Discover and read the best of Twitter Threads about #DataAccess

Most recents (4)

Daily Bookmarks to GAVNet 01/08/2022 greeneracresvaluenetwork.wordpress.com/2022/01/08/dai…
Airborne DNA From Plants Could Reveal Invasive Species, Impact Of Climate Change - WorldNewsEra

worldnewsera.com/news/science/a…

#AirborneDNA, #PlantDNA, #InvasiveSpecies, #ClimateChange, #impact
The Mainstream Media Is Losing The Fight Of Its Life...All Thanks To Joe Rogan

quoththeraven.substack.com/p/the-mainstre…

#MainStreamMedia, #JoeRogan, #ContentCreation, #FreePress, #IndependentJournalism
Read 17 tweets
We set up a fund to support projects that enable trustworthy and ethical #datasharing. These projects aim to help citizens and businesses lower their impact on the environment, improve public services and save lives.

Meet the projects: hubs.ly/H0K9tmW0
1/8 @OpenClimateFix has been exploring how opening up #energy #data can help reduce energy costs and achieve net zero emissions.

The team identified that recurring revenue is very important for economic sustainability, and created guidance around this: theodi.org/article/open-c…
2/8 @eticlabuk looked at how #datasharing could unlock the value of data in the #charity sector.

The team researched whether the #datafederation model could be a viable approach: theodi.org/article/etic-l…
Read 9 tweets
1/9 Covid-19 has shown us the benefits of #datasharing, but lack of trust in how #data is shared, and difficulty in designing and sustaining #dataaccess initiatives, can be a barrier to sharing.

We’ve been exploring these challenges in our @InnovateUK funded R&D programme...
2/9 Lack of trust and trustworthiness could lead to less #datasharing. But how do we decide what organisations and #datasets are trustworthy?

We've been exploring systematic ways of examining trust and trustworthiness: theodi.org/project/buildi…
3/9 ...and here’s a (beta) guidebook to help you be more trustworthy and trusted when collecting, managing, using and sharing #data. Please try it and let us know what you think: theodi.org/article/introd…
Read 9 tweets
Lots of thoughts & opinions on patient #DataAccess & data sharing, figured I'd jump in. Take a seat for a few. I'll make it worth your while.

THREAD 👇👇

#PatientAdvocacyProblems #UnblockHealth #hcldr #hitsm #medtwitter @S4PM #EHR #DataBlocking #pinksocks #PtExp
@S4PM 1) A patient with multiple comorbidities has been in & out of the hospital w/what now has been diagnosed as advanced congestive heart failure. At about 5 pm yesterday (Fri), patient & family were told to seek a 2nd opinion asap. Told patient being discharged today. #UnblockHealth
@S4PM 2) The urgent 2nd opinion is to see if the patient is a candidate for a particular procedure. If not, #hospice. Appt can’t be scheduled until ALL records & images on CD are received & reviewed by the 2nd opinion dr’s office (at another hospital, in another state.) #UnblockHealth
Read 19 tweets

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