Clean Air Club Profile picture
Oct 30 9 tweets 2 min read Read on X
☁️ 50+ ways to show up for people with Long Covid & ME/CFS ☁️

Over 400 million people around the world have Long Covid, and millions more have ME/CFS. Here are concrete ways you can show up for them so that nobody gets left behind! 🧵 50 plus ways to show up for people with long covid and ME/CFS so that nobody gets left behind. The clean air club cloud logo is in the bottom right.
Before you offer help, consider these four points: Before you begin: Remember: LC and ME/CFS are extremely isolating. We can’t leave our community behind! Center consent when you offer help. Disabled people are the experts on what they need and want. Don’t make this about you. Showing up for one another is a normal part of being in relation. Consider picking one or two actions and making them recurring. Stability is important!
1. Drop off groceries
2. Send a meal delivery gift card
3. Bring home-cooked meals
4. Chop ingredients for the week
5. Take their kids out
6. Do an at-home activity with their kids
7. Pick their kids up from school
8. Do their dishes
9. Do their laundry
10. Clean their house
11. Walk their dog
12. Clean their cat's litter
13. Offer them a safe place to stay
14. Help sort through mail and email
15. Help with landlord communication
16. Arrange for necessary home repair
17. Purchase needed home supplies
18. Send them money
19. Adopt one of their bills
20. Commit 1% of your paycheck to them
21. Organize a gofundme
22. Drive them to medical appointments
23. Pick up prescriptions
24. Wear a mask
25. Take notes for them at a medical appointment
26. Buy an accessibility aid that will make their life easier
27. Do health insurance admin
28. Schedule doctor’s appts.
29. Lobby for LC legislation
30. Ask local events to require masks
31. Resist LC denial
32. Protest against mask bans
33. Advocate for them at an appt.
34. Wear a mask
35. Share stories of people with LC
36. Spend quality time together
37. Sit with them in silence
38. Weekly facetime
39. Provide a space for them to vent, grieve, and be validated
40. Create fun together
41. Invite them to fun things
42. Send a cute postcard
43. Text them pics of nice things
44. Mail a care package
45. Learn about their disabilities on your own
46. Include them in accessible holiday celebrations
47. Send them a voice memo
48. Build access into your events
49. Wear a mask, even when you’re not around them
50. Offer flexibility in your hangouts
51. Learn about crip time
52. Offer virtual connection
53. Require masks and air purification in spaces you have control over

☁️ What did we miss? Please feel free to add to this list in the replies. It takes a village 💙

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More from @Clean_Air_Club_

Jul 30
Thread of free and reduced-cost covid safety gear! 🧵
😷 MASKS

There is likely a mask bloc in your area! Check out @covidactionmap to get free high-quality masks (including KN-95 and N-95)

google.com/maps/d/u/1/vie…
☁️ AIR PURIFIERS

For Chicagoans, ComEd sells reduced-cost air purifiers through their online marketplace

secure.comed.com/marketplace/ca…
Read 8 tweets
Jul 18
Nasal irrigation is one of the cheapest covid precautions you can add to your routine! 🧵 Nasal Irrigation for Covid-19: cheap, effective, and well-tolerated. An illustration of a woman doing a nasal rinse is in the center with the clean air club logo in the bottom right.
💧Nasal rinsing is the process of rinsing a saline solution through your nasal passages to clear out mucus, debris, and allergens. It also reduces the chances you'll become infected when exposed & reduces illness severity and duration if you're infected. (citations in 🧵)
There are great studies backing up nasal irrigation (rooted in the ancient practice of Jala Neti)

Here's one: ncbi.nlm.nih.gov/pmc/articles/P…
“Overall, patients with positive swab tests experienced substantial viral load reduction, became PCR-negative faster, and had milder symptoms than untreated patients. Hence, repeated application of [nasal saline irrigation] can be recommended for fastening viral clearance, symptom relief, and prophylaxis against respiratory infection, as has been increasingly proposed in (self-care) treatment or hygiene prevention guides for COVID-19.” Citation: Huijghebaert et al., “Saline nasal irrigation and gargling in COVID-19: a multidisciplinary review of effects on viral load, mucosal dynamics, and ...
Read 8 tweets
Jun 30
🧪 Not all covid tests are made the same!!

Would you rely on a smoke detector that only beeped during 28% of fires?

If not, then don't rely on one regular rapid test that picks up on covid only 28% of the time. 🥴

Stats below!! A bar graph comparing the sensitivities of different tests. The title reads "Covid test sensitivity: If you have asymptomatic covid, these are the chances that each test will actually detect it and show a positive result." 1 rapid antigen test is at 28%; 2 rapid antigen tests 48 hours apart is 63%. Lucira covid and flu test is 89%. 3EO molecular test is 95%. Metrix is 97%. Pluslife is 98%. "Takeaway: negative results on regular rapid tests don't tell you much. Citations in caption."
Citations:

1. Zhu et al., “Trial of the Pluslife SARS-CoV-2 Nucleic Acid Rapid Test Kit: Prospective Cohort Study” JMIR Public Health Surveill. 2023; 9: e48107.

