J. Offir, Ph.D. Profile picture
Oct 12 19 tweets 5 min read Read on X
🧵❗️I am seeing some anger about this, so I'd like to explain some very
important things folks *really* need to know.

Yes, this clip talks about H. working to get LC recognized as a disability under the ADA & working to prevent medical debt from affecting your credit score...
2/ (which can then affect your ability to sign a lease, & to get hired if you can work).

1st, just btw, the latter issue is a *way* bigger one for disabled folks who want to return to work or get housed out of shelters than most folks know. As a conservator, I saw it plenty; so
3/ *don't* dismiss it.

2nd (& critically important!), note: the disabled speaker is from Florida. FL is one of 10 Republican-led states (AL, FL, GA, KS, MS, SC, TN, TX, WI & WY) that refused to expand Medicaid when the ACA passed or to take the offered federal funds to do so...
4/ even though that refusal made it hard for their small hospitals to stay open (which hurt all their people). In a blue state, she'd have Medicaid while she waited for SSDI approval (at which point, she'd also get "MSP," a *federal* program that covers the 20% Medicare doesn't).
5/ So, what about Medicaid before SSDI/SSI approval? Well, unlike T (who would do the opposite) B/H have not only diligently pushed the holdout R states toward Medicaid expansion by offering even more financial incentives (for ex., in the 2021 ARP Act), but they've proposed a...
6/ Medicaid-like fed. program for the states refusing ACA expansion of Medicaid, to get the job done from the federal level; it's a "mirror" program to Medicaid that folks would get through the ACA. The dems have been trying to get this legislation passed since 2021 (w/ the 2021
7/ Medicaid Saves Lives Act) to the current 2024 Bridge to Medicaid Act (S.4684). But H. can't sign it into law w/o leg. passage (that's our 3-branch sys of government) & the Rs have been fighting it for this entire past admin.

See, for ex. this from 2022
commonwealthfund.org/blog/2022/expa…
8/ So, as to why this particular woman doesn't have Medicaid: blame FL Gov. DeSantis, not Harris, who wants it done & has been pushing hard for it. And please read the below, if you haven't:

Now, about Social Security Disability:

My 1st interaction w/

commonwealthfund.org/publications/e…
9/ the Social Security Administration was in 1986, & I've been interacting w/ them for most of the almost 40 years since (as a disabled person & as a Conservator of Person for a disabled person), & I know far more than the average person does about this.

Yes, SSDI/SSI approval
10/ *always* takes an enormous amount of time; it very often took years even in the 1980s. And yes, it's worse now - party b/c SSA offices shut down for two yrs (2020-2022); their workforce shrunk dramatically; & their budget dropped by 19% since 2010. (If the Rs had their way, AARP page: "The delays are part of a larger crisis in customer service in the wake of the pandemic, which shut down Social Security offices to most in-person business for more than two years and saw the agency’s workforce shrink to its lowest level in a quarter-century, leaving those most in need in a prolonged state of uncertainty.  SSA officials largely pin the breakdown on chronic underfunding. The agency’s administrative budget has shrunk by 19 percent since 2010, accounting for inflation, while the number of beneficiaries it serves has increased by 25 percent, according to an Apri...
"Unlike Social Security benefit payments, which are codified in law, spending on SSA operations is subject to the annual federal budget process. In March, after a months-long budget fight, Congress approved  $14.2 billion for the agency for the 2024 federal fiscal year, which runs through Sept. 30. That’s $100 million more than the agency was authorized to spend on operations in fiscal year 2023 but nearly $1.3 billion less than it requested.  Tight budgets and staff attrition have had “disastrous effects on customer service,” the American Federation of Government Employees (AFGE), a u...
"State disability offices struggling When someone applies for SSDI or SSI, the decision on whether they qualify on medical grounds is made by state-level agencies called Disability Determination Services (DDS). Federally funded but state-run, DDSs make the initial call on a disability claim and handle reconsideration if it is sought. And they, too, are hemorrhaging staff, with the rate of employee departures reaching 25 percent in 2022, according to the SSA."
11/ that would be *far* worse, btw), while our population got older & sicker. But the fact that H. has worked to get Long Covid recognized under the ADA is actually *huge,* b/c of the way the SSA processes claims.

SSA maintains a "blue book" of disabilities, & qualifying for
12/ disability benefits is infinitely easier if the applicant "meets the listing" for one of the conditions included on that list. You can qualify for benefits w/o having a listed condition, but that's a much longer & + complicated process. So the fact that LC is now recognized
13/ as a disability under the Americans w/ Disability Act is a *very* important step in the process of getting the SSA to list it, along w/its functional limitations that make one eligible for benefits.

I strongly suspect that the people I see screaming on SM about the town hall
14/ clip either have no idea how this all works, or they just aren't willing to acknowledge that you don't get to a success (prize) w/o laying the groundwork that creates the *path to get us there.* I've been an advocate for healthcare reform for literally decades, & I promise
15/ you, H. is doing that work; if T. makes it into office, he will undue all of it, & far worse.

Finally a couple of notes: the SSDI/SSI process, like other social safety net programs, is confusing. The woman in the clip may be eligible for expedited payments due to presumptive
16/ disability or to a 1x emerg. payment while she waits. It's unknown whether she applied for or received these funds. Due to her age, she's likely also eligible for SSA retirement benefits, if she had a work history; it's not known what happened there. I've seen people question
17/ why a disabled Florida woman was at a town hall > 2,500 miles away; I don't know, but she'd be eligible for Medicaid there, so hopefully she'll stay, b/c this is a "deep R" state problem.

