Discover and read the best of Twitter Threads about #DataSavesLives
Most recents (7)
1/4 The Government’s strategy - Data Saves Lives: Reshaping Health and Social Care with Data, has been published today by @sajidjavid. It sets out @DHSCgovuk’s ambitious plans to use data to modernise the NHS and transform health & social care.
2/4 Ambitious reforms will be used to drive medical breakthroughs and efficiencies which will help us to tackle the Covid backlog and deliver faster treatment & diagnosis for patients, while maintaining the highest standards of privacy & ethics.
3/4 This final version of the data strategy responds to two important reviews by @bengoldacre & @Laurawadegery & reflects feedback from hundreds of individuals - representing national orgs, regional leaders, innovators, scientists, doctors, nurses, researchers, patients & carers.
Finally, the #GoldacreReview is published! (During Parliamentary Easter holidays, mid-ping-pong on the #HealthAndCareBill...)
It's 221 pages - each PDF page is a double page spread - so this could be a lo-o-o-ong [Thread].
Here goes...
It's 221 pages - each PDF page is a double page spread - so this could be a lo-o-o-ong [Thread].
Here goes...
First point to note, in the Terms of Reference (p5), is that this is about "access to #NHSdata by #researchers, #commissioners, and #innovators" - i.e. #Planning and #CommercialReUse - so it is directly relevant to the operation of millions of people's #NationalDataOptOuts... 
"185 wide-ranging recommendations for us to explore", says @sajidjavid (p6). Gulp! Time for some coffee...
"systems that ensure #underrepresented groups are well represented" may (partly) refer to this "landmark review", which got off to a slow start:
gov.uk/government/new…
"systems that ensure #underrepresented groups are well represented" may (partly) refer to this "landmark review", which got off to a slow start:
gov.uk/government/new…
A long thread, incorporating my 6,000th tweet! Often asked, so here's my attempt to summarise what I have learned, and believe in the world of #PROMs
With so much use of, desire for and great work in the field why is it so hard and isn't working as it should/ could/ would...?
With so much use of, desire for and great work in the field why is it so hard and isn't working as it should/ could/ would...?
Firstly stop thinking of tools and focus on logistics, engagement, and embedding an organisation wide culture of collecting #PROMs and #PREMs
This was our starting point 7 years ago at @NorthumbriaOrth - using paper & Excel across 5 hospital sites. #Teamwork
This was our starting point 7 years ago at @NorthumbriaOrth - using paper & Excel across 5 hospital sites. #Teamwork
Many parties are already collecting #PROMs - particularly in the world of #orthopaedics - but as highlighted by the @BritOrthopaedic article on @SWORDResearchUK @NetworkProms EMPROVE audit, there is no consensus on what, when or how.
In the race between vaccination and variants, how will we know that vaccination is winning? Tracking vaccination coverage systematically and accurately is crucial to understanding how the rest of 2021 will go. But currently, this tracking remains patchy & inconsistent. A 🧵.
The CDC reports state-level vaccine coverage (by dose and age group). While this gives an illusion of tracking geographic variation, it obscures communities that are falling behind in vaccination. For more on the importance of fine-scale vacc data: bit.ly/3uqEDuw (2/)
I do know that the CDC recently released a map of county-level vaccination data, but the map only provides qualitative information for 2-dose coverage and the data is not available for download. (3/)
*ATTENTION PLEASE*#AI #digitalhealth #tweeps Today @IndraJoshi10 and I at @NHSX are launching our new "Artificial Intelligence: How to get it right report" with help from A LOT of people across the digital health ecosystem nhsx.nhs.uk/key-informatio… 1/ 14
The report goes into detail on our plans for the NHS AI lab but, more importantly, the research that sits beneath that - particularly the work on governance: ethics and regulation with invaluable input from @reformthinktank @oxfordethicslab @turinginst @FutureAdvocacy 2/14
We (@IndraJoshi10 & me) hope that the report makes it clear WHY we think #AI is important for health and care & HOW we can make sure it is utilised in the 'right' way - not just for the sake of it - within safe & ethical boundaries 3/14
What a fun gift for a Friday for @NHSX! Thanks so much, @waltzinglamb and @CHCNorth.
#datasaveslives indeed!
1/3
#datasaveslives indeed!
1/3
Also, I love @CHCNorth’s project write-ups:
• creating multi-agency pathways (from data) for alcohol-related illness in NWC
• creating/testing interventions to manage patients attending A&E inappropriately — from data across Yorkshire and the Humber
2/3
• creating multi-agency pathways (from data) for alcohol-related illness in NWC
• creating/testing interventions to manage patients attending A&E inappropriately — from data across Yorkshire and the Humber
2/3
• an app (+ ongoing data analysis) in Greater Manchester for paramedics to better identify/direct suspected stroke patients
Good work, @CHCNorth!
3/3
Good work, @CHCNorth!
3/3
ICYMI: We are shaking up outdated GP IT systems
gov.uk/government/new…
#healthtech #datasaveslives #userneeds
1/4
gov.uk/government/new…
#healthtech #datasaveslives #userneeds
1/4
We all have email/web services that are constantly improving for us. We can see our bank accounts on our phones. We have continually updating apps helping us get to work & keep in touch with our families.
Shouldn’t our GPs have digital services that fit them that well too?
2/4
Shouldn’t our GPs have digital services that fit them that well too?
2/4
The new standards, developed by @NHSDigital, will introduce minimum technical requirements so systems can talk to each other securely and are continuously upgradable.
3/4
3/4
