charlos Profile picture
Oct 13 14 tweets 3 min read Read on X
“In the most expansive study of its kind, researchers have for the first time shown serious and prevalent symptoms of #LongCovid in kids and teens.

The study, which followed 5367 children, found that 20% of kids (ages 6-11) and 14% of teens met researchers' threshold for LC” Screenshot of an article headline from Medscape medical news reading: “long Covid rates in kids revised upwards: what to know”  Author: Sarah Novak. Date: October 2, 2024
“By enrolling children who had been infected with acute COVID-19, as well as those who had not, researchers were able to isolate #LongCovid symptoms in kids and teens”
medscape.com/viewarticle/lo…
"It allowed us to separate symptoms related to #LongCovid with those that may have resulted from changes in a child's environment during the pandemic.

For example, learning loss & mental health changes that were caused by pandemic vs those.. symptoms associated with LC”
“Until now, research has been lacking because children were thought to be less susceptible to both acute COVID-19 and #LongCovid, experts say. But by some estimates, up to 5.8 millionkids and teens have the disorder.”
“Study author Rachel Gross, MD, an associate professor in the departments of pediatrics and population health at NYU Langone, is in line with the percentage of adults diagnosed with #LongCovid.”
“The new research found #LongCovid affected nearly every organ system in kids and teens. And experts contend that pediatricians need to be on the lookout for GI complaints in kids as well as complaints of extreme fatigue and cognitive deficits.. in teenagers.”
“Symptoms were also different for kids and teens in different age groups. While younger children had a distinct cluster of symptoms that included attention problems, GI issues, and sleep issues, teens were more likely to experience.. brain fog and extreme fatigue.” #LongCovidKids
“Small children are less likely to be able to describe cognitive and mental health issues compared with teens

For the study, parents helped younger children fill out the survey, but they were able to notice things like attention deficits or a lack of focus in their children”
“Kids also face higher risks for reinfection because.. school & are constantly exposed to the virus. This, according to experts, means that their symptoms may worsen.. An August 2023 study highlighted the increased risk for #LongCovid after.. reinfection, even [if] vaccinated.”
“Postexertional malaise, a worsening of fatigue that occurs after even minimal exertion, often precludes kids from being able to participate in sports or after-school activities…said Lael M. Yonker, MD, an associate professor of pediatrics at Harvard Medical School.” #LongCovid
"Not only are kids not able to play the sports they once did, a lot of them have had to take weeks, months, or even whole years off from school. Other kids have had to switch to homeschooling," said Yonker. #LongCovidKids
“A stufy recently published in the journal eClinicalMedicine showed that the symptoms of #LongCovid in children significantly interfered with their lives, specifically their education and social interactions, which may lead to long-term developmental challenges down the line.”
“Acknowledging that kids & teens are suffering is one thing, but we're still not doing nearly enough to help them, and the repercussions could be staggering

We're past the point of doing observational research; now it's time to study effective treatments” #LongCovid
@MVGutierrezMD @dysclinic @NohaAboelataMD @tmprowell @luckytran @NIHDirector @drclairetaylor @EricTopol @Bob_Wachter @anylaurie16 @baddestmamajama @VirusesImmunity @chrislhayes @LizHighleyman @JeromeAdamsMD @McJuggerNuggets @polybioRF @resiapretorius @choo_ek @drjudymelinek

