Discover and read the best of Twitter Threads about #DirectCare

Most recents (5)

I'm sure well-intentioned @CamCavendish but this piece completely mashes up #datasharing for #DirectCare of a patient and data sharing for #ResearchAndPlanning, and other 'secondary uses'. These are VERY different in legal basis, IT systems, and privacy.

ft.com/content/dc01b3…
It's complex and it doesn't make for punchy articles, but it's very important that we are totally clear about the distinction between Direct Care and Planning/Research.

At present, data sharing for Direct Care STILL lags significantly behind data sharing for secondary uses
Because they are built on totally different technologies, progress towards Research and Planning uses of #GPData doesn't advance the cause for Direct Care one iota.

Which is why it's so important the distinction is made and understood. Conflating the issues is counterproductive.
Read 18 tweets
I see #NHSEx has published the slides from its @HDR_UK “Data Access & Discovery” event, charmingly subtitled “A Forest Through the TREs” - on YouTube, if you want to listen:



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*I thought the phrase was “cannot see the forest for the TREs”, but hey...
Let’s take a look:

hdruk.ac.uk/wp-content/upl…

One reason we use the category term #TRE to refer to Trusted Research (or any other use) Environments that meet the #FiveSafes is that everyone wants to call their own TRE something different, so no-one really knows what they mean...
Call yours what you like (e.g. for @ONS it's their Secure Research Service) but if it only does four #Safes, or three Safes - and if it isn’t also #consensual and fully #transparent - then it's not a #trustworthy TRE...
Read 24 tweets
@elonmusk self driving cars, heading to Mars, boring underground ... but still using regular health insurance?
First principles would say make 80% of care, 95% cheaper so that health ins can be 60-70% cheaper and out of the way in the majority of care
Cite: new model of #directcare offers unlimited visits, no copays, all procedures free, wholesale meds/labs for 95% savings, furthermore #directcare can help lower health ins premiums by 60% in the first year
Read 3 tweets
Margaret's blog refers to @NHSDigital's #DataProtectionNotice for the #COVID19 #GPES extract, but somehow omits to mention that people's #Type1 objections (#OptOuts) WILL be upheld: Image
And also that, according to digital.nhs.uk/coronavirus/gp…, actually *enhanced* #InformationGovernance processes - involving both @TheBMA & @rcgp - will be in place for data #access, which "may" include respecting #NDOP on a "case by case basis": ImageImage
Meanwhile, @NHSEngland/@NHSX in their notice to health & care professionals (while notably failing to mention #Type1s...) confirms patients STILL have the right to #OptOut of having a #SummaryCareRecord, and that existing #SCR #OptOuts will be respected:
nhsx.nhs.uk/documents/11/C… Image
Read 6 tweets
Another true #DPC for the win story... Friday morning I saw a @MMMedCare patient at a school event. “I’m so glad to see you as I need to talk to you about my 5yo. For a month he has been complaining of increased thirst, so I checked his blood sugar an hour ago & it was 289!” 1/?
Child has no history of #diabetes & generally is in good health. Only other sxs -increased hunger & bed wetting. No vomiting, no confusion. Mom had checked own BS & a siblings & both were normal so it was unlikely machine error. Normally new, random BS of 289 =trip to ER
#DPC 2/?
We were at school to watch our children in a performance & her son appeared well. Still with a blood sugar of 289 after fasting all night, I knew he needed immediate follow-up so I said I should see him right after. As we left school his only complaint was “I’m hungry” #DPC 3/?
Read 9 tweets

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