small corner of the private sector that has endeavored to take on #LongCovid is slowly becoming a graveyard.”
“At least 4 companies that were developing LC treatments have shut down because of.. lack of finances. Others are evaluating a shift away from #LongCovid.”
“Levy says the company tried to communicate with NIH RECOVER multiple times but never heard back” cen.acs.org/pharmaceutical…
“What I know is that nobody wants to hear about COVID. When you say the name COVID, it’s bad . . ., but #LongCovid is not going anywhere, because COVID-19 is endemic. It will stay. At some point, everyone will realize that we have to do more for it.”
“There is that narrative that #LongCovid is over,” says @ahandvanish, cofounder of l @patientled and a coauthor of the review, who has had long COVID since 2020. “I think that’s fairly obviously not true.”
@ahandvanish @patientled “The few biotech companies that have taken matters into their own hands, like Aim, are often reduced to small study sizes with limited time frames because they can’t get outside funding.” #LongCovid
@ahandvanish @patientled “Now what we’ve got is a bunch of half bridges with nowhere to fund the continuation of that work,” says Nathaniel Moorman, cofounder and scientific adviser of the Rapidly Emerging Antiviral Drug Development Initiative #LongCovid
@ahandvanish @patientled “This was a squandered opportunity, not just for pandemic preparedness but to tackle these unmet needs that are being neglected by biotech and pharma,” Chanda says. #LongCovid
@ahandvanish @patientled “This reminds me of HIV days and HCV days,” Kwong says. “This idea that pharma doesn’t want to work on this because we don’t know things about SARS-CoV-2 and #LongCovid is bullshit.”
@ahandvanish @patientled “#LongCovid is really interesting because there’s so many different symptoms…All the autopsy studies show it’s in your brain.. gut… lungs. It’s in your heart. To me, all the different symptoms are indicative of where the virus has gone when it infected you.”
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“These abnormalities were through advanced imaging techniques like dual-energy CT scans & ventilation-perfusion scans. These tests revealed a non-segmental & ‘patchy’ perfusion abnormality in the upper lungs, suggesting that the problem was vascular, Price explained.” #LongCovid
“Most patients (n = 26) were treated with apixaban, potentially contributing to the observed improvement in gas transfer parameters, Price said.” #LongCovid medscape.com/viewarticle/pa…
“Our clinics in the UK and around the world are full of people with #LongCovid, persisting breathlessness, and fatigue. But it has been hard for people to put the finger on why patients experience these symptoms still,"
“Our ‘new normal’ should not include at least 11% of the population falling chronically ill with #LongCovid after each infection.”
“The narrative that we are back to normal.. is not based in reality." — @MVGutierrezMD & @dysclinic journals.lww.com/ajpmr/citation…
“It is wishful thinking at best and willful ignorance at worst.”
“Our ‘new normal’ should not include trillions of dollars in economic loss due to #LongCovid”
“Our ‘new normal’ should not include children having COVID-19 every year and risking long-term neurological and cognitive dysfunction as a result of repeated infections” #LongCovid
“New research from the University of Kentucky shows compelling evidence that the cognitive impairments observed in #LongCovid patients share striking similarities with those seen in Alzheimer's disease and related dementias.”
"EEG patterns in.. patients resemble those seen in early neurodegenerative diseases”
"These similarities may be due to shared issues such as brain inflammation, astrocyte activity, low oxygen levels and blood vessel damage" #LongCovid medicalxpress.com/news/2024-09-a…
“The idea that COVID-19 could lead to Alzheimer's-like brain changes is a significant development.”
"People don't usually connect COVID-19 with Alzheimer's disease," Jiang said. "But our review of emerging evidence suggests otherwise." #LongCovid
“This is a public health crisis for children,” Dr. Rachel Gross, at NYU Langone
“Gross said the U.S. will see the long-term impacts of experiencing #LongCovid in childhood for decades to come.”
“Dr. Dean Blumberg, chief of pediatric infectious diseases and associate professor in the Department of Pediatrics at the University of California, Davis, told Salon he agreed #LongCovid is a ‘public health crisis’ for children.” salon.com/2024/08/26/lon…
“This is one of the first large-scale national studies to do research related to #LongCovid across the entire lifespan, with a particular focus on children and understanding the differences in long COVID in different aged children,” — @RachelGrossMD
“Never before have so many Americans redrawn their relationships with work as result of 1 public-health crisis”
“People at height of careers in finance, technology & healthcare are operating without clarity on when, or if, they can resume the paths they once laid out” #LongCovid
“#LongCovid has pushed around 1 million Americans out of the labor force, economists estimate. More than 5% of adults in US have long Covid, and it is most prevalent among Americans in their prime working years.” wsj.com/health/wellnes…
“About 3.6 million people reported significantly modifying their activities because of #LongCovid in a recent survey by the @CDCgov.”
“Despite the dire impact of #LongCovid on individuals and society, I fear that many are still unaware of the danger,” says @VirusesImmunity, professor of immunology at @Yale “There is an urgent need to provide.. treatment for people living with long COVID.”
“More COVID infections mean more cases of #LongCovid. And LC is already exacting enormous toll on both the people & economies of the world.
Those are words you aren’t hearing from many government bodies. But, researchers say, the evidence tells the story” fortune.com/well/article/l…
“In a @NatureMedicine review this week, @zalaly and several other top researchers lay out a difficult truth: #LongCovid has already affected an estimated 400 M people worldwide.. at an economic cost of about $1 trillion annually—equivalent to 1% of the global economy.”