Discover and read the best of Twitter Threads about #EveryDeathCounts
Most recents (4)
I've so many thoughts about the culture of celebrity and its impact on shaming government into action. I've stayed silent until now, not sure what my voices adds.
My skin itches and my heart aches when I hear some of the language used to describe learning disabled people
1/16
My skin itches and my heart aches when I hear some of the language used to describe learning disabled people
1/16
Language that is littered through healthcare and society at large, the othering implicit in describing someone's distress. It's hard to hear some of these words from a @mencap_charity ambassador.
But simultaneously you can feel the love, the very real love behind the words
2/
But simultaneously you can feel the love, the very real love behind the words
2/
I'm left with some questions.
Why do healthcare professionals jump so quickly to discussing palliative care for some patients, when I've at times literally had to drag that discussion out of them, with my Dad's oncologist, as one example?
3/
Why do healthcare professionals jump so quickly to discussing palliative care for some patients, when I've at times literally had to drag that discussion out of them, with my Dad's oncologist, as one example?
3/
I don't have the stomach to tweet this yrs Leder report bristol.ac.uk/media-library/… I barely have the stomach to read it. I'm just going to highlight coroners and inquests.
Only 37% of learning disabled people lived beyond the age of 65 in 2018 (85% of general population did)
1/16
Only 37% of learning disabled people lived beyond the age of 65 in 2018 (85% of general population did)
1/16
I can't wrap my head around that. 63% of learning disabled people die before their 65th birthday, only 15% of non-learning disabled people do.
My gut suggests many more deaths of learning disabled people should therefore be reported to the coroner... that's logical right? 2/
My gut suggests many more deaths of learning disabled people should therefore be reported to the coroner... that's logical right? 2/
'Of the 1,946 deaths of adults with learning disabilities for which a review was completed in 2019, 32% were known to have been reported to a coroner, a substantially smaller proportion than the 41% of adults and children in the general population who died in 2018' 3/
The response by the DHSC to the 'news' that the deaths of learning disabled and/or autistic people have doubled during #COVID19. 1/5 
My response to the DHSC response:
1. You are not working hard enough. 2/5
1. You are not working hard enough. 2/5
2. Throwing out the number of tests carried out is both meaningless in relation to this issue and offensive. 3/5
New Dutch paper published yday on mortality of learning disabled people during 17/18 flu epidemic onlinelibrary.wiley.com/doi/full/10.11…
Abstract extracts follow #EveryDeathCounts illustrates why it's so important that we know what is happening to learning disabled and autistic people
Abstract extracts follow #EveryDeathCounts illustrates why it's so important that we know what is happening to learning disabled and autistic people
'During the influenza epidemic, mortality among ppl with ID [learning disability] increased almost three times as much than in the GenPop (15.2% vs. 5.4%), and more among male individuals with ID (+19.5%) than among female individuals with ID (+10.6%), as compared with baseline'
'In both cohorts, comparable increases in mortality within older age groups and due to respiratory causes were seen. Particularly in the ID‐cohort, excess deaths also occurred in younger age groups, due to endocrine diseases and ID‐specific causes' #EveryDeathCounts
