Discover and read the best of Twitter Threads about #ApresJ150
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Journalists frequently ask me if my family is pursuing antibody testing to prove we had COVID. Draw up a chair and let me tell you why that question is so problematic.
#Longhaulers #LongCOVID #ApresJ150 #CovidAntibodies
#Longhaulers #LongCOVID #ApresJ150 #CovidAntibodies
2. A negative antibody test doesn’t necessarily mean you don’t have antibodies and it certainly doesn't mean you didn't have COVID. First of all, the accuracy of C19 antibody tests has been questioned by the CDC and others. Some C19 antibody tests have a high false negative rate.
3. For instance, some of the tests authorized by the FDA have a sensitivity rate under 90% - which means if 100 ppl are tested, 10 or more will be told they don’t have antibodies when they actually do. And that’s the rate reported by the manufacturer, not the rate in actual use.
I spoke to @maywarren11 of the @TorontoStar about the need for better research and care for Cdn #Longhaulers. One of the most fascinating nuggets in this piece is the difficulty that the CANCOV study has had finding participants:
thestar.com/news/canada/20…
thestar.com/news/canada/20…
I'm part of three different forums with Cdn #Longhaulers, two of which have thousands of members. We all shared the information on the study as soon as we learned of it - and then we all shared the massive disappointment of discovering we could not participate.
Canada's massive screwup on testing back in the early days of the pandemic is still having an effect now on patients' ability to access medical care, sick leave and disability supports, and now its delaying the research into our condition.
This afternoon I was on a Zoom call with multiple Cdn #longhaulers. So many people identified heart issues as part of their ongoing symptoms. Yet very few of them had gotten tests or were being followed by their doctors. #COVID19 #CovidLonghaul #LongCovid #apresJ150
We know from the Germany study released last month that even people who are asymptomatic can have post-COVID heart damage. Yet here are Cdn #Longhaulers who HAVE heart symptoms who can't get tested, can't get medical care, can't even get acknowledgement. statnews.com/2020/07/27/cov…
We need to do so much better, Canada. There needs to be comprehensive care and testing for #longhaulers.
@CPHO_Canada @PublicHealthON @PattyHajdu @celliottability @DonDavies @NickelBelt
@CPHO_Canada @PublicHealthON @PattyHajdu @celliottability @DonDavies @NickelBelt
