Discover and read the best of Twitter Threads about #AutINSAR
Most recents (4)
It’s tricky to be a parent advocate in the autism community, especially if, like me, you are not autistic yourself. Autism is about autistic people, & that’s who should be leading autism advocacy efforts. Threading my recent @AutismOAR column:
researchautism.org/what-is-the-ro… #autism 1/
researchautism.org/what-is-the-ro… #autism 1/
@AutismOAR …But in the nearly two decades since my son was diagnosed, I’ve learned that I do have a role as an advocate: To learn and share and fight for the policies and knowledge needed for my son to live a good life as an autistic person.
#autism #parenting 2/
#autism #parenting 2/
Parents of autistic people simply can’t avoid being advocates. It is not reasonable to be passive when our loved ones need so much support, & when there are so many roadblocks to getting that support from educational, social, & medical networks that are supposed to provide it. 3/
Autism research is mostly failing my teenage son & his autistic community. Saying something so forthright may seem harsh, but this is the Greta Thunberg era—& we’re now telling people what they need to hear, not what they want to hear.
Saddle up, this is going to be a thread. 1/
Saddle up, this is going to be a thread. 1/
I've been going to autism science conferences & scrutinizing #autism research for nearly a decade, and during this time most autism studies have remained mired in areas like causation—a pursuit that does absolutely nothing to improve the lives of autistic people here already. 2/
Even more frustratingly, when research does address the needs of existing autistic people it does so with the goal of "intervention," rather than focusing on quality of life, & largely neglects those like my son who have intellectual disability &/or communication disabilities. 3/
Autism researchers and research funders: if you don’t listen to autistic community members and leaders about what #autistic people want investigated, you are not actually helping the autistic people you really, truly think you’re helping. This is going to be a thread. 1/
Autism research is mostly failing my teenage son and his autistic community. Saying something so forthright may seem harsh, but this is the Greta Thunberg era—and we’re now telling people what they need to hear, not what they want to hear. 2/
I've been going to autism science conferences & scrutinizing autism research for nearly a decade, & during this time most autism studies have remained mired in areas like causation—which does absolutely nothing to improve the lives of autistic people who are here already. 3/
spectrumnews.org/features/deep-…
I don't really have the time or brain space to address every misconception and mistake in @Spectrum's hugely controversial article today, but I need to take issue very, very hard w/ the closing quote...
(Thread incoming)
I don't really have the time or brain space to address every misconception and mistake in @Spectrum's hugely controversial article today, but I need to take issue very, very hard w/ the closing quote...
(Thread incoming)
"But he [playwright Alex Oates] has another suggestion: 'My aim and great wish was to help these parents and therefore their children,” he says about the play. 'If there was a way for those autistic voices to turn their outrage into advice for the parents, I’d love that.'" 2/
...Because it belies a truly egregious level of either ignorance or flat-out misrepresentation of the topic he is addressing here.
Because the autistic community expends...so much time and energy on this exactly. 3/
Because the autistic community expends...so much time and energy on this exactly. 3/
