Discover and read the best of Twitter Threads about #1Year1Virus
Most recents (5)
One year ago, I was shocked to realize I had lost my senses of taste and smell. We had been so careful.
I’d like to share a bit about my experience with #LongCOVID, 4 things I’m grateful for and a few ways you can help: 1/14
I’d like to share a bit about my experience with #LongCOVID, 4 things I’m grateful for and a few ways you can help: 1/14
The scariest part was struggling to breathe. I (finally) made a will. Throughout week 2, I wondered whether I would wake up if my oxygen saturation dropped in my sleep. Thankfully, my oxygen levels stayed high enough to avoid hospitalization. 2/14
One year in, I have debilitating fatigue and near-constant headaches and chest pain. Showering is a major expenditure of effort. Before this, I could easily run 3 miles even if I hadn’t exercised in months. 3/14
1/ Well, it’s my #LongCOVID anniversary. Today marks one year from the day I noticed my first fever. I’ve been doing a lot of reflecting so I thought I’d document some of my thoughts here. #1year1virus
2/ Weirdly enough I felt totally fine that first fever day and thought the thermometer might be wrong. I did BodyCombat earlier that day for goodness sakes, jump knees and burpees and all. A couple days later, I was gasping giving a 15 minute talk.
3/ After 1 month, I thought I was going crazy. How could I still be so sick from something that was only supposed to last two weeks? It was around then that I found the prolonged symptoms survey posted by @ahandvanish. I cried.
Yesterday was my #covidversary. It's been one yr since my partner @israelfloresta & I got covid19.
We both tested negative. Now, we both have #longCOVID.
Here are some thoughts about this experience 👇🏽
#1year1virus
1/
We both tested negative. Now, we both have #longCOVID.
Here are some thoughts about this experience 👇🏽
#1year1virus
1/
I have a PhD in biology, I work with infectious diseases and I have done thousands of PCRs in my lifetime.
Yet, processing the implications of a (-) test while being ravaged by brain fog was humbling to say the least.
#1year1virus #longCOVID
2/
Yet, processing the implications of a (-) test while being ravaged by brain fog was humbling to say the least.
#1year1virus #longCOVID
2/
We had access to testing early on because I was fully symptomatic and @israelfloresta was an essential worker. By the time we received the test result and it was (-), we were both getting worse. Our symptoms were dismissed and we were declined a 2nd test.
#1year1virus
3/
#1year1virus
3/
A year ago today I had my first COVID symptoms, and I never recovered.
It feels fairly impossible to process what being sick for a year has been like, and what this year of watching #LongCOVID awareness and advocacy unfold has been like, but some thoughts: 1/
It feels fairly impossible to process what being sick for a year has been like, and what this year of watching #LongCOVID awareness and advocacy unfold has been like, but some thoughts: 1/
The first week of being sick was the easiest. I remember marking my calendar to donate plasma at the point I expected to be symptom-free, but that never came. The sirens in NYC were nonstop at that point. I watched my neighbors get taken away in ambulances. 2/
Every night from 2-4am the neighbor closest to my bedroom window had a coughing fit. It was so weird and horrifying to know we were all experiencing the same thing. In those days living in NYC was a horror show while the rest of the country had no idea how bad it was. 3/
One year ago today, I developed my first symptoms of COVID-19. Over the past 12 months, I have battled issues ranging from severe GI issues to debilitating menstrual periods, started the @itsbodypolitic support group, and have helped to shape the media narrative around #LongCovid
some key takeaways from this past year:
1. I am strong af. But, I can't do everything alone. There is power in community, and strength in asking for help.
2. Economic and white privilege played an enormous role in my experience being easier than many other patients'...
1. I am strong af. But, I can't do everything alone. There is power in community, and strength in asking for help.
2. Economic and white privilege played an enormous role in my experience being easier than many other patients'...
I was mostly able to access care when I needed it. I was able to quit paid work and live off my savings when I needed enormous amounts of rest. I credit my (mostly full) recovery to that time I spent resting and pacing.
3. Recovery is not linear...
3. Recovery is not linear...
