1. This is far more complex than bill backers (and frankly No 10) anticipated and want to admit.
There are huge problems with writing a bill, and then asking the policy questions.
e.g. capacity
Professor Gareth Owen is a Professor of Psychological Medicine, Ethics and Law at the Institute of Psychiatry, Psychology and Neuroscience at King's College
2. This will be a profound cultural shift. Australian assisted dying specialists, like US witnesses, believe 'feeling a burden' is a valid reason to choose assisted suicide.
3. That there is a big division between those that think capacity is enough - as in this bill - and those (e.g. psychiatrists, social workers, palliative care doctors) that want to look at what else may be going on when somebody wants help ending their life
Professor Meredith Blake, University of Western Australia; Professor Gareth Owen, Professor of Psychological Medicine, Ethics and Law, King's College
4. That for medical practitioners that participate in assisted dying/suicide it is "just another treatment option" to be raised
5. GPs do not want Assisted Dying to become part of their normal practice and think - as others have suggested - the Government should create a separate service to provide it
Michael Mulholland, Honorary Secretary, Royal College of General Practitioners echoed the BMA
6. The judicial stage needs to be "completely rethought" in the view of Professor Laura Hoyano, and the appeal stage is completely one-sided. Other legal witnesses have suggested entirely different approaches.
7. There's a 'record no evil, hear no evil' approach to record keeping and national reporting - you cannot look behind the veil
[Nor did the Committee get the chance - only overseas practitioners that are positive about assisted dying/assisted suicide got invited
8. We heard moving testimony from several people whose family members had died by suicide or sought assisted dying. They were supportive of the bill but did not go into bill specifics.
The Committee did not hear from any that had opted for assisted dying and developed doubts
9. The Bill is cavalier with Welsh devolution, a situation worsened by the Senedd's recent vote against Assisted Dying.
I cannot stress enough how much outcry there would be if this was the government doing this.
Professor Emyr Lewis
10. The Committee will get no assistance from the Government in understanding how the vulnerable will be affected (as suggested by Baroness Falkner, Chair of EHRC).
Daniel Francis MP asked for assessments prior to line-by-line scrutiny. Ministers said no.
11. Our words will be redefined
Alex Greenwich, MP for Sydney, Parliament of New South Wales (did for NSW what Kim Leadbeater hopes to do for England and Wales)
The Times’ Health editor and health correspondent:
“After three days of intense… hearings, only one thing seems certain…no one has a clue about what such a service would look like”
Links at bottom of thread
Testimony: “The doctors got it wrong, I would have killed myself and I wasn’t ill”
.@VictoriaPeckham previously pro-bill, on why the state of palliative care really matters
Pro-bill MPs “seem to believe poor palliative care is being deployed as an excuse to block their bill…unconcealed exasperation…they’ve had enough of experts raising tiresome complexities
What have we learned after two days of Assisted Dying Committee evidence?
1. Lack of access to palliative care is a major barrier to assisted dying being a genuine choice.
2. Today it's clear KL has identified multidisciplinary teams for assessment as a concession
Like palliative care doctors, palliative social workers trying to wake the Committee up about their ivory-tower view of the world
Glyn Berry, Co-Chair, Association of Palliative Care Social Workers (APCSW👇
3. Five AD practitioners from US and Australia all recommend improving the bill by doing away with the "period of reflection" for those asking for AD. Also case for reducing number of doctors from the process if shortage of practitioners
Two expert witnesses made the Committee confront the realities of our healthcare system and assisted suicide.
Dr Rachel Clarke and Dr Sarah Cox, President of the Association of Palliative Care Medicine.
A 🧵
Tom Gordon MP (Pro) tries a 'gotcha'. How do you ever define when palliative care sufficient to allow assisted dying?
Dr Sarah Cox: "When 70-95% dying that need palliative care, get it. When you don't have to be white, and rich, and have cancer to get good palliative care.."
Jack Abbott MP: A bleak picture. Better or worse than 10 yrs ago?
Dr Cox: "Depends on who you are. If you live in one of those postcodes where can't get palliative care. If you are socially deprived... an ethnic minority...have a non-cancer diagnosis. Then you aren't..."
Next up:
🔊Dr Sarah Cox, President, Association of Palliative Medicine
🔊James Sanderson, CEO, Sue Ryder
🔊Dr Sam Ahmedzai
🔊Dr Rachel Clarke
Dr Rachel Clarke, hospital palliative care doctor with a decade in range of settings, communities, district hospitals, large teaching hospital, former journalist, and author of 4 books for general public on medicine, and campaign for greater awareness around topic of death and dying. Personal view not opposed in principle but concerns regarding consent and capacity
James Sanderson, CEO Sue Ryder, end-of-life care. 6 months in, previously NHS Community Health England, palliative care experience. Neutral position. Provide information and flag concerns about how system operating.
Listening to Assisted Dying/Assisted Suicide committee meeting. Kim Leadbeater speaking in favour of sitting in private - 'I have taken the decision' and says it is normal because it is about discussing the suitability of the individuals. She argues from Government Public Bill Committee process and reference to programming sub-committees 1/
Danny Kruger asks - why was decision taken so late last night and with no warning, and that reasons for selection of witnesses should be heard by public, and no reason cannot talk in public about balance of witnesses and who chosen 2/
He draws out imbalance: those from overseas regimes are all in favour of assisted dying, no representation of disabled groups etc...
He has been called to order during making these points - making points that speak to broader point 3/