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More from @loscharlos

Oct 12
“The Center for Health Security at Johns Hopkins University have developed a Model Clean Indoor Air Act, which state legislatures throughout the country could use in writing new indoor air laws.” Screenshot of an article headline from Scientific American reading, “Kids are heading back to school. Are they breathing clean air?”
"We—and especially our children—should be able to walk into a store or a gym or a school and assume the air is clean to breathe. Like water from the faucet, regulations should ensure our air is safe." scientificamerican.com/article/kids-a…
"Kids are headed back to classrooms—Somehow, four years into a viral pandemic that everyone now knows spreads through the air, most schools have done little to nothing to make sure their students will breathe safely."
Read 15 tweets
Oct 6
“Schools must make it safe for all children that attend, whether they currently suffer from #LongCovid or not,” Robertson said. “Many children are.. just one more infection away from developing the debilitating effects of long COVID.” Screenshot of an article headline from Salon reading “For kids with long Covid ‘back to school’ often means not returning at all.   Far from rare, long Covid in kids is devastating families. Expert say schools can do more to help their students.”  Date: October 6, 2024
“We feel we will never heal from this as long as schools have no ventilation, open windows, air purifiers, and policies that children and staff can come to school while actively positive with COVID," #LongCovidKids salon.com/2024/10/06/for…
“A study published in February 2024 estimated that up to 5.8 million children have #LongCovid. Recently.. health experts declared this a public health crisis among the pediatric population.”
Read 8 tweets
Sep 29
“There are political reasons to deny that there are any long-term effects of COVID,” @kfrhoads said, “to allow for us to ‘get back to normal.’”

“Dr. Linda Geng said #LongCovid has become a ‘huge public health problem,’ affecting millions of people in the United States long term” Screenshot of an article headline from KQED that reads “Bay Area’s #LongCovid community celebrates Moonshot Bill for $10 billion in funding”  Date: September 27, 2024
“It really shows that this bill has broad support — as it should — because it’s aiming to address the crisis of #LongCovid in a way that puts the resources that are necessary behind it,” @LisaAMcCorkell said kqed.org/news/12006894/…
@LisaAMcCorkell “#LongCovid patients & advocates in the Bay Area have spent years pushing for a concerted effort toward research, prevention and a cure.”

They’re now hopeful that the increasingly widespread chronic condition that follows many COVID-19 infections will soon be better understood,”
Read 9 tweets
Sep 26
“A new study reveals that people who had two COVID-19 infections were more than twice as likely—and those who had three or more COVID-19 infections were almost four times more likely—to report #LongCovid as those with one infection.” Screenshot of an article headline from CIDRAP that reads “COVID-19 reinfection ups risk of long Covid, new data shows”   Date: September 26, 2024
"The study involved 3,382 global survey respondents and was conducted by researchers with @patientled on #LongCovid. It was published this week on Research Square, which is the preprint service of the Nature Portfolio." cidrap.umn.edu/covid-19/covid…
"They also noted that the odds of both severe fatigue and post-exertional malaise, both of which can be quite debilitating, increased with reinfections.

Fatigue severity also increased with re-infections. As did the odds of functional limitations, such as bathing and dressing"
Read 5 tweets
Sep 21
“In U.S, about a million more working-age adults reported having serious difficulty remembering, concentrating.. compared to before the pandemic, according to a New York Times analysis”

“Studies have even found that people’s brains can shrink after having COVID-19” #LongCovid Screenshot of an article headline from TIME magazine reading “Did the Pandemic Break Our Brains?”  Date: September 16, 2024
“Vibell is currently trying to measure #LongCovid inflammation and neuronal damage.. When he began publicizing the study, he says, ‘I got so many emails from lots of people saying the same thing’: that they’d never fully bounced back after the pandemic.” time.com/7021575/covid-…
“It’s clear by now that SARS-CoV-2 is not just a respiratory virus, but also one that can affect organs throughout the body—including the brain.” #LongCovid
Read 11 tweets
Sep 19
“Without more public or private investment, it’s unclear how research can proceed. The small corner of the private sector that has endeavored to take on #LongCovid is slowly becoming a graveyard.” Screenshot of the article headline in C&EN reading “R&D for long Covid is collapsing. Public and private funding is lacking, scrambling opportunities to develop treatments.”   Date: September 18, 2024
“At least 4 companies that were developing LC treatments have shut down because of.. lack of finances. Others are evaluating a shift away from #LongCovid.”

“Levy says the company tried to communicate with NIH RECOVER multiple times but never heard back” cen.acs.org/pharmaceutical…
“What I know is that nobody wants to hear about COVID. When you say the name COVID, it’s bad . . ., but #LongCovid is not going anywhere, because COVID-19 is endemic. It will stay. At some point, everyone will realize that we have to do more for it.”
Read 9 tweets

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