I held a fellowship in bio-nano-technology at a Scottish University. I tried a phased return starting with 1 hour per day. Twice. Each time I crashed and became more unwell.
Still, I’m lucky – I’m not bed bound, like so many.
One of the hardest parts of being housebound is the isolation.
If I didn’t occasionally try to phone my GP I would have no care whatsoever. How can it be ok to be housebound for 10 years with no support?
6 months later I won my appeal. But the benefit scrounger rhetoric is hard to deal with, it is pervasive. How do you have a sense of self-worth in this climate when you can’t work?
The course felt like a life-saver, giving me something to think about other than being ill. Passing with a distinction was very special.
But what we really need is more funding for research. There are tantalising pieces of work showing abnormalities