Discover and read the best of Twitter Threads about #EDSToolkit
Most recents (1)
Through @SimonoffBob I've spoken to a cpl ppl who are newly dx'd or suspect they have hEDS, and I promised some resources.
Since there's an #EDSToolkit and lots of papers/research available through Bob + others like @HMSACharity @t7_linda @DrEReinhold @H2OhTwist, I thought ...
Since there's an #EDSToolkit and lots of papers/research available through Bob + others like @HMSACharity @t7_linda @DrEReinhold @H2OhTwist, I thought ...
I would instead share some of my personal resources. These are PSAs I wrote to my family&friends and posted to FB a couple of years back. They received an overwhelmingly supportive response. They took the onus off me, and put it onto others. And it was so very cathartic. They...
are quite long and I'm new to Twitter so bare with me while I try to work out the best way to post them lol.
Maybe they will give you help communicating difficult things to others in your lives. Or maybe you'll just feel some solidarity.
PSA 1 - "Coming out" w/ hEDS
...
Maybe they will give you help communicating difficult things to others in your lives. Or maybe you'll just feel some solidarity.
PSA 1 - "Coming out" w/ hEDS
...