2.

3. “Aptitude Matrix COVID-19 Test: Instructions for Use For Healthcare Providers”virus.sucks/pluslife_en/
4. “3EO Health: COVID-19 Test Instructions for Use”

5. “Performance Evaluation of the Lucira COVID-19 + Flu Test” Note that PPA and NPA were used for the sensitivity and specificity stats above.
Read 6 tweets
Jun 26
✈️ A guide to Covid-Safer Flying ✈️ a black and white vintage picture of an airplane in the sky. Text reads "Covid safer flying" and "update!" There is a clean air club logo in the bottom right.
Before the Airport: Gear

Please treat this as a recommendation of many layers to consider, and remember that any single layer is better than none. The most important layer here, masks, can be achieved for under $5!

Links to recommended gear will be at the very end of the thread Before the airport: If possible, invest in some gear that will help you navigate plane travel. We recommend N-95 masks, the Sip Valve (practice beforehand), glasses (prescription or not), a portable far-UVC lamp or portable purifier, a portable CO2 monitor, antiviral nasal spray, mouthwash with cetylpyridinium chloride (CPC), antiviral herbal tinctures, and a neti pot.
Before the Airport: Prep Try to hydrate extensively for the 48 hours before you plan to arrive at the airport. You may also consider drinking coconut water or water mixed with oral rehydration salts beforehand so that you retain water better. Test for Covid the morning of your flight, then eat a large meal. The goal is to reduce the need to take off your mask as much as possible.
Read 12 tweets
May 30
🧪Not all covid tests are made the same!!

Some of them detect negatives *much* better than others. Check out the comparisons below, and try to use the highest accuracy testing you can afford. A chart titled “Covid test sensitivity: how confident you can be if your covid test is negative and you have no symptoms.” There are 6 bar graphs showing the performance of different covid tests. 1 Rapid antigen test: 28%. 2 rapid antigen tests 48 hours apart: 63%. Lucira covid and flu molecular test: 89%. 3EO molecular test: 95%. Metrix molecular test: 97%. Pluslife molecular test: 98%. Text below reads: “Reminder: if you get a positive result on any of these tests, it’s 99% accurate. Citations in caption.” Clean Air Club logo is in bottom right.
Citations:

1. Zhu et al., “Trial of the Pluslife SARS-CoV-2 Nucleic Acid Rapid Test Kit: Prospective Cohort Study” JMIR Public Health Surveill. 2023; 9: e48107.

2.

3. “Aptitude Matrix COVID-19 Test: Instructions for Use For Healthcare Providers”virus.sucks/pluslife_en/
4. “3EO Health: COVID-19 Test Instructions for Use”

5. “Performance Evaluation of the Lucira COVID-19 + Flu Test” . Note that PPA and NPA were used for the sensitivity and specificity stats above.web.archive.org/web/2023101721…
clinicaltrials.gov/study/NCT06141…
Read 5 tweets
May 27
🧪Here's an updated roundup of highly reliable, easy-to-use molecular covid tests on the market today!

Accuracy stats, cost per test, and citations throughout. 🧵 At-Home Molecular Covid Testing:  Regular rapid tests don’t produce reliable negative results. Luckily, there are at-home molecular tests that have an accuracy approaching what you get from PCR tests, the gold-standard in viral detection!  Increase the reliability of your covid testing by using  one of these fast at-home molecular tests.  Pictured are four test readers, the clean air club cloud logo, and a sticker that says "update!"
🏆 Coming in at #1, we have the Pluslife Minidock!

This one has an amazing 98.3% test sensitivity -- meaning if it shows a negative result, you can rely pretty heavily on that.

Read more here:

Citation: virus.sucks/pluslife_en/
publichealth.jmir.org/2023/1/e48107
Pluslife Covid test:  Reader cost: $310 (DM Clean air club for discount) Test cost: $8  Sold via Altruan.com DM Clean Air Club for discount code  Test sensitivity: 98.3% (how reliable a negative result is) Test specificity: 99.3% (how reliable a positive result is)  Pluslife also has tests for HPV, Strep, Mpox, Influenza A+B,  RSV, and viruses that affect household pets  Citation: Zhu et al., “Trial of the Pluslife SARS-CoV-2 Nucleic Acid Rapid Test Kit: Prospective Cohort Study” JMIR Public Health Surveill. 2023; 9: e48107.  See also: https://virus.sucks/pluslife_en/
🥈 At a close 2nd place, the Metrix molecular test has an impressive 96.7% test sensitivity and a much cheaper startup cost (though this is negated over time by the more expensive tests). Also a really good system to get.

Citation: web.archive.org/web/2023051116…
Metrix Covid Test:  Reader cost: $50 Test cost: $25 Test sensitivity: 96.7% Test specificity: 99%  Cost goes down when you buy the reader and tests bundled  Citation: “Aptitude Matrix COVID-19 Test: Instructions for Use For Healthcare Providers” https://web.archive.org/web/20230511163447/https://www.fda.gov/media/162403/download
Read 8 tweets

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