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I lost yet another friend to ALS today so this tweet is coming in raw:
The letter at the link below has a real chance to save a lot of lives. Take 1 minute right fucking now to read it and sign it. No more prayers, we act and end fucking ALS together.
iamalsorg.typeform.com/to/n5XxZ2
The letter at the link below has a real chance to save a lot of lives. Take 1 minute right fucking now to read it and sign it. No more prayers, we act and end fucking ALS together.
iamalsorg.typeform.com/to/n5XxZ2
I fell asleep for 20 minutes and had the most beautiful dream that I handed this letter to @SteveFDA on 1.15.20 while I’m DC with over 100,000 signatures and that within weeks we had worked out a deal to make expanded access to promising therapies real.
So @AdyBarkan, @NotSoVanilla, @stevens_nation, @alsadvocacy @pjgreen @srfinger @sandymorris333 @als_now @alsassociation @ALSTDI @MDAorg, want to help make this dream real and challenge our collective 250,000 followers to sign on? #DoSomethingGreat