& w/ regard to Medicaid, note that the current later-pandemic "unwinding" damage (when
18/ 9 R states dumped + folks off the Medicaid rolls than all other states combined), note that the B/H admin had HHS Sec. Becerra send letters to those governors "urging them to [accept the available] federal strategies and flexibilities to help prevent children & their families
19/ from losing coverage due to red tape." (Yet you can lead Rs to water, but you can't make them drink.)

In fact, more ppl got healthcare coverage under the ACA under B than at any time before.

For the love of G* & to expand healthcare access, vote H.

hhs.gov/about/news/202…

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More from @dontwantadothis

Oct 3
🧵 @DrJudyStone asked me today why I think bills to extend telehealth past Dec./make access permanent haven't progressed.

Some reasons are innocuous: ppl don't know it's expiring, so aren't pushing for it; Congress is focused on the election. But a far more malevolent

1/10
2/ reason is that insurance companies don't like telehealth.

Many folks in the US have huge issues accessing healthcare, despite having insurance. They may lack transportation; there may be no local providers available; & esp. in rural areas, there may be huge waits for nearby
3/ providers b/c pts can't access those farther away. Older, low income & disabled consumers often are most challenged, despite also often needing care more than others.

So expansion of telehealth in 2020 made it *much* easier for folks to access care - inc. mental health care.
Read 10 tweets
Aug 30
Mini🧵: The CDC site is unintuitive & v. hard to navigate.

Under resp. illnesses, there are 7 tabs you can click. These are:

About respiratory illnesses
Risk Factors
Prevention
Treatment
Data & Trends
Resources to prep for flu, covid, RSV
Respiratory Virus Guidance

1/6 Tweet that says "There is ZERO mention of respirators on the RESPIRATORY VIRUSES PREVENTION page" and links to the Hygiene & Respiratory Viruses Prevention" CDC page.
2/ (Here are the tabs, in the photo below.)

There is info. on masking, but it's not where a lot of people would expect.

If you click on the "prevention" tab, it takes you to a page labeled "preventing respiratory viruses" w/ clickable links. The OP person expected to see masks Image
3/ under the "hygiene" link (presumably b/c the CDC talks about covering sneezes & coughs there) but you actually have to click the "precautions" link under the prevention tab (not the "hygiene" link), which then takes you to a page where you can click a link for "masks." See ⬇️ Image
Read 6 tweets
Aug 29
🧵Unfortunately, the article doesn't seem so clear about solutions.

Excerpts:

"In March 2021, a quarter of adult respondents to a Gallup poll said they felt lonely for 'a lot' of the day," & for young people, loneliness was experienced "on a regular...
nytimes.com/2024/08/27/mag…
2/ basis" by close to 40%. "The Gallup numbers have since dropped somewhat, but not everyone has reaped the same benefits: The American Psychiatric Association says that 25 percent of U.S. residents are lonelier today than they were before the pandemic."
3/ The article says, "Studies have shown that we emerged from quarantine with less ability to make eye contact or conduct ordinary conversation with acquaintances." The author suggests reductions in the marriage rate & more WFH are also factors in increased levels of loneliness.
Read 9 tweets
Aug 27
🧵Another thread about covid, politics, & misinformation:

Last night, I started seeing posts here that suggested Biden had been preventing covid information (like, about severity, spread, mitigation, etc.) from getting onto the book-of-faces place. Today, I'm getting DMs about
2/ big accounts sharing this narrative.

"Russian bot" type accounts love this kind of thing. And unfortunately, it seems an awful lot of people here have forgotten what the original facts were, when first reported. So here's a refresher (and a reminder to evaluate news sources &
3/ read them carefully; some entity owns each of them, & those entities have agendas, too.)

First, Mark Zuckerberg's letter to Sen. Jim Jordan (himself an anti-mitigation R) was *not* about the Biden administration trying to suppress info about covid's spread or severity, etc.
Read 18 tweets
Aug 27
🧵I try not to be overly political on soc. media, but PH & healthcare access are inherently political.

This race reps. "the sharpest clash in antipoverty policy in at least a generation, and its outcome could shape the economic security of millions of... nytimes.com/2024/08/26/us/…
2/ ...low income Americans."

"No anti-poverty measure costs more, affects more people or divides the parties as much as health care."

“The parties are further apart than they have ever been, at least in my memory, and I’m pretty old,” said [a sr fellow at the Brookings Inst.]
3/ ...who has been tracking antipoverty policy since the Kennedy administration. 'The Democrats have gone left and the Republicans have gone right.'"

"Ms. Harris and other Democrats found reinforcement of their faith in the government’s power to ameliorate hardship. If elected,
Read 11 tweets
Aug 13
Ruh-roh.

"Return-to-office policies are getting stricter, upending the lives of those who had gotten used to working from home."

In Philadelphia, the mayor has ordered "all municipal employees back to the office five days a week."

1/4

npr.org/2024/08/09/nx-…
But "officials acknowledged the return-to-office decision wasn't driven by concerns about productivity. Rather, it was in pursuit of what they called a leadership philosophy."

Um, really? I'll bet it wasn't that either. Much more likely, forced returns are motivated by...
vacant buildings, empty lunch restaurants, and underutilized commuter transport.

"A survey last year by the professional services firm KPMG found two-thirds of CEOs predicting a full return to office by 2026."
Read 4 tweets

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