Kelly Profile picture
Nov 9 12 tweets 3 min read Read on X
When I was in my twenties, I became very sick from adenomyosis and endometriosis.

I needed a hysterectomy and multiple blood transfusions.

I was told that since I was young I would recover quickly.

I was told I would only need 4-6 weeks off work.

Then things went wrong…
I bled too much during surgery and needed extra blood.

I developed c diff and had to spend a week in the hospital.

When I was finally discharged, my lab work and vitals were worse than when I went in.

I tried to advocate for myself but was told I was “fine”
I wasn’t fine.

I had a severe post op complication and was bleeding into my abdomen.

It took four ER visits before they found it because healthcare workers kept telling me my pain and fatigue were “normal”

They gaslit me and sent me home.
Thankfully my then boyfriend took me to the ER the fourth time and caused a scene.

He got loud and demanded care.

They ran tests to shut him up, and the next thing I knew I was being rushed to another hospital for emergency surgery.

I had a 50/50 chance of survival.
What should have been a 4-6 week recovery turned into a month long hospital stay and 11 months off work.

I needed full time care when I was finally discharged.

I wasn’t able to drive, cook or clean for months.

It devastated me emotionally and financially.
Why do I tell this story?

Because I’m seeing a lot of people indicating that being in poverty is a choice.

That it’s the result of bad decisions and people could just try harder.

No one seems willing to acknowledge the fact that most of us are one emergency away from poverty
I was completely broke by the time I got out of the hospital.

I sold everything I owned including my car.

I moved out of my apartment and into a room in a basement with a bunch of other people.

Friends & family fed me.

The debt mounted.
I was in Canada so mercifully there were no medical bills outside the costs of prescription meds.

Had this been in the US my medical debt would have been in the hundreds of thousands of dollars.

Yet I still barely survived it.

Why? Because being sick is expensive.
Being unable to work while you have increased medical costs is a recipe for financial disaster.

Even if you plan carefully and have savings, they can be wiped out quickly if you have a major medical event.

They’re wiped out even faster in the US.
you are far closer to being homeless and/or impoverished than you are to being rich.

You won’t be the exception if you experience a catastrophic medical event.

A good and caring society ensures healthcare as a basic human right to give people a fighting chance
If I had to pay medical bills on top of spending a year off work and having to hire caregiver support, I would have been bankrupt.

We must stop blaming people for becoming ill.

Stop blaming people for not having support.

Stop blaming people for being homeless.
I’m glad I survived, but I’m also painfully aware that my privilege played a role.

That having universal healthcare and private benefits helped.

That having friends and family to assist me made a difference.

Not everyone is so lucky and no one “deserves” to suffer.

• • •

Missing some Tweet in this thread? You can try to force a refresh
 

Keep Current with Kelly

Kelly Profile picture

Stay in touch and get notified when new unrolls are available from this author!

Read all threads

This Thread may be Removed Anytime!

PDF

Twitter may remove this content at anytime! Save it as PDF for later use!

Try unrolling a thread yourself!

how to unroll video
  1. Follow @ThreadReaderApp to mention us!

  2. From a Twitter thread mention us with a keyword "unroll"
@threadreaderapp unroll

Practice here first or read more on our help page!

More from @broadwaybabyto

Nov 6
When you become disabled there’s a few things you notice right away:

Ableism is everywhere.

People will abandon you. Even those you were certain would stick by you.

Just because something is illegal or against human rights code doesn’t mean it’s not happening ALL the time
Accessibility is not what it should be.

People will blame you for your disabilities. It won’t matter what you do or how hard you try, you won’t be “good enough”

All the misconceptions you had about disabled people were wrong.
That’s really the crux of it.

Disability is a minority group you can join anytime.

Most people will experience disability in their lifetime

Yet discriminating against us is not only common it’s socially acceptable.
Read 6 tweets
Oct 24
“Let them go a month without meals. Maybe they’ll get a job”

First, many SNAP recipients have jobs. They’re just living below the poverty line because of tremendous wealth inequality.

