Discover and read the best of Twitter Threads about #CreakyChats

Most recents (7)

A6. I don't know. I imagine myself without pain but I don't remember that.

I want to area world without abuse from being who I am. That's what I imagine more.

#CreakyChats
A6. Doctors listening.

A world where we say #AbledsAreWeird & they listen & become accomplices instead og gripe.

#CreakyChats
A6. Universal healthcare & then single payer.

So that conditions that result from not being able to treat other things rarely happens. #CreakyChats
Read 4 tweets
A4. It’s hard to pick one area. I wonder if the discovery of the interstitium organ could be key to systemic illnesses. #CreakyChats
A4. And I also think the possible link between environmental changes and pollution as general chronic illness cause has to be more closely studied. #CreakyChats
A4. @JenBrea & I were discussing this the other day - what if treating us saves humanity in the future.

What if we’re the most sensitive to a change that will happen to everyone if we don’t fix the environment?

#CreakyChats
Read 3 tweets
A2. #Fibro &. #MEcfs certainly aren’t taken as seriously as they should be.

But they’re taken more seriously than they were. #CreakyChats
A2. Chronic #cancers are just now being recognized as a thing vs the simplistic view of whether or not it’ll kill you right away.

#Cll in particular gets as necessary chemo instead of continuous.

#CreakyChat
A2. #Chemo for many chronic illnesses, cancer or no, is in pill form sometimes. #CreakyChats
Read 3 tweets
Here's my latest update to my collection of active Twitter #Disability & #ChronicIllness Hashtags - previous update 12.13.18.

Please share it. Thank you! :-) Light blue sand background has the # drawn in the sand to the right. The left side is blank. <br />
<br />
At the bottom of the picture, text reads
Portable PDF version will appear on my Kofi in the next day or so.

Link: ko-fi.com/TinuWrites
HASHTAGS FOR PERSONAL NARRATIVES

These hashtags are for sharing your stories & experiences. Also helpful for crowdsourcing solutions.

#InvisibleIllness
#MySpoons
#MyPainDay
#ShareOurPain
#ShareOurStories
#SpoonieStories
Read 45 tweets
A2. I’m not sure people get that it’s a category of illness, that sometimes it could go in for decades or life. #CreakyChats
A2. For individual illnesses, absolutely.

There’s the stigma of you’re just lazy or you’re not trying hard enough or there’s a miracle cure out there that you’re not using because you’re stubborn. Etc
I am stubborn. That’s why I’m still alive.
Read 4 tweets
Here's my lastest update Twitter #Disability & #ChronicIllness Hashtags - previous update 10.17.18

Please share it.
I'll have a PDF version of this for download on my Ko-fi by this time tomorrow. Link at the end.
HASHTAGS FOR PERSONAL NARRATIVES

These hashtags are for sharing your stories & experiences. Also good for crowdsourcing solutions.

#InvisibleIllness
#MySpoons
#MyPainDay
#ShareOurPain
#ShareOurStories
#SpoonieStories
Read 29 tweets
A3. From home I observed #ACR18 featuring patient interviews like the one with @DawnMGibson.

It gave me so much hope & vidation about #painsomnia. #CreakyChats
A3. Iearned about patient posters & through community representatives who attended, that researchers and doctors were observing and listening. #CreakyChats
A3. That meant so much to me. I'm still thinking about it and browsing and observing material from the #LupusChat attendees, @CreakyJoints and @DawnMGibson.

What a well timed moment to be be newly diagnosed with Arthritis & Fibro.

#CreakyChats
Read 3 tweets

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