☁️ 50+ ways to show up for people with Long Covid & ME/CFS ☁️
Over 400 million people around the world have Long Covid, and millions more have ME/CFS. Here are concrete ways you can show up for them so that nobody gets left behind! 🧵
Before you offer help, consider these four points:
1. Drop off groceries 2. Send a meal delivery gift card 3. Bring home-cooked meals 4. Chop ingredients for the week 5. Take their kids out 6. Do an at-home activity with their kids 7. Pick their kids up from school 8. Do their dishes 9. Do their laundry 10. Clean their house
11. Walk their dog 12. Clean their cat's litter 13. Offer them a safe place to stay 14. Help sort through mail and email 15. Help with landlord communication 16. Arrange for necessary home repair 17. Purchase needed home supplies 18. Send them money 19. Adopt one of their bills
20. Commit 1% of your paycheck to them 21. Organize a gofundme 22. Drive them to medical appointments 23. Pick up prescriptions 24. Wear a mask 25. Take notes for them at a medical appointment 26. Buy an accessibility aid that will make their life easier
27. Do health insurance admin 28. Schedule doctor’s appts. 29. Lobby for LC legislation 30. Ask local events to require masks 31. Resist LC denial 32. Protest against mask bans 33. Advocate for them at an appt. 34. Wear a mask 35. Share stories of people with LC
36. Spend quality time together 37. Sit with them in silence 38. Weekly facetime 39. Provide a space for them to vent, grieve, and be validated 40. Create fun together 41. Invite them to fun things 42. Send a cute postcard 43. Text them pics of nice things 44. Mail a care package
45. Learn about their disabilities on your own 46. Include them in accessible holiday celebrations 47. Send them a voice memo 48. Build access into your events 49. Wear a mask, even when you’re not around them 50. Offer flexibility in your hangouts
51. Learn about crip time 52. Offer virtual connection 53. Require masks and air purification in spaces you have control over
☁️ What did we miss? Please feel free to add to this list in the replies. It takes a village 💙
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Nasal irrigation is one of the cheapest covid precautions you can add to your routine! 🧵
💧Nasal rinsing is the process of rinsing a saline solution through your nasal passages to clear out mucus, debris, and allergens. It also reduces the chances you'll become infected when exposed & reduces illness severity and duration if you're infected. (citations in 🧵)
There are great studies backing up nasal irrigation (rooted in the ancient practice of Jala Neti)
Please treat this as a recommendation of many layers to consider, and remember that any single layer is better than none. The most important layer here, masks, can be achieved for under $5!
Links to recommended gear will be at the very end of the thread
🥈 At a close 2nd place, the Metrix molecular test has an impressive 96.7% test sensitivity and a much cheaper startup cost (though this is negated over time by the more expensive tests). Also a really good system to get.