Second, many are disabled and children and can’t work.

Third, no one should starve to death.
A statement like this says “let them die, I don’t care”.

It’s a cull. They want to punish the disabled, marginalized and the poor

The media need to get loud about this & encourage everyone who can to start donating to food banks asap

A month without meals is a death sentence.
Once again we are blaming individuals for a societal problem.

It’s not a moral failing to be poor, disabled or unhoused.

Most people are far closer to ending up in that situation than we realize.

Everyone deserves help, and only the ultra rich benefit from cutting it
Read 4 tweets
Oct 13
“If you can be on social media you can work”

“If you can use DoorDash you can microwave a meal”

“If you really can’t cook you belong in a home”

“If you can’t work MY tax dollars shouldn’t support you”

“If you were really that sick someone would take care of you”
🧵
People can be so binary and judgmental when it comes to disability.

They either think you’re faking or they believe you should be institutionalized.

They don’t support disabled people leading full independent lives if they’re not able to work.
The ableism is so pervasive that people don’t even attempt to learn about dynamic disability.

They refuse to listen to us and try to understand why their black and white thinking is wrong.

So let’s break it down….
Read 17 tweets
Sep 26
If you’re struggling with Long Covid, MCAS, POTS or other energy limiting chronic illness… I’ve put together a series of guides to try and help.

These conditions are poorly understood and more often than not we end up learning from our fellow patients.

Mega 🧵 of resources
POTS or Dysautonomia can be incredibly debilitating.

It’s more than “just fainting”… it’s a malfunctioning of your autonomic nervous system.

That’s the system that regulates breathing, blood pressure, heart rate & more

disabledginger.com/p/living-life-…
Getting a POTS diagnosis can be challenging.

Many healthcare workers aren’t trained in how to recognize it, and will blame it on “anxiety”.

Remember, anxiety isn’t positional!

My guide to diagnosis & testing:

disabledginger.com/p/its-just-anx…
Read 8 tweets
Sep 22
A disabled double amputee named Rodney Taylor has been held in ICE custody since January.

He’s been denied his new prosthetic legs and is now in solitary confinement.

His “crime”? A burglary when he was a teen for which he received a full pardon. 🧵
His parents brought him to the US when he was only two years old.

He needed better medical care than what he could receive in Liberia.

He’s been in the country almost 50 years and had permanent residency.
He’s got a family, a fiancé and owned a thriving barber shop where he was considered a staple within his community.

When ICE grabbed him he was only a day away from receiving new prosthetic legs, but they’ve not been willing to let him go and get them.
Read 8 tweets
Aug 10
“No one is getting arrested for miscarriage!”

I hear this almost every day from people on the right.

They claim that those of us advising of the risks of abortion bans are fear mongering, despite the fact that many women have been arrested for pregnancy loss.

🧵
Is there a law stating that a miscarriage is illegal? Of course not.

There are many laws that state abortion is illegal, and despite what the forced birth crowd say, it’s nearly impossible to tell the difference between a miscarriage and an abortion.
So when someone loses a pregnancy, it’s open to interpretation.

Healthcare workers might report you if you don’t seem sufficiently distraught.

A family member might report you if they think you didn’t want the baby.

Law enforcement will look through your socials, texts etc
Read 11 tweets

Did Thread Reader help you today?

Support us! We are indie developers!


This site is made by just two indie developers on a laptop doing marketing, support and development! Read more about the story.

Become a Premium Member ($3/month or $30/year) and get exclusive features!

Become Premium

Don't want to be a Premium member but still want to support us?

Make a small donation by buying us coffee ($5) or help with server cost ($10)

Donate via Paypal

Or Donate anonymously using crypto!

Ethereum

0xfe58350B80634f60Fa6Dc149a72b4DFbc17D341E copy

Bitcoin

3ATGMxNzCUFzxpMCHL5sWSt4DVtS8UqXpi copy

Thank you for your support!

Follow Us!

